House Bill hb0817c1

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    Florida House of Representatives - 2002              CS/HB 817

        By the Committee on Health Regulation and Representatives
    Sobel and Siplin





  1                      A bill to be entitled

  2         An act relating to newborn infant screening;

  3         authorizing formation of a study group under

  4         Children's Medical Services of the Department

  5         of Health; providing purpose; providing

  6         membership; requiring recommendations and a

  7         plan for expanding newborn infant screening

  8         requirements; requiring consideration of the

  9         costs of such expansion and testing; requiring

10         a report to the Legislature; providing an

11         effective date.

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13  Be It Enacted by the Legislature of the State of Florida:

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15         Section 1.  Children's Medical Services of the

16  Department of Health is authorized to convene a study group

17  for the purpose of conducting comparative research regarding

18  the expanded infant screening programs currently operating in

19  other states and the use of tandem mass spectrometry in such

20  programs. The study group shall consist of members of the

21  Genetics and Infant Screening Advisory Council designated by

22  the Secretary of Health, a representative designated by the

23  Florida Hospital Association, and a representative from the

24  Florida chapter of the March of Dimes and shall operate under

25  the auspices of Children's Medical Services. Based on data

26  available from the states operating expanded infant screening

27  programs, the study group shall make recommendations regarding

28  the expansion of the newborn infant screening requirements

29  provided in s. 383.14, Florida Statutes, and shall develop an

30  expanded newborn infant screening plan tailored to the needs

31  of Florida's population. The study group shall also consider

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    Florida House of Representatives - 2002              CS/HB 817

    601-204-02






  1  the cost of current testing, the cost of expansion,

  2  appropriate mechanisms for reimbursing the cost of testing,

  3  and the appropriate location for such testing. The study

  4  group's research shall be completed by August 1, 2002, and its

  5  recommendations and plan shall be submitted to the Legislature

  6  by September 1, 2002.

  7         Section 2.  This act shall take effect upon becoming a

  8  law.

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