House Bill 2131

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    Florida House of Representatives - 1999                HB 2131

        By the Committee on Elder Affairs & Long-Term Care and
    Representatives Argenziano, Heyman, Sobel, Reddick,
    Fiorentino, Bilirakis, Littlefield, Kosmas, Bitner, Jacobs and
    Levine



  1                      A bill to be entitled

  2         An act relating to end-of-life care; providing

  3         legislative findings; authorizing the Secretary

  4         of Health to develop and implement

  5         demonstration projects; requiring reports;

  6         requesting the Chancellor of the State

  7         University System to convene a working group;

  8         amending ss. 395.1041, 400.142, 400.4255,

  9         400.487, 400.6095, and 400.621, F.S.;

10         authorizing personnel of hospital emergency

11         services, long-term care facilities, assisted

12         living facilities, home health agencies,

13         hospices, and adult family-care homes to

14         withhold or withdraw cardiopulmonary

15         resuscitation pursuant to an order not to

16         resuscitate; providing for rules; providing

17         certain protection from prosecution and

18         liability; amending s. 401.45, F.S.; revising

19         authority of emergency medical technicians and

20         paramedics to withhold or withdraw

21         resuscitation or life-prolonging techniques;

22         directing the Department of Health to develop a

23         standardized do-not-resuscitate identification

24         system; authorizing a fee; providing for rules;

25         amending ss. 455.604, 458.319, and 459.008,

26         F.S.; providing that courses on end-of-life

27         care will fulfill certain education

28         requirements; amending s. 732.912, F.S.;

29         revising provisions relating to who may make

30         anatomical gifts; amending ss. 732.914 and

31         732.917, F.S.; correcting cross references;

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  1         amending s. 732.922, F.S.; conforming

  2         provisions relating to duty of certain hospital

  3         administrators; amending s. 765.101, F.S.;

  4         revising definitions; amending s. 765.102,

  5         F.S.; revising legislative intent relating to

  6         advance directives; amending s. 765.103, F.S.;

  7         providing for effect of existing advance

  8         directives; amending s. 765.104, F.S.;

  9         providing for amendment of an advance directive

10         or designation of a surrogate; amending s.

11         765.107, F.S.; providing nonapplicability to

12         certain persons; amending s. 765.110, F.S.;

13         prohibiting certain actions by a health care

14         facility or provider with respect to a

15         patient's advance directive; increasing a

16         penalty; requiring that advance directives

17         become part of patients' medical records;

18         providing for rules; amending s. 765.204, F.S.;

19         revising provisions relating to evaluation of a

20         patient's capacity to make health care

21         decisions; amending s. 765.205, F.S.; revising

22         responsibilities of the surrogate; amending s.

23         765.301, F.S.; correcting a cross reference;

24         amending s. 765.302, F.S.; revising procedure

25         for making a living will; amending s. 765.303,

26         F.S.; revising suggested form of a living will;

27         amending s. 765.304, F.S.; revising procedure

28         for implementing a living will; amending s.

29         765.305, F.S.; revising procedure in the

30         absence of a living will; amending s. 765.306,

31         F.S.; revising provisions relating to

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  1         determination of the patient's condition;

  2         renumbering and amending s. 765.308, F.S.;

  3         providing for transfer of a patient under

  4         certain circumstances; renumbering and amending

  5         s. 765.310, F.S.; providing penalties for

  6         falsification, forgery, or willful concealment,

  7         cancellation, or destruction of an advance

  8         directive, or a revocation or amendment

  9         thereof; amending s. 765.401, F.S.; revising

10         provisions relating to decisions by a proxy;

11         creating s. 765.404, F.S.; providing conditions

12         for withholding or withdrawing life-prolonging

13         procedures for certain persons in a persistent

14         vegetative state; directing the Department of

15         Elderly Affairs to convene a workgroup to

16         develop model advance directive forms;

17         repealing s. 3(6) of ch. 98-327, Laws of

18         Florida, relating to repeal of the Panel for

19         the Study of End-of-Life Care; continuing the

20         panel until a specified date; providing an

21         appropriation; providing effective dates.

22

23  Be It Enacted by the Legislature of the State of Florida:

24

25         Section 1.  End-of-life care.--

26         (1)(a)  The Legislature finds that Florida, as the

27  fourth most populous state, is highly diverse with regard to

28  race, ethnicity, urban and rural locales, religious practices,

29  and cultural traditions. Florida has the largest percentage of

30  elderly residents, the third largest incidence of AIDS, and

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  1  the fourth highest death rates from heart disease and chronic

  2  obstructive pulmonary disease in the nation.

  3         (b)  The Legislature finds that the Panel for the Study

  4  of End-of-Life Care has recommended policies that will assure

  5  the citizens of this state the highest quality of

  6  compassionate, competent, and adequate end-of-life care.

  7         (c)  The Legislature finds that all persons should have

  8  access to effective pain management and palliative care; that

  9  adequate management of pain and other distressing symptoms at

10  the end-of-life should be available; and that all settings

11  that care for seriously ill patients should address the

12  emotional and spiritual needs of such patients. The

13  Legislature finds that education of physicians and other

14  health care providers is necessary to assure that patients in

15  pain are assessed regularly and that their pain is treated

16  aggressively without fear of undue regulatory or legal action.

17         (d)  The Legislature finds that an individual's

18  experience of death and dying, and preferences about

19  end-of-life care, are rooted in ethnic and cultural values and

20  beliefs. The Legislature finds that social, health, and

21  education practitioners must be trained to understand work

22  within different cultural parameters.

23         (e)  The Legislature finds that to provide better pain

24  management, health care providers are to be encouraged to add

25  the assessment of pain as a "fifth vital sign." Further, the

26  Legislature intends that in accordance with standard and

27  accepted medical and ethical principles, the use of

28  pharmacological substances with the intent of alleviating or

29  eliminating pain and other discomfort is encouraged. Such use

30  should not be regarded as legally blameworthy, even if

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  1  appropriate pain control occurs during, and so precedes the

  2  outcome of, the dying process.

  3         (f)  The Legislature finds that the State Supreme Court

  4  has declared that, based on the constitutional right to

  5  privacy, competent adults can express their wishes to receive,

  6  refuse, withhold, or withdraw any medical treatment and that

  7  right continues even when a person becomes incapacitated.

  8         (2)  The Secretary of Health is authorized to develop

  9  and implement up to two demonstration projects to evaluate

10  strategies recommended by the Panel for the Study of

11  End-of-Life Care. The Department of Health is authorized to

12  accept for that purpose any special grant of money, services,

13  property, gifts, or donations from any organization, medical

14  school, or Federal Government agency, and to apply for grants

15  to support the demonstration projects. The secretary shall

16  report to the President of the Senate, the Speaker of the

17  House of Representatives, and the majority and minority

18  leaders and relevant substantive committees of both chambers,

19  on the demonstration projects, no later than January 30 of

20  each year.

21         (3)  The Chancellor of the State University System is

22  requested to convene a working group composed of one

23  representative from each of the Boards of Medicine,

24  Osteopathic Medicine, Nursing, Pharmacy, Nursing Home

25  Administrators, and Social Work, and the chairs of the four

26  medical schools' curriculum committees, to review available

27  curricula for end-of-life care and make recommendations

28  through the respective boards for content and materials to be

29  incorporated into the basic curriculum of each medical school,

30  school of social work, and allied health discipline.

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  1         Section 2.  Paragraph (l) is added to subsection (3) of

  2  section 395.1041, Florida Statutes, 1998 Supplement, to read:

  3         395.1041  Access to emergency services and care.--

  4         (3)  EMERGENCY SERVICES; DISCRIMINATION; LIABILITY OF

  5  FACILITY OR HEALTH CARE PERSONNEL.--

  6         (l)  Hospital emergency services personnel may withhold

  7  or withdraw cardiopulmonary resuscitation if presented with an

  8  order not to resuscitate executed pursuant to s. 401.45.

  9  Facility staff and facilities shall not be subject to criminal

10  prosecution or civil liability, nor be considered to have

11  engaged in negligent or unprofessional conduct, for

12  withholding or withdrawing cardiopulmonary resuscitation

13  pursuant to such an order.

14         Section 3.  Subsection (3) is added to section 400.142,

15  Florida Statutes, to read:

16         400.142  Emergency medication kits; orders not to

17  resuscitate.--

18         (3)  Facility staff may withhold or withdraw

19  cardiopulmonary resuscitation if presented with an order not

20  to resuscitate executed pursuant to s. 401.45. The agency

21  shall adopt rules providing for the implementation of such

22  orders. Facility staff and facilities shall not be subject to

23  criminal prosecution or civil liability, nor be considered to

24  have engaged in negligent or unprofessional conduct, for

25  withholding or withdrawing cardiopulmonary resuscitation

26  pursuant to such an order and rules adopted by the agency.

27         Section 4.  Subsection (3) is added to section

28  400.4255, Florida Statutes, to read:

29         400.4255  Use of licensed personnel; emergency care.--

30         (3)  Facility staff may withhold or withdraw

31  cardiopulmonary resuscitation if presented with an order not

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  1  to resuscitate executed pursuant to s. 401.45. The department

  2  shall adopt rules providing for the implementation of such

  3  orders. Facility staff and facilities shall not be subject to

  4  criminal prosecution or civil liability, nor be considered to

  5  have engaged in negligent or unprofessional conduct, for

  6  withholding or withdrawing cardiopulmonary resuscitation

  7  pursuant to such an order and rules adopted by the department.

  8         Section 5.  Subsection (7) is added to section 400.487,

  9  Florida Statutes, to read:

10         400.487  Patient assessment; establishment and review

11  of plan of care; provision of services; orders not to

12  resuscitate.--

13         (7)  Home health agency personnel may withhold or

14  withdraw cardiopulmonary resuscitation if presented with an

15  order not to resuscitate executed pursuant to s. 401.45. The

16  agency shall adopt rules providing for the implementation of

17  such orders. Home health personnel and agencies shall not be

18  subject to criminal prosecution or civil liability, nor be

19  considered to have engaged in negligent or unprofessional

20  conduct, for withholding or withdrawing cardiopulmonary

21  resuscitation pursuant to such an order and rules adopted by

22  the agency.

23         Section 6.  Subsection (8) of section 400.6095, Florida

24  Statutes, is renumbered as subsection (9), and a new

25  subsection (8) is added to said section to read:

26         400.6095  Patient admission; assessment; plan of care;

27  discharge; orders not to resuscitate; death.--

28         (8)  The hospice care team may withhold or withdraw

29  cardiopulmonary resuscitation if presented with an order not

30  to resuscitate executed pursuant to s. 401.45. The department

31  shall adopt rules providing for the implementation of such

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  1  orders. Hospice staff shall not be subject to criminal

  2  prosecution or civil liability, nor be considered to have

  3  engaged in negligent or unprofessional conduct, for

  4  withholding or withdrawing cardiopulmonary resuscitation

  5  pursuant to such an order and rules adopted by the department.

  6         Section 7.  Subsection (3) of section 400.621, Florida

  7  Statutes, 1998 Supplement, is renumbered as subsection (4),

  8  and a new subsection (3) is added to said section to read:

  9         400.621  Rules and standards relating to adult

10  family-care homes.--

11         (3)  The department shall adopt rules providing for the

12  implementation of orders not to resuscitate. The provider may

13  withhold or withdraw cardiopulmonary resuscitation if

14  presented with an order not to resuscitate executed pursuant

15  to s. 401.45. The provider shall not be subject to criminal

16  prosecution or civil liability, nor be considered to have

17  engaged in negligent or unprofessional conduct, for

18  withholding or withdrawing cardiopulmonary resuscitation

19  pursuant to such an order and rules adopted by the department.

20         Section 8.  Subsection (3) of section 401.45, Florida

21  Statutes, is amended and subsection (5) is added to said

22  section, to read:

23         401.45  Denial of emergency treatment; civil

24  liability.--

25         (3)(a)  Resuscitation or life-prolonging techniques may

26  be withheld or withdrawn from a patient by an emergency

27  medical technician or paramedic if evidence of an order not to

28  resuscitate by the patient's physician is presented to the

29  emergency medical technician or paramedic in a manner provided

30  by rule of the department.

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  1         (b)  Any licensee, physician, medical director, or

  2  emergency medical technician or paramedic who acts under the

  3  direction of a medical director is not subject to criminal

  4  prosecution or civil liability, and has not engaged in

  5  negligent or unprofessional conduct, as a result of the

  6  withholding or withdrawal of resuscitation or life-prolonging

  7  techniques from a patient pursuant to this subsection and

  8  rules adopted by the department.

  9         (c)  The department, in consultation with the

10  Department of Elderly Affairs and the Agency for Health Care

11  Administration, shall develop a standardized

12  do-not-resuscitate identification system with devices that

13  signify, when carried or worn, that the possessor is a patient

14  for whom a physician has issued an order not to administer

15  cardiopulmonary resuscitation. The department may charge a

16  reasonable fee to cover the cost of producing and distributing

17  such identification devices. Use of such devices shall be

18  voluntary.

19         (4)  Any licensee or emergency medical technician or

20  paramedic who in good faith provides emergency medical care or

21  treatment within the scope of their employment and pursuant to

22  oral or written instructions of a medical director shall be

23  deemed to be providing emergency medical care or treatment for

24  the purposes of s. 768.13(2)(b).

25         (5)  The department shall adopt and enforce all rules

26  necessary to implement this section.

27         Section 9.  Subsection (9) is added to section 455.604,

28  Florida Statutes, 1998 Supplement, to read:

29         455.604  Requirement for instruction for certain

30  licensees on human immunodeficiency virus and acquired immune

31  deficiency syndrome.--

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  1         (9)  In lieu of completing a course as required in

  2  subsection (1), the licensee may complete a course in

  3  end-of-life care and palliative health care, so long as the

  4  licensee completed an approved AIDS/HIV course in the

  5  immediately preceding biennium.

  6         Section 10.  Subsection (4) is added to section

  7  458.319, Florida Statutes, 1998 Supplement, to read:

  8         458.319  Renewal of license.--

  9         (4)  Notwithstanding the provisions of s. 455.604, a

10  physician may complete continuing education on end-of-life

11  care and palliative health care in lieu of continuing

12  education in AIDS/HIV, if that physician has completed the

13  AIDS/HIV continuing education in the immediately preceding

14  biennium.

15         Section 11.  Subsection (5) is added to section

16  459.008, Florida Statutes, 1998 Supplement, to read:

17         459.008  Renewal of licenses and certificates.--

18         (5)  Notwithstanding the provisions of s. 455.604, an

19  osteopathic physician may complete continuing education on

20  end-of-life and palliative health care in lieu of continuing

21  education in AIDS/HIV, if that physician has completed the

22  AIDS/HIV continuing education in the immediately preceding

23  biennium.

24         Section 12.  Section 732.912, Florida Statutes, 1998

25  Supplement, is amended to read:

26         732.912  Persons who may make an anatomical gift.--

27         (1)  Any person who may make a will may give all or

28  part of his or her body for any purpose specified in s.

29  732.910, the gift to take effect upon death.  An anatomical

30  gift made by an adult donor and not revoked by the donor as

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  1  provided in s. 732.916 is irrevocable and does not require the

  2  consent or concurrence of any person after the donor's death.

  3         (2)  If the decedent has not executed an agreement

  4  concerning an anatomical gift, including signing an organ and

  5  tissue donor card, expressing his or her wish to donate in a

  6  living will or advance directive, or signifying his or her

  7  intent to donate on his or her driver's license or in some

  8  other written form has indicated his or her wish to make an

  9  anatomical gift, a member of one of the classes of persons

10  listed below, in the order of priority stated and in the

11  absence of actual notice of contrary indications by the

12  decedent or actual notice of opposition by a member of the

13  same or a prior class, the surrogate designated by the

14  decedent pursuant to part II of chapter 765 may give all or

15  any part of the decedent's body for any purpose specified in

16  s. 732.910.:

17         (3)  If the decedent has not executed an agreement

18  concerning an anatomical gift or designated a surrogate

19  pursuant to part II of chapter 765 to make an anatomical gift

20  pursuant to the conditions of subsection (2), a member of one

21  of the classes of persons listed below, in the order of

22  priority stated and in the absence of actual notice of

23  contrary indications by the decedent or actual notice of

24  opposition by a member of the same or a prior class, may give

25  all or any part of the decedent's body for any purpose

26  specified in s. 732.910:

27         (a)  The spouse of the decedent;

28         (b)  An adult son or daughter of the decedent;

29         (c)  Either parent of the decedent;

30         (d)  An adult brother or sister of the decedent;

31         (e)  A grandparent of the decedent;

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  1         (f)  A guardian of the person of the decedent at the

  2  time of his or her death; or

  3         (g)  A representative ad litem who shall be appointed

  4  by a court of competent jurisdiction forthwith upon a petition

  5  heard ex parte filed by any person, which representative ad

  6  litem shall ascertain that no person of higher priority exists

  7  who objects to the gift of all or any part of the decedent's

  8  body and that no evidence exists of the decedent's having made

  9  a communication expressing a desire that his or her body or

10  body parts not be donated upon death;

11

12  but no gift shall be made by the spouse if any adult son or

13  daughter objects, and provided that those of higher priority,

14  if they are reasonably available, have been contacted and made

15  aware of the proposed gift, and further provided that a

16  reasonable search is made to show that there would have been

17  no objection on religious grounds by the decedent.

18         (4)(3)  If the donee has actual notice of contrary

19  indications by the decedent or, in the case of a spouse making

20  the gift, an objection of an adult son or daughter or actual

21  notice that a gift by a member of a class is opposed by a

22  member of the same or a prior class, the donee shall not

23  accept the gift.

24         (5)(4)  The person authorized by subsection (3) (2) may

25  make the gift after the decedent's death or immediately before

26  the decedent's death.

27         (6)(5)  A gift of all or part of a body authorizes any

28  examination necessary to assure medical acceptability of the

29  gift for the purposes intended.

30

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  1         (7)(6)  Once the gift has been made, the rights of the

  2  donee are paramount to the rights of others, except as

  3  provided by s. 732.917.

  4         Section 13.  Subsection (5) of section 732.914, Florida

  5  Statutes, 1998 Supplement, is amended to read:

  6         732.914  Manner of executing anatomical gifts.--

  7         (5)  Any gift by a member of a class designated in s.

  8  732.912(3)(2) must be made by a document signed by that person

  9  or made by that person's witnessed telephonic discussion,

10  telegraphic message, or other recorded message.

11         Section 14.  Subsection (3) of section 732.917, Florida

12  Statutes, is amended to read:

13         732.917  Rights and duties at death.--

14         (3)  The organ procurement organization, tissue bank,

15  or eye bank, or hospital medical professionals under the

16  direction thereof, may perform any and all tests to evaluate

17  the deceased as a potential donor and any invasive procedures

18  on the deceased body in order to preserve the potential

19  donor's organs.  These procedures do not include the surgical

20  removal of an organ or penetrating any body cavity,

21  specifically for the purpose of donation, until a properly

22  executed donor card or document is located or, if a properly

23  executed donor card or document cannot be located, a person

24  specified in s. 732.912(3)(2) has been located, has been

25  notified of the death, and has granted legal permission for

26  the donation.

27         Section 15.  Subsection (2) of section 732.922, Florida

28  Statutes, 1998 Supplement, is amended to read:

29         732.922  Duty of certain hospital administrators;

30  liability of hospital administrators, organ procurement

31  organizations, eye banks, and tissue banks.--

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  1         (2)  Where, based on accepted medical standards, a

  2  hospital patient is a suitable candidate for organ or tissue

  3  donation, the hospital administrator or the hospital

  4  administrator's designee shall, at or near the time of death,

  5  access the organ and tissue donor registry created by s.

  6  732.915(4) to ascertain the existence of a donor card or

  7  document executed by the decedent.  In the absence of a donor

  8  card, organ donation sticker or organ donation imprint on a

  9  driver's license, or other properly executed document, the

10  hospital administrator or designee shall request:

11         (a)  The patient's health care surrogate, as permitted

12  in s. 732.912(2); or

13         (b)  If the patient does not have a surrogate, or the

14  surrogate is not reasonably available, any of the persons

15  specified in s. 732.912, in the order and manner of priority

16  stated in s. 732.912,

17

18  to consent to the gift of all or any part of the decedent's

19  body for any purpose specified in this part. Except as

20  provided in s. 732.912, in the absence of actual notice of

21  opposition, consent need only be obtained from the person or

22  persons in the highest priority class reasonably available.

23         Section 16.  Section 765.101, Florida Statutes, is

24  amended to read:

25         765.101  Definitions.--As used in this chapter:

26         (1)  "Advance directive" means a witnessed written

27  document or oral statement in which instructions are given by

28  a principal or in which the principal's desires are expressed

29  concerning any aspect of the principal's health care, and

30  includes, but is not limited to, the designation of a health

31  care surrogate, a living will, or an anatomical gift made

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  1  pursuant to part X of chapter 732 orders not to resuscitate

  2  issued pursuant to s. 401.45.

  3         (2)  "Attending physician" means the primary physician

  4  who has responsibility for the treatment and care of the

  5  patient.

  6         (3)  "Close personal friend" means any person 18 years

  7  of age or older who has exhibited special care and concern for

  8  the patient, and who presents an affidavit to the health care

  9  facility or to the attending or treating physician stating

10  that he or she is a friend of the patient; is willing and able

11  to become involved in the patient's health care; and has

12  maintained such regular contact with the patient so as to be

13  familiar with the patient's activities, health, and religious

14  or moral beliefs.

15         (4)  "Health care decision" means:

16         (a)  Informed consent, refusal of consent, or

17  withdrawal of consent to any and all health care, including

18  life-prolonging procedures.

19         (b)  The decision to apply for private, public,

20  government, or veterans' benefits to defray the cost of health

21  care.

22         (c)  The right of access to all records of the

23  principal reasonably necessary for a health care surrogate to

24  make decisions involving health care and to apply for

25  benefits.

26         (d)  The decision to make an anatomical gift pursuant

27  to part X of chapter 732.

28         (5)  "Health care facility" means a hospital, nursing

29  home, hospice, home health agency, or health maintenance

30  organization licensed in this state, or any facility subject

31  to part I of chapter 394.

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  1         (6)  "Health care provider" or "provider" means any

  2  person licensed, certified, or otherwise authorized by law to

  3  administer health care in the ordinary course of business or

  4  practice of a profession.

  5         (7)  "Incapacity" or "incompetent" means the patient is

  6  physically or mentally unable to communicate a willful and

  7  knowing health care decision. For the purposes of making an

  8  anatomical gift, the term also includes a patient who is

  9  deceased.

10         (8)  "Informed consent" means consent voluntarily given

11  by a person after a sufficient explanation and disclosure of

12  the subject matter involved to enable that person to have a

13  general understanding of the treatment or procedure and the

14  medically acceptable alternatives, including the substantial

15  risks and hazards inherent in the proposed treatment or

16  alternative procedures, and to make a knowing health care

17  decision without coercion or undue influence.

18         (9)  "Life-prolonging procedure" means any medical

19  procedure, treatment, or intervention, including artificially

20  provided sustenance and hydration, which sustains, restores,

21  or supplants a spontaneous vital function. which:

22         (a)  Utilizes mechanical or other artificial means to

23  sustain, restore, or supplant a spontaneous vital function;

24  and

25         (b)  When applied to a patient in a terminal condition,

26  serves only to prolong the process of dying.

27

28  The term "life-prolonging procedure" does not include the

29  administration of medication or performance of medical

30  procedure, when such medication or procedure is deemed

31  necessary to provide comfort care or to alleviate pain.

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  1         (10)  "Living will" or "declaration" means:

  2         (a)  A witnessed document in writing, voluntarily

  3  executed by the principal in accordance with s. 765.302; or

  4         (b)  A witnessed oral statement made by the principal

  5  expressing the principal's instructions concerning

  6  life-prolonging procedures.

  7         (11)  "Persistent vegetative state" means a permanent

  8  and irreversible condition of unconsciousness in which there

  9  is:

10         (a)  The absence of voluntary action or cognitive

11  behavior of any kind.

12         (b)  An inability to communicate or interact

13  purposefully with the environment.

14         (12)(11)  "Physician" means a person licensed pursuant

15  to chapter 458 or chapter 459.

16         (13)(12)  "Principal" means a competent adult executing

17  an advance directive and on whose behalf health care decisions

18  are to be made.

19         (14)(13)  "Proxy" means a competent adult who has not

20  been expressly designated to make health care decisions for a

21  particular incapacitated individual, but who, nevertheless, is

22  authorized pursuant to s. 765.401 to make health care

23  decisions for such individual.

24         (15)(14)  "Surrogate" means any competent adult

25  expressly designated by a principal to make health care

26  decisions on behalf of the principal upon the principal's

27  incapacity.

28         (15)  "Terminal condition" means:

29         (a)  A condition caused by injury, disease, or illness

30  from which there is no reasonable probability of recovery and

31  which, without treatment, can be expected to cause death; or

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  1         (b)  A persistent vegetative state characterized by a

  2  permanent and irreversible condition of unconsciousness in

  3  which there is:

  4         1.  The absence of voluntary action or cognitive

  5  behavior of any kind; and

  6         2.  An inability to communicate or interact

  7  purposefully with the environment.

  8         (16)  "Treating physician" means the physician who has

  9  treated or is treating the patient for any condition directly

10  related to the condition resulting in the patient's

11  incapacity.

12         Section 17.  Subsection (3) of section 765.102, Florida

13  Statutes, is amended to read:

14         765.102  Legislative findings and intent.--

15         (3)  The Legislature recognizes further finds that for

16  some the administration of life-prolonging medical procedures

17  may result in the artificial prolongation of life for a person

18  with a terminal condition may secure for him or her only a

19  precarious and burdensome existence, while providing nothing

20  medically necessary or beneficial to the patient. In order to

21  ensure that the rights and intentions of a person with such a

22  condition may be respected even after he or she is no longer

23  able to participate actively in decisions concerning himself

24  or herself, and to encourage communication among such patient,

25  his or her family, and his or her physician, the Legislature

26  declares that the laws of this state recognize the right of a

27  competent adult to make an advance directive instructing his

28  or her physician to provide, withhold, or withdraw

29  life-prolonging procedures, or to designate another to make

30  the treatment decision for him or her in the event that such

31  person should become incapacitated and unable to personally

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  1  direct his or her medical care be found to be incompetent and

  2  suffering from a terminal condition.

  3         Section 18.  Section 765.103, Florida Statutes, is

  4  amended to read:

  5         765.103  Existing advance directives.--Any advance

  6  directive made prior to the effective date of this act April

  7  10, 1992, shall be given effect as executed, as provided in

  8  this chapter provided such directive was legally effective

  9  when written.

10         Section 19.  Subsections (1) and (3) of section

11  765.104, Florida Statutes, are amended to read:

12         765.104  Amendment or revocation.--

13         (1)  An advance directive or designation of a surrogate

14  may be amended or revoked at any time by a competent

15  principal:

16         (a)  By means of a signed, dated writing;

17         (b)  By means of the physical cancellation or

18  destruction of the advance directive by the principal or by

19  another in the principal's presence and at the principal's

20  direction;

21         (c)  By means of an oral expression of intent to amend

22  or revoke; or

23         (d)  By means of a subsequently executed advance

24  directive that is materially different from a previously

25  executed advance directive.

26         (3)  Any such amendment or revocation will be effective

27  when it is communicated to the surrogate, health care

28  provider, or health care facility.  No civil or criminal

29  liability shall be imposed upon any person for a failure to

30  act upon an amendment or a revocation unless that person has

31  actual knowledge of such amendment or revocation.

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  1         Section 20.  Section 765.107, Florida Statutes, is

  2  amended to read:

  3         765.107  Construction.--

  4         (1)  This chapter shall not be construed to repeal by

  5  implication any provision of s. 766.103, the Florida Medical

  6  Consent Law.  For all purposes, the Florida Medical Consent

  7  Law shall be considered an alternative to provisions of this

  8  section.

  9         (2)  Procedures provided in this chapter permitting the

10  withholding or withdrawal of life-prolonging procedures do not

11  apply to a person who never had capacity to designate a health

12  care surrogate or execute a living will.

13         Section 21.  Section 765.110, Florida Statutes, is

14  amended to read:

15         765.110  Health care facilities and providers;

16  discipline.--

17         (1)  A health care facility, pursuant to Pub. L. No.

18  101-508, ss. 4206 and 4751, shall provide to each patient

19  written information concerning the individual's rights

20  concerning advance directives and the health care facility's

21  policies respecting the implementation of such rights, and

22  shall document in the patient's medical records whether or not

23  the individual has executed an advance directive.

24         (2)  A health care provider or health care facility may

25  not require a patient to execute an advance directive or to

26  execute a new advance directive using the facility's or

27  provider's forms. The patient's advance directives shall

28  travel with the patient as part of the patient's medical

29  record.

30         (3)(2)  A health care provider or health care facility

31  shall be subject to professional discipline and revocation of

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  1  license or certification, and a fine of not more than $1,000

  2  $500 per incident, or both, if the health care provider or

  3  health care facility, as a condition of treatment or

  4  admission, requires an individual to execute or waive an

  5  advance directive.

  6         (4)(3)  The Department of Elderly Affairs for hospices

  7  and, in consultation with the Department of Elderly Affairs,

  8  the Department of Health for health care providers, and

  9  Rehabilitative Services and the Agency for Health Care

10  Administration for hospitals, nursing homes, home health

11  agencies, and health maintenance organizations, and the

12  Department of Children and Family Services for facilities

13  subject to part I of chapter 394 shall adopt rules to

14  implement the provisions of the section.

15         Section 22.  Subsection (2) of section 765.204, Florida

16  Statutes, is amended to read:

17         765.204  Capacity of principal; procedure.--

18         (2)  If a principal's capacity to make health care

19  decisions for herself or himself or provide informed consent

20  is in question, the attending physician shall evaluate the

21  principal's capacity. If the attending physician concludes

22  that the principal lacks such capacity, another physician

23  shall also evaluate the principal's capacity. If the second

24  physician agrees that the principal lacks the capacity to make

25  health care decisions or provide informed consent, the health

26  care facility shall enter both physician's evaluations in the

27  principal's clinical record and, if the principal has

28  designated a health care surrogate, shall notify such

29  surrogate in writing that her or his authority under the

30  instrument has commenced.

31

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  1         Section 23.  Subsection (2) of section 765.205, Florida

  2  Statutes, is amended to read:

  3         765.205  Responsibility of the surrogate.--

  4         (2)  The surrogate may authorize the release of

  5  information and clinical records to appropriate persons to

  6  ensure the continuity of the principal's health care and may

  7  authorize the transfer and admission, discharge, or transfer

  8  of the principal to or from a health care facility or other

  9  facility or program licensed under chapter 400.

10         Section 24.  Section 765.301, Florida Statutes, is

11  amended to read:

12         765.301  Short title.--Sections 765.302-765.309

13  765.302-765.310 may be cited as the "Life-Prolonging Procedure

14  Act of Florida."

15         Section 25.  Subsection (1) of section 765.302, Florida

16  Statutes, is amended to read:

17         765.302  Procedure for making a living will; notice to

18  physician.--

19         (1)  Any competent adult may, at any time, make a

20  living will or written declaration directing the providing,

21  withholding, or withdrawal of life-prolonging procedures in

22  the event such person suffers from a terminal condition. A

23  living will must be signed by the principal in the presence of

24  two subscribing witnesses, one of whom is neither a spouse nor

25  a blood relative of the principal. If the principal is

26  physically unable to sign the living will, one of the

27  witnesses must subscribe the principal's signature in the

28  principal's presence and at the principal's direction.

29         Section 26.  Subsection (1) of section 765.303, Florida

30  Statutes, is amended to read:

31         765.303  Suggested form of a living will.--

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  1         (1)  A living will may, BUT NEED NOT, be in the

  2  following form:

  3                           Living Will

  4         Declaration made this .... day of ...., 19 .... I,

  5  ........, willfully and voluntarily make known my desire that

  6  my dying not be artificially prolonged under the circumstances

  7  set forth below, and I do hereby declare that,: if at any time

  8  I am both mentally and physically incapacitated

  9

10  .... and I have a terminal condition (initial to require this

11  as a condition for your living will)

12

13  and if my attending or treating physician and another

14  consulting physician have determined that there is no

15  reasonable medical probability of my recovery from such

16  condition, I direct that life-prolonging procedures be

17  withheld or withdrawn when the application of such procedures

18  would serve only to prolong artificially the process of dying,

19  and that I be permitted to die naturally with only the

20  administration of medication or the performance of any medical

21  procedure deemed necessary to provide me with comfort care or

22  to alleviate pain.

23         It is my intention that this declaration be honored by

24  my family and physician as the final expression of my legal

25  right to refuse medical or surgical treatment and to accept

26  the consequences for such refusal.

27         In the event that I have been determined to be unable

28  to provide express and informed consent regarding the

29  withholding, withdrawal, or continuation of life-prolonging

30  procedures, I wish to designate, as my surrogate to carry out

31  the provisions of this declaration:

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  1

  2  Name:.........................................................

  3  Address:......................................................

  4  .................................................. Zip Code:..

  5  Phone:................

  6         I understand the full import of this declaration, and I

  7  am emotionally and mentally competent to make this

  8  declaration.

  9  Additional Instructions (optional):

10  ..............................................................

11  ..............................................................

12  ..............................................................

13                         ....(Signed)....

14                         ....Witness....

15                         ....Address....

16                          ....Phone....

17                         ....Witness....

18                         ....Address....

19                          ....Phone....

20

21         Section 27.  Subsection (2) of section 765.304, Florida

22  Statutes, is amended to read:

23         765.304  Procedure for living will.--

24         (2)  Before proceeding in accordance with the

25  principal's living will, it must be determined that:

26         (a)  The principal does not have a reasonable

27  probability of recovering capacity competency so that the

28  right could be exercised directly by the principal.

29         (b)  The principal's physical condition is terminal.

30

31

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  1         (b)(c)  Any limitations or conditions expressed orally

  2  or in a written declaration have been carefully considered and

  3  satisfied.

  4         Section 28.  Section 765.305, Florida Statutes, is

  5  amended to read:

  6         765.305  Procedure in absence of a living will.--

  7         (1)  In the absence of a living will executed pursuant

  8  to s. 765.303, the decision to withhold or withdraw

  9  life-prolonging procedures from a patient may be made by a

10  health care surrogate designated by the patient pursuant to

11  part II unless the designation limits the surrogate's

12  authority to consent to the withholding or withdrawal of

13  life-prolonging procedures.

14         (2)  Before exercising the incompetent patient's right

15  to forego treatment, the surrogate must be satisfied that:

16         (a)  The patient does not have a reasonable probability

17  of recovering capacity competency so that the right could be

18  exercised by the patient.

19         (b)  The patient is both mentally and physically

20  incapacitated with no reasonable medical probability of

21  recovery or the patient's physical condition is terminal.

22         Section 29.  Section 765.306, Florida Statutes, is

23  amended to read:

24         765.306  Determination of patient condition.--In

25  determining whether the patient has a terminal condition or

26  may recover mental and physical capacity, or whether a medical

27  condition or limitation referred to in an advance directive

28  exists, the patient's attending or treating physician and at

29  least one other consulting physician must separately examine

30  the patient.  The findings of each such examination must be

31  documented in the patient's medical record and signed by each

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  1  examining physician before life-prolonging procedures may be

  2  withheld or withdrawn.

  3         Section 30.  Section 765.308, Florida Statutes, is

  4  renumbered as section 765.1105, Florida Statutes, and amended

  5  to read:

  6         765.1105 765.308  Transfer of a patient.--

  7         (1)  A health care provider or facility that refuses to

  8  comply with a patient's advance directive the declaration of a

  9  patient, or the treatment decision of his or her surrogate,

10  shall make reasonable efforts to transfer the patient to

11  another health care provider or facility that will comply with

12  the directive declaration or treatment decision. This chapter

13  does not require a health care provider or facility to commit

14  any act which is contrary to the provider's or facility's

15  moral or ethical beliefs concerning life-prolonging

16  procedures, if the patient:

17         (a)  Is not in an emergency condition;, and

18         (b)  Has received written information upon admission

19  informing the patient of the policies of the health care

20  provider or facility regarding such moral or ethical beliefs.

21         (2)  A health care provider or facility that is

22  unwilling to carry out the wishes of the patient or the

23  treatment decision of his or her surrogate because of moral or

24  ethical beliefs must within 7 days either:

25         (a)  Transfer the patient to another health care

26  provider or facility. The health care provider or facility

27  shall pay the costs for transporting the patient to another

28  health care provider or facility; or

29         (b)  If the patient has not been transferred, carry out

30  the wishes of the patient or the patient's surrogate, unless

31  the provisions of s. 765.105 apply.

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  1         Section 31.  Section 765.310, Florida Statutes, is

  2  renumbered as section 765.1115, Florida Statutes, and amended

  3  to read:

  4         765.1115 765.310  Falsification, forgery, or willful

  5  concealment, cancellation, or destruction of directive

  6  declaration or revocation or amendment; penalties.--

  7         (1)  Any person who willfully conceals, cancels,

  8  defaces, obliterates, or damages an advance directive a living

  9  will without the principal's consent or who falsifies or

10  forges the revocation or amendment of an advance directive a

11  revocation of a living will of another, and who thereby causes

12  life-prolonging procedures to be utilized in contravention of

13  the previously expressed intent of the principal, commits a

14  felony of the third degree, punishable as provided in s.

15  775.082, s. 775.083, or s. 775.084.

16         (2)  Any person who falsifies or forges the advance

17  directive living will of another or who willfully conceals or

18  withholds personal knowledge of the revocation of an advance

19  directive a declaration, with the intent to cause a

20  withholding or withdrawal of life-prolonging procedures

21  contrary to the wishes of the principal, and who thereby

22  because of such act directly causes life-prolonging procedures

23  to be withheld or withdrawn and death to be hastened, commits

24  a felony of the second degree, punishable as provided in s.

25  775.082, s. 775.083, or s. 775.084.

26         Section 32.  Subsection (3) of section 765.401, Florida

27  Statutes, is amended to read:

28         765.401  The proxy.--

29         (3)  Before exercising the incapacitated patient's

30  rights to select or decline health care, the proxy must comply

31  with the pertinent provisions applicable to surrogates under

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  1  this chapter, except that a proxy's decision to withhold or

  2  withdraw life-prolonging procedures must either:

  3         (a)  Be supported by a written declaration; or

  4         (b)  If there is no written declaration, the patient

  5  must be terminally ill or in a persistent vegetative state,

  6  and the proxy's decision must be supported by clear and

  7  convincing evidence that the decision would have been the one

  8  the patient would have chosen had the patient been competent.

  9         Section 33.  Section 765.404, Florida Statutes, is

10  created to read:

11         765.404  Persistent vegetative state.--For persons in a

12  persistent vegetative state who have no advance directive and

13  for whom there is no evidence indicating what the person would

14  have wanted under such conditions, and who have no family or

15  friends available or willing to serve as a proxy to make

16  health care decisions for them, life-prolonging procedures may

17  be withheld or withdrawn under the following conditions:

18         (1)  The person has a judicially appointed guardian

19  representing his or her best interest with authority to

20  consent to medical treatment; and

21         (2)  The guardian, in consultation with the person's

22  attending physician and the medical ethics committee of the

23  facility where the patient is located, concludes that the

24  condition is permanent and that there is no reasonable hope

25  for recovery. If there is no medical ethics committee at the

26  facility, the facility must have an arrangement with the

27  medical ethics committee of another facility or with a

28  community-based ethics committee approved by the Florida

29  Bio-ethics Network. The ethics committee shall review the case

30  with the guardian, in consultation with the person's attending

31  physician, to determine whether the condition is permanent and

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  1  there is no reasonable hope for recovery. The individual

  2  committee members and the facility associated with an ethics

  3  committee shall not be held liable in any civil action related

  4  to the performance of any duties required in this subsection.

  5         Section 34.  The Department of Elderly Affairs shall

  6  convene a workgroup composed of health care professionals,

  7  health facilities, attorneys, consumers, clergy, academic

  8  institutions, and other interested parties to develop model

  9  advance directive forms. The department shall make the forms

10  available to the public. The department may reconvene the

11  workgroup as necessary to modify and update such forms.

12         Section 35.  Effective July 1, 1999:

13         (1)  Subsection (6) of section 3 of chapter 98-327,

14  Laws of Florida, is repealed and the Panel for the Study of

15  End-of-Life Care created by said section is continued until

16  January 31, 2000.

17         (2)  To support the work of the panel, the sum of

18  $100,000 is appropriated from the General Revenue Fund to the

19  Pepper Institute on Aging and Public Policy at Florida State

20  University.

21         (3)  The panel shall submit its final report to the

22  Legislature no later than January 31, 2000.

23         Section 35.  Except as otherwise provide herein, this

24  act shall take effect October 1, 1999.

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  1            *****************************************

  2                          HOUSE SUMMARY

  3
      Provides legislative findings regarding end-of-life care.
  4    Provides for demonstration projects under the Secretary
      of Health and a working group to review certain
  5    curricula. Authorizes emergency medical technicians,
      paramedics, and  personnel of hospital emergency
  6    services, long-term care facilities, assisted living
      facilities, home health agencies, hospices, and adult
  7    family-care homes to withhold or withdraw cardiopulmonary
      resuscitation pursuant to an order not to resuscitate.
  8    Provides protection from criminal prosecution, civil
      liability, and charges of negligent or unprofessional
  9    conduct for such action. Directs the Department of Health
      to develop a standardized do-not-resuscitate
10    identification system, and authorizes a fee therefor.
      Revises provisions relating to anatomical gifts of
11    advance directives, health care surrogates and proxies,
      and living wills. Increases a penalty for health care
12    facilities or providers that require patients to execute
      advance directives. Requires advance directives to become
13    part of patients' medical records. Provides penalties for
      cancellation, or destruction of an advance directive,
14    rather than a living will. Provides conditions for
      withholding or withdrawing life-prolonging procedures for
15    persons in a persistent vegetative state when there is no
      advance directive or health care proxy. Directs the
16    Department of Elderly Affairs to convene a workgroup to
      develop model advance directive forms. Continues the
17    Panel for the Study of End-of-Life Care until January 31,
      2000, and provides an appropriation therefor. See bill
18    for details.

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