House Bill hb0817e1
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CS/CS/HB 817, First Engrossed
1 A bill to be entitled
2 An act relating to newborn infant screening;
3 authorizing formation of a task force within
4 the Division of Children's Medical Services
5 Prevention and Intervention of the Department
6 of Health; providing purpose; providing
7 membership, organization, and expenses;
8 requiring review of data and recommendations
9 and a plan for newborn infant screening
10 requirements; requiring consideration of the
11 costs of expansion and testing; requiring a
12 report; providing for termination of the task
13 force; providing an effective date.
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15 Be It Enacted by the Legislature of the State of Florida:
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17 Section 1. (1) There is created within the Division
18 of Children's Medical Services Prevention and Intervention of
19 the Department of Health the Infant Screening Programs Task
20 Force. This task force is created to perform comparative
21 research regarding the infant screening programs currently
22 operating in other states. The task force consists of 15
23 members as follows:
24 (a) All members of the Genetics and Infant Screening
25 Advisory Council.
26 (b) One member of the Florida Hospital Association
27 designated by the executive director of the association.
28 (c) One member of the Florida Statutory Teaching
29 Hospital Council designated by the chair of the council.
30 (d) One representative from the Florida chapter of the
31 March of Dimes appointed by the head of the Florida chapter.
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CS/CS/HB 817, First Engrossed
1 (2)(a) The first meeting of the task force shall be
2 held in Tallahassee no later than May 1, 2002.
3 (b) The chair of the Genetics and Infant Screening
4 Advisory Council shall serve as the chair of the task force.
5 All decisions of the task force shall be by majority vote of
6 the members present at a duly convened meeting of the task
7 force. All meetings and records of the task force are subject
8 to the requirements of s. 24, Art. I of the State
9 Constitution.
10 (c) Members of the task force that are members of the
11 Genetics and Infant Screening Advisory Council shall receive
12 per diem as provided in s. 112.061, Florida Statutes; other
13 members of the task force shall pay their own expenses.
14 (3) Staff of the Division of Children's Medical
15 Services Prevention and Intervention shall be assigned by the
16 director to provide support to the task force.
17 (4) The task force shall collect data from all states
18 operating infant screening programs. All necessary research
19 shall be completed by no later than August 1, 2002.
20 (5) Based upon the data collected, the task force
21 shall prepare recommendations regarding the newborn infant
22 screening requirement provided in s. 383.14, Florida Statutes,
23 and develop a newborn infant screening plan tailored to the
24 needs of Florida's population. As part of the review of
25 current screening requirements and in the formulation of its
26 recommended plan, the task force shall consider the cost of
27 current testing, the cost of expansion, appropriate mechanisms
28 for reimbursing the cost of testing, and the appropriate
29 location for such testing.
30 (6) The task force shall submit a final report of its
31 review and recommended plan to the Secretary of Health, the
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CS/CS/HB 817, First Engrossed
1 Governor, the President of the Senate, and the Speaker of the
2 House of Representatives no later than September 1, 2002.
3 (7) The task force shall terminate upon the submission
4 of the final report.
5 Section 2. This act shall take effect upon becoming a
6 law.
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