Senate Bill 1876
CODING: Words stricken are deletions; words underlined are additions.
Florida Senate - 1998 SB 1876
By Senator Turner
36-125A-98 See CS/HB 219
1 A bill to be entitled
2 An act relating to neurodegenerative disorders;
3 amending s. 430.501, F.S.; limiting terms for
4 members of the Alzheimer's Disease Advisory
5 Committee; creating the Parkinson's Disease
6 Advisory Committee; providing duties and
7 responsibilities; requiring reports; providing
8 for membership and organization; providing for
9 staff support; providing for expenses for
10 certain members; providing for dissolution of
11 the committee; amending s. 430.502, F.S.;
12 providing for Alzheimer's and Parkinson's
13 diseases memory disorder clinics and day care
14 and respite care programs; providing for annual
15 evaluation of the need for additional clinics;
16 authorizing, rather than requiring, the
17 Department of Elderly Affairs to contract for
18 model day care programs in conjunction with
19 such clinics; authorizing department programs
20 for persons with Parkinson's disease and
21 similar neurodegenerative disorders; providing
22 for fees; providing an effective date.
23
24 Be It Enacted by the Legislature of the State of Florida:
25
26 Section 1. Paragraph (b) of subsection (3) of section
27 430.501, Florida Statutes, is amended to read:
28 430.501 Alzheimer's Disease Advisory Committee;
29 research grants.--
30 (3)
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Florida Senate - 1998 SB 1876
36-125A-98 See CS/HB 219
1 (b)1. The Governor shall appoint members from a broad
2 cross section of public, private, and volunteer sectors. All
3 nominations shall be forwarded to the Governor by the
4 Secretary of Elderly Affairs in accordance with this
5 subsection.
6 2. Members shall be appointed to 4-year staggered
7 terms in accordance with s. 20.052.
8 3. Membership shall be limited to two consecutive
9 terms.
10 4.3. The Secretary of Elderly Affairs shall serve as
11 an ex officio member of the committee.
12 5.4. The committee shall elect one of its members to
13 serve as chair for a term of 1 year.
14 6.5. The committee may establish subcommittees as
15 necessary to carry out the functions of the committee.
16 7.6. The committee shall meet quarterly, or as
17 frequently as needed.
18 8.7. The Department of Elderly Affairs shall provide
19 staff support to assist the committee in the performance of
20 its duties.
21 9.8. Members of the committee and subcommittees shall
22 receive no salary, but are entitled to reimbursement for
23 travel and per diem expenses, as provided in s. 112.061, while
24 performing their duties under this section.
25 Section 2. Parkinson's Disease Advisory Committee.--
26 (1) There is created a Parkinson's Disease Advisory
27 Committee which shall advise the Department of Elderly Affairs
28 and the Department of Health, and shall make recommendations
29 to the Legislature, regarding Parkinson's disease and similar
30 neurodegenerative disorders. The committee shall consider the
31 elements and design of respite and specialized day care
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Florida Senate - 1998 SB 1876
36-125A-98 See CS/HB 219
1 services; the extent of coordination between current public
2 and private health programs and public awareness and training
3 programs, and the impact establishing a state Alzheimer's and
4 Parkinson's Disease Information Clearinghouse would have on
5 public awareness and training; a proper role for Florida
6 regarding research, and the relationship between research,
7 policy development, and the provision of services; and the
8 most effective methods to serve the long-term care needs of
9 persons with Parkinson's disease and similar neurodegenerative
10 disorders.
11 (2) The committee shall submit its findings to the
12 Speaker of the House of Representatives, the President of the
13 Senate, and the Secretaries of Health and Elderly Affairs. A
14 preliminary report shall be submitted by December 1, 1999. The
15 final report shall be submitted by June 30, 2001.
16 (3) The committee is dissolved July 1, 2001.
17 (4)(a) The Secretary of Elderly Affairs shall appoint
18 to the committee two representatives of organizations whose
19 programs are relevant to Parkinson's disease or similar
20 neurodegenerative disorders and two consumer members who are
21 individuals with Parkinson's disease or personal or family
22 experience with Parkinson's disease.
23 (b) The Secretary of Health shall appoint to the
24 committee two health professionals or allied health
25 professionals and two representatives of the Department of
26 Health.
27 (c) The committee shall elect one of its members to
28 serve as chair for a term of 1 year.
29 (d) The committee may establish subcommittees as
30 necessary to carry out the functions of the committee.
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Florida Senate - 1998 SB 1876
36-125A-98 See CS/HB 219
1 (e) The committee may meet quarterly, or as necessary
2 to accomplish its duties.
3 (f) The Department of Elderly Affairs shall provide
4 staff support to assist the committee in the performance of
5 its duties.
6 (5) Members of the committee and subcommittees shall
7 receive no salary, but consumer members may be reimbursed for
8 travel and per diem expenses, as provided in s. 112.061,
9 Florida Statutes, while performing their duties under this
10 section.
11 Section 3. Section 430.502, Florida Statutes, is
12 amended to read:
13 430.502 Alzheimer's and Parkinson's diseases disease;
14 memory disorder clinics and day care and respite care
15 programs.--
16 (1) There is established:
17 (a) A memory disorder clinic at each of the three
18 medical schools in this state;
19 (b) A memory disorder clinic at a major private
20 nonprofit research-oriented teaching hospital, and may fund a
21 memory disorder clinic at any of the other affiliated teaching
22 hospitals;
23 (c) A memory disorder clinic at the Mayo Clinic in
24 Jacksonville;
25 (d) A memory disorder clinic at the West Florida
26 Regional Medical Center;
27 (e) The East Central Florida Memory Disorder Clinic at
28 the Joint Center for Advanced Therapeutics and Biomedical
29 Research of the Florida Institute of Technology and Holmes
30 Regional Medical Center, Inc.;
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Florida Senate - 1998 SB 1876
36-125A-98 See CS/HB 219
1 (f) A memory disorder clinic at the Orlando Regional
2 Healthcare System, Inc.; and
3 (g) A memory disorder center located in a public
4 hospital that is operated by an independent special hospital
5 taxing district that governs multiple hospitals and is located
6 in a county with a population greater than 800,000 persons,
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8 for the purpose of conducting research and training in a
9 diagnostic and therapeutic setting for persons suffering from
10 Alzheimer's disease and related memory disorders. However,
11 memory disorder clinics funded as of June 30, 1995, shall not
12 receive decreased funding due solely to subsequent additions
13 of memory disorder clinics in this subsection.
14 (2) It is the intent of the Legislature that research
15 conducted by a memory disorder clinic and supported by state
16 funds pursuant to subsection (1) be applied research, be
17 service-related, and be selected in conjunction with the
18 department. Such research may address, but is not limited to,
19 diagnostic technique, therapeutic interventions, and
20 supportive services for persons suffering from Alzheimer's
21 disease and related memory disorders and their caregivers. A
22 memory disorder clinic shall conduct such research in
23 accordance with a research plan developed by the clinic which
24 establishes research objectives that are in accordance with
25 this legislative intent. A memory disorder clinic shall also
26 complete and submit to the department a report of the
27 findings, conclusions, and recommendations of completed
28 research. This subsection does not apply to those memory
29 disorder clinics at the three medical schools in the state or
30 at the major private nonprofit research-oriented teaching
31 hospital or other affiliated teaching hospital.
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Florida Senate - 1998 SB 1876
36-125A-98 See CS/HB 219
1 (3) The Alzheimer's Disease Advisory Committee must
2 annually evaluate the need for additional memory disorder
3 clinics in the state. The committee's evaluation and
4 recommendation must be included in any legislative budget
5 request submitted by the department to fund additional memory
6 disorder clinics. The first report will be due by December
7 31, 1995.
8 (4) Pursuant to the provisions of s. 287.057, the
9 Department of Elderly Affairs may shall contract for the
10 provision of three specialized Alzheimer's disease model day
11 care programs in conjunction with each memory disorder clinics
12 clinic. The purpose of each model day care program must be to
13 provide service delivery to persons suffering from Alzheimer's
14 disease or a related memory disorder and training for health
15 care and social service personnel in the care of persons
16 having Alzheimer's disease or related memory disorders.
17 (5) Pursuant to s. 287.057, the Department of Elderly
18 Affairs shall contract for the provision of respite care. All
19 funds appropriated for the provision of respite care shall be
20 distributed annually by the department to each funded county
21 according to an allocation formula. In developing the
22 formula, the department shall consider the number and
23 proportion of the county population of individuals who are 75
24 years of age and older. Each respite care program shall be
25 used as a resource for research and statistical data by the
26 memory disorder clinics established in this part. In
27 consultation with the memory disorder clinics, the department
28 shall specify the information to be provided by the respite
29 care programs for research purposes.
30 (6) Notwithstanding subsection (5), the Department of
31 Elderly Affairs shall contract for the provision of
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Florida Senate - 1998 SB 1876
36-125A-98 See CS/HB 219
1 specialized respite and daycare programs for persons with
2 Parkinson's disease and similar neurodegenerative disorders.
3 The purpose of such programs shall be to provide services to
4 persons with Parkinson's disease and similar neurodegenerative
5 disorders and their families, to provide training for health
6 care and social service personnel, and to increase public
7 awareness regarding Parkinson's disease and similar
8 neurodegenerative disorders. The department may assess fees
9 consistent with the provision of s. 430.503(2).
10 (7)(6) Each contract entered into pursuant to this
11 section must contain a requirement for a research component to
12 be completed and reported on in writing to the department
13 according to specifications and within a timeframe provided by
14 the department.
15 Section 4. This act shall take effect July 1, 1998.
16
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18 SENATE SUMMARY
19 Relates to neurodegenerative disorders. Limits to two
consecutive terms the terms that may be served by members
20 of the Alzheimer's Disease Advisory Committee. Creates
the Parkinson's Disease Advisory Committee. Provides
21 duties and responsibilities. Requires reports. Provides
for membership and organization. Provides for staff
22 support. Provides for paying the travel and per diem
expenses of consumer members. Provides for the
23 dissolution of the committee. Provides for Alzheimer's
and Parkinson's diseases memory disorder clinics and day
24 care and respite care programs. Provides for annual
evaluations of the need for additional clinics.
25 Authorizes, rather than requires, the Department of
Elderly Affairs to contract for model day care programs
26 in conjunction with such clinics. Authorizes department
programs for persons who have Parkinson's disease and
27 similar neurodegenerative disorders. Provides for fees.
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