House Bill 2219

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    Florida House of Representatives - 2000                HB 2219

        By Representatives Russell and Fasano






  1                      A bill to be entitled

  2         An act providing for a study on children with

  3         developmental delays; providing purposes;

  4         providing for a commission and its membership,

  5         officers, and meetings; providing for the

  6         administration of the study and for staff and

  7         expenses; prescribing the components of the

  8         study; authorizing the employment of expert

  9         consultants; providing for advisory workgroups;

10         requiring reports to the Legislature; providing

11         an appropriation; providing for expiration of

12         the act; providing an effective date.

13

14         WHEREAS, the healthy development of Florida's infants

15  and children is often hampered by their exposure to multiple

16  stresses, traumatic events such as child abuse and family

17  violence, mental or emotional disorders, or developmental

18  delays or disabilities that result in personal and family

19  hardships and extreme financial costs to public and private

20  community-based systems, and

21         WHEREAS, recent brain research, as well as other

22  clinical and social research, has confirmed that there exists

23  a window of opportunity for successfully intervening with

24  children experiencing and at risk of emotional, social,

25  cognitive, learning, and other developmental delays, and

26         WHEREAS, the consequences of young children entering

27  school and becoming adults with mental disorders or

28  developmental disabilities and delays not only affect children

29  and families but also affect systems that are publicly

30  supported, such as welfare assistance, child protection,

31

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    Florida House of Representatives - 2000                HB 2219

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  1  criminal justice, special education, and other public social

  2  and health-related systems, and

  3         WHEREAS, there should be a comprehensive evaluation of

  4  the needs of Florida's children who are at high risk of

  5  significant delays and serious developmental problems that are

  6  preventable and an evaluation of the interventions available,

  7  and

  8         WHEREAS, Florida's systems of care and public and

  9  private resources need to be better integrated and coordinated

10  to intervene early and thus to prevent the adverse effects of

11  child abuse and neglect, community violence, mental disorders,

12  learning disorders, and developmental delays and problems,

13  NOW, THEREFORE,

14

15  Be It Enacted by the Legislature of the State of Florida:

16

17         Section 1.  Short title.--This act may be cited as the

18  "Study on Children with Developmental Delays Act."

19         Section 2.  Purpose.--The purpose of this act is to

20  examine how this state can better identify and effectively

21  serve those young children with or at high risk of mental

22  disorders or developmental delays and disabilities, with the

23  goal of optimally minimizing the adverse effects of those

24  delays and disabilities on children in this state. As used in

25  this act, the term "children with developmental delays" means

26  those infants and young children from birth to 5 years of age

27  who are experiencing or are at high risk for developing

28  emotional, cognitive, social, learning, and other

29  developmental delays or long-term mental or developmental

30  disabilities or conditions. The study must recognize that

31  families, as well as other community-based entities, play a

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  1  major role in preventing or minimizing certain risks to the

  2  child, enhancing the child's development, and minimizing the

  3  long-term disabling impact of any developmental delay or

  4  disability. The study should focus on developing

  5  early-intervention strategies and programs that provide

  6  individualized treatment and other services to infants and

  7  young children and to their families so that the children will

  8  not suffer unnecessarily because their problems and deficits

  9  were never identified or were mislabeled. The study must

10  document the ways in which providing appropriate early

11  interventions to young children who experience these

12  developmental delays or deficits or early negative family

13  circumstances will afford a more productive life for these

14  children as well as result in cost savings to public systems

15  such as the criminal justice and child welfare systems. The

16  study must use to the greatest possible extent the work and

17  findings of other groups.

18         Section 3.  Study on children with developmental

19  delays; administration; study commission membership;

20  components of study.--

21         (1)  ADMINISTRATION OF STUDY; STAFF; EXPENSES.--The

22  Florida Partnership for School Readiness shall conduct the

23  study on children with developmental delays to meet the

24  purposes prescribed in this act. The Executive Office of the

25  Governor, the Department of Children and Family Services, and

26  the Children's Medical Services of the Department of Health

27  shall provide assistance to the partnership on request.

28         (a)  The partnership shall appoint a study commission

29  to carry out the activities required for the study. The

30  commission is to consist of the following 15 members:

31         1.  The Secretary of Juvenile Justice.

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  1         2.  A representative of the Department of Children and

  2  Family Services.

  3         3.  A representative of the Department of Education.

  4         4.  The Executive Director of the Agency for Health

  5  Care Administration.

  6         5.  A representative of the Department of Health.

  7         6.  The Department of Psychiatry Chair of the

  8  University of Florida Brain Institute.

  9         7.  The Department of Pediatrics Chair of the

10  University of Miami Medical School.

11         8.  The chair of the Florida School Readiness

12  Partnership Board.

13         9.  The chair of the Florida Interagency Coordinating

14  Council for Infants and Toddlers.

15         10.  A professional who has expertise in the needs of

16  children with learning disabilities.

17         11.  A professional who has expertise in the needs of

18  children with emotional or mental disorders.

19         12.  A professional who has expertise in the needs of

20  children with developmental disabilities.

21         13.  A professional with expertise in the diagnosis and

22  treatment of children with speech and language disorders.

23         14.  A professional with expertise in the

24  early-intervention and prevention services rendered to

25  children in this state.

26         15.  The parent of a child with a learning disability

27  or emotional or mental disorder.

28         (b)  Appointments to the study commission must be

29  completed within 2 weeks after this act takes effect, and the

30  study commission must conduct its initial meeting within 1

31  month after this act takes effect. The partnership executive

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  1  director shall appoint a study coordinator within 15 days

  2  after the appointment of the commission, within funds

  3  appropriated. The partnership executive director may appoint

  4  one professional staff member and one clerical staff member

  5  within funds appropriated, subject to the approval of the

  6  partnership. The staff shall serve under the direction of the

  7  partnership executive director and shall perform the duties

  8  assigned by the partnership. An agency head may not designate

  9  a representative to attend study commission meetings on his or

10  her behalf. Professional members of the study commission must

11  be appointed in consultation with the President of the Senate

12  and the Speaker of the House of Representatives.

13         (c)  Members of the study commission and members of the

14  advisory workgroups shall serve without compensation, but are

15  entitled to receive reimbursement for per diem and travel

16  expenses as provided in section 112.061, Florida Statutes.

17         (2)  COMPONENTS OF THE STUDY.--The study on children

18  with developmental delays shall contain the following

19  components:

20         (a)  Examination of the research and best practices in

21  the pertinent psychiatric/medical, social,

22  psychological/behavioral, and education professions in order

23  to identify early interventions that will prevent or minimize

24  the adverse effects of emotional, social, cognitive, learning,

25  or developmental delays or disabilities on children and their

26  families.

27         (b)  Determination of the best existing,

28  age-appropriate screening and evaluation tools, such as School

29  Readiness uniform screening, which are currently used by

30  community service providers and education entities to identify

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  1  and link children with appropriate specialized interventions

  2  and services.

  3         (c)  Identification of community risk factors such as

  4  chronic community and family violence which expose infants and

  5  young children to a variety of developmental and clinical

  6  problems and limit the effectiveness of parents.

  7         (d)  Identification of existing services and programs

  8  in this state which are effective and which need to be

  9  expanded in scope, availability, or geographic access and

10  identification of new services, programs, or interventions

11  that have proven effective by means that include a review of

12  the professional expertise, available and unavailable, in this

13  state to provide these services.

14         (e)  Determination of the configuration and

15  organizational arrangement of the delivery systems for

16  early-intervention services and programs to assure

17  coordination and integration with existing systems, which

18  include, but are not limited to, School Readiness, Infants and

19  Toddlers Early Intervention Program, Pre-Kindergarten

20  Disability Program, Healthy Start Program, Healthy Families

21  Florida, Florida KidCare, child and adolescent mental health

22  services, juvenile justice programs, developmental services,

23  foster care services, group care services, domestic violence

24  services, and teenage parent programs.

25         (f)  Determination of the costs of providing services

26  and propose funding options.

27         (g)  Based upon these finding and conclusions,

28  preparation of a plan for building a comprehensive

29  early-intervention system in this state for young children

30  with or at high risk of developmental delays or problems and

31  recommendation of public policy changes that will address the

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  1  issue of violence prevention. The plan must include a

  2  description of services and programs accessible to all

  3  communities in this state, budget and resource needs, proposed

  4  statutory revisions, legislative funding options, and an

  5  implementation schedule.

  6         (3)  EXPERT CONSULTANTS.--The study commission, with

  7  the approval of the partnership, may invite national experts

  8  in the area of brain research, child development and early

  9  intervention, and violence intervention to participate in the

10  study activities and to make pertinent recommendations

11  concerning this state's prevention and early-intervention

12  strategies, programs, and services. Fees may be paid to the

13  consultants from the appropriation for the study.

14         (4)  ADVISORY WORKGROUPS.--The study commission shall

15  establish at least two advisory workgroups. One must be a

16  scientific advisory workgroup composed of scientific experts

17  who will examine the effectiveness of various

18  early-intervention and prevention programs, preparing a report

19  for the study commission to help guide selection of programs.

20  The other must be a community advisory workgroup composed of

21  state agency program representatives; parents of children who

22  are at-risk of developmental delays or disabilities; parents

23  of children with disorders or disabilities; local providers of

24  child care, early-intervention services, and other relevant

25  services; a local school readiness coalition representative; a

26  regional policy council representative; and other experts in

27  the field or service system. This community advisory workgroup

28  shall provide the study commission with technical assistance

29  on the services and systems of this state.

30         (5)  REPORT.--The partnership must submit its report by

31  January 1, 2001, to the President of the Senate, the Speaker

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  1  of the House of Representatives, and the chairpersons of the

  2  appropriate substantive committees of each house of the

  3  Legislature.

  4         (6)  APPROPRIATION.--There is appropriated for fiscal

  5  year 2000-2001 the sum of $300,000 from the General Revenue

  6  Fund to the Florida Partnership on School Readiness to fund

  7  the study. Of this appropriation, $100,000 may be used to

  8  reimburse national consultants in child development, brain

  9  development, violence prevention, and other related areas who

10  provide consultation and share their expertise with the study

11  commission.

12         Section 4.  This act expires June 30, 2001.

13         Section 5.  This act shall take effect upon becoming a

14  law.

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16            *****************************************

17                          SENATE SUMMARY

18    Provides for a study on children with developmental
      delays. Provides purposes. Provides for a study
19    commission. Provides for the administration of the study
      and for staff and expenses. Specifies the components of
20    the study. Authorizes the employing of expert
      consultants. Requires appointment of advisory workgroups.
21    Requires a report to the Legislature. Provides an
      appropriation. Provides for expiration of the act.
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