| 1 | Representative Kyle offered the following: |
| 2 |
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| 3 | Amendment (with title amendment) |
| 4 | Remove line(s) 706-1100 and insert: |
| 5 | 8. The Florida Cancer Council. |
| 6 | 9. The American Cancer Society, Florida Division, Inc. |
| 7 | 10. The American Heart Association. |
| 8 | 11. The American Lung Association of Florida. |
| 9 | 12. The American Diabetes Association, South Coastal |
| 10 | Region. |
| 11 | 13. The Alzheimer's Association. |
| 12 | 14. The Epilepsy Foundation. |
| 13 | 15. The National Parkinson Foundation. |
| 14 | 16. The Florida Public Health Foundation, Inc. |
| 15 | 17. Scripps Florida or the entity formed in this state by |
| 16 | The Scripps Research Institute. |
| 17 | (b) Members of the council shall serve without |
| 18 | compensation and each organization represented shall cover all |
| 19 | expenses of its representative. |
| 20 | Section 7. Paragraph (d) of subsection (1) of section |
| 21 | 215.5601, Florida Statutes, is amended to read: |
| 22 | 215.5601 Lawton Chiles Endowment Fund.-- |
| 23 | (1) LEGISLATIVE INTENT.--It is the intent of the |
| 24 | Legislature to: |
| 25 | (d) Provide funds to help support public-health and |
| 26 | biomedical research for the prevention, diagnosis, and |
| 27 | treatment, and cure of diseases related to tobacco use by |
| 28 | creating an annual and perpetual source of funding for |
| 29 | biomedical research in the state in order to expand the |
| 30 | foundation of biomedical knowledge relating to the prevention, |
| 31 | diagnosis, and treatment, and cure of diseases related to |
| 32 | tobacco use, including cancer, cardiovascular disease, stroke, |
| 33 | and pulmonary disease; improve the quality of the state's |
| 34 | academic health centers by bringing the advances of biomedical |
| 35 | research into the training of physicians and other health care |
| 36 | providers; and increase the state's per capita funding for |
| 37 | biomedical research by undertaking new initiatives in biomedical |
| 38 | research which will attract additional funding from outside the |
| 39 | state while also stimulating economic activity in the state in |
| 40 | areas related to biomedical research, such as the research and |
| 41 | production of pharmaceuticals, biotechnology, and medical |
| 42 | devices. |
| 43 | Section 8. Paragraphs (a) and (b) of subsection (1) and |
| 44 | subsections (2) and (10) of section 215.5602, Florida Statutes, |
| 45 | are amended to read: |
| 46 | 215.5602 James and Esther King Biomedical Research |
| 47 | Program.-- |
| 48 | (1) There is established within the Department of Health |
| 49 | the James and Esther King Biomedical Research Program funded by |
| 50 | the proceeds of the Lawton Chiles Endowment Fund pursuant to s. |
| 51 | 215.5601. The purpose of the James and Esther King Biomedical |
| 52 | Research Program is to provide an annual and perpetual source of |
| 53 | funding in order to support research initiatives that address |
| 54 | the health care problems of Floridians in the areas of tobacco- |
| 55 | related cancer, cardiovascular disease, stroke, and pulmonary |
| 56 | disease. The long-term goals of the program are to: |
| 57 | (a) Improve the health of Floridians by researching better |
| 58 | prevention, diagnoses, and treatments, and cures for cancer, |
| 59 | cardiovascular disease, stroke, and pulmonary disease. |
| 60 | (b) Expand the foundation of biomedical knowledge relating |
| 61 | to the prevention, diagnosis, and treatment, and cure of |
| 62 | diseases related to tobacco use, including cancer, |
| 63 | cardiovascular disease, stroke, and pulmonary disease. |
| 64 | (2) Funds appropriated for the James and Esther King |
| 65 | Biomedical Research Program shall be used exclusively for the |
| 66 | award of grants and fellowships as established in this section; |
| 67 | for research relating to the prevention, diagnosis, and |
| 68 | treatment, and cure of diseases related to tobacco use, |
| 69 | including cancer, cardiovascular disease, stroke, and pulmonary |
| 70 | disease; and for expenses incurred in the administration of this |
| 71 | section. Priority shall be granted to research designed to |
| 72 | prevent or cure disease. |
| 73 | (10) The council shall submit an annual progress report on |
| 74 | the state of biomedical research in this state to the Florida |
| 75 | Center for Universal Research to Eradicate Disease and to the |
| 76 | Governor, the Secretary of Health, the President of the Senate, |
| 77 | and the Speaker of the House of Representatives by February 1. |
| 78 | The report must include: |
| 79 | (a) A list of research projects supported by grants or |
| 80 | fellowships awarded under the program. |
| 81 | (b) A list of recipients of program grants or fellowships. |
| 82 | (c) A list of publications in peer reviewed journals |
| 83 | involving research supported by grants or fellowships awarded |
| 84 | under the program. |
| 85 | (d) The total amount of biomedical research funding |
| 86 | currently flowing into the state. |
| 87 | (e) New grants for biomedical research which were funded |
| 88 | based on research supported by grants or fellowships awarded |
| 89 | under the program. |
| 90 | (f) Progress in the prevention, diagnosis, and treatment, |
| 91 | and cure of diseases related to tobacco use, including cancer, |
| 92 | cardiovascular disease, stroke, and pulmonary disease. |
| 93 | Section 9. (1) The Life Sciences Building at Florida |
| 94 | State University in Tallahassee is designated as the "James E. |
| 95 | 'Jim' King, Jr., Building." |
| 96 | (2) Florida State University is authorized to erect |
| 97 | markers for the designation of the James E. "Jim" King, Jr., |
| 98 | Building as described in subsection (1). |
| 99 | Section 10. Florida Cancer Council.-- |
| 100 | (1) Effective July 1, 2004, the Florida Cancer Council |
| 101 | within the Department of Health is established for the purpose |
| 102 | of making the state a center of excellence for cancer research. |
| 103 | (2)(a) The council shall be representative of the state's |
| 104 | cancer centers, hospitals, and patient groups, and shall be |
| 105 | organized for the purpose of governing the affairs of the |
| 106 | council. |
| 107 | (b) The Florida Cancer Council may create not-for-profit |
| 108 | corporate subsidiaries to fulfill its mission. The council and |
| 109 | its subsidiaries are authorized to receive, hold, invest, and |
| 110 | administer property and any moneys acquired from private, local, |
| 111 | state, and federal sources, as well as technical and |
| 112 | professional income generated or derived from the mission- |
| 113 | related activities of the council. |
| 114 | (c) The affairs of the council shall consist of: |
| 115 | 1. Chairman of the Florida Dialogue on Cancer, who shall |
| 116 | serve as the chairman of the council; |
| 117 | 2. Secretary of the Department of Health or his or her |
| 118 | designee; |
| 119 | 3. Chief Executive Officer of the H. Lee Moffitt Cancer |
| 120 | Center or his or her designee; |
| 121 | 4. President of the University of Florida Shands Cancer |
| 122 | Center or his or her designee; |
| 123 | 5. Chief Executive Officer of the University of Miami |
| 124 | Sylvester Comprehensive Cancer Center or his or her designee; |
| 125 | 6. Chief Executive Officer of the Mayo Clinic, |
| 126 | Jacksonville or his or her designee; |
| 127 | 7. Chief Executive Officer of the American Cancer Society, |
| 128 | Florida Division or his or her designee; |
| 129 | 8. President of the American Cancer Society, Florida |
| 130 | Division Board of Directors or his or her designee; |
| 131 | 9. President of the Florida Society of Clinical Oncology |
| 132 | or his or her designee; |
| 133 | 10. President of the American College of Surgeons, Florida |
| 134 | Chapter, or his or her designee; |
| 135 | 11. Chief Executive Officer of Enterprise Florida, Inc., |
| 136 | or his or her designee; |
| 137 | 12. Five representatives from cancer programs approved by |
| 138 | the American College of Surgeons. Three shall be appointed by |
| 139 | the Governor, one shall be appointed by the Speaker of the House |
| 140 | of Representatives, and one shall be appointed by the President |
| 141 | of the Senate; |
| 142 | 13. One member of the House of Representatives, to be |
| 143 | appointed by the Speaker of the House of Representatives; and |
| 144 | 14. One member of the Senate, to be appointed by the |
| 145 | President of the Senate. |
| 146 | (d) Appointments made by the Speaker of the House of |
| 147 | Representatives and the President of the Senate pursuant to |
| 148 | paragraph (c) shall be for 2-year terms, concurrent with the |
| 149 | bienniums in which they serve as presiding officers. |
| 150 | (e) Appointments made by the Governor pursuant to |
| 151 | paragraph (c) shall be for 2-year terms, although the Governor |
| 152 | may reappoint directors. |
| 153 | (f) Members of the council or any subsidiaries shall serve |
| 154 | without compensation, and each organization represented on the |
| 155 | council shall cover the expenses of its representatives. |
| 156 | (3) The council shall issue an annual report to the Center |
| 157 | for Universal Research to Eradicate Disease, the Governor, the |
| 158 | Speaker of the House of Representatives, and the President of |
| 159 | the Senate by December 15 of each year, with policy and funding |
| 160 | recommendations regarding cancer research capacity in Florida |
| 161 | and related issues. |
| 162 | Section 11. Florida Cancer Council, mission and |
| 163 | duties.--The council, which shall work in concert with the |
| 164 | Florida Center for Universal Research to Eradicate Disease to |
| 165 | ensure that the goals of the center are advanced, shall endeavor |
| 166 | to dramatically improve cancer research and treatment in this |
| 167 | state through: |
| 168 | (1) Efforts to significantly expand cancer research |
| 169 | capacity in the state by: |
| 170 | (a) Identifying ways to attract new research talent and |
| 171 | attendant national grant producing researchers to Florida-based |
| 172 | cancer research facilities; |
| 173 | (b) Implementing a peer-reviewed, competitive process to |
| 174 | identify and fund the best proposals to expand cancer research |
| 175 | institutes in this state; |
| 176 | (c) Funding through available resources for those |
| 177 | proposals that demonstrate the greatest opportunity to attract |
| 178 | federal research grants and private financial support; |
| 179 | (d) Encouraging the employment of bioinformatics in order |
| 180 | to create a cancer informatics infrastructure that enhances |
| 181 | information and resource exchange and integration through |
| 182 | researchers working in diverse disciplines, to facilitate the |
| 183 | full spectrum of cancer investigations; |
| 184 | (e) Facilitating the technical coordination, business |
| 185 | development, and support of intellectual property as it relates |
| 186 | to the advancement of cancer research; and |
| 187 | (f) Aiding in other multidisciplinary research-support |
| 188 | activities as they inure to the advancement of cancer research. |
| 189 | (2) Efforts to improve both research and treatment through |
| 190 | greater participation in clinical trials networks by: |
| 191 | (a) Identifying ways to increase adult enrollment in |
| 192 | cancer clinical trials; |
| 193 | (b) Supporting public and private professional education |
| 194 | programs designed to increase the awareness and knowledge about |
| 195 | cancer clinical trials; |
| 196 | (c) Providing tools to cancer patients and community-based |
| 197 | oncologists to aid in the identification of cancer clinical |
| 198 | trials available in the state; and |
| 199 | (d) Creating opportunities for the state's academic cancer |
| 200 | centers to collaborate with community-based oncologists in |
| 201 | cancer clinical trials networks. |
| 202 | (3) Efforts to reduce the impact of cancer on disparate |
| 203 | groups by: |
| 204 | (a) Identifying those cancers that disproportionately |
| 205 | impact certain demographic groups; and |
| 206 | (b) Building collaborations designed to reduce health |
| 207 | disparities as they relate to cancer. |
| 208 | Section 12. The Florida Public Health Foundation, Inc.; |
| 209 | establishment; purpose; mission; duties; board of directors.-- |
| 210 | (1) The Florida Public Health Foundation, Inc., referred |
| 211 | to in this section as "the corporation," is established for the |
| 212 | purpose of disseminating breakthrough findings in biomedical |
| 213 | research and promoting health awareness in this state. |
| 214 | (2) The corporation's mission includes disseminating |
| 215 | information about innovative biomedical research and clinical |
| 216 | trials in this state as well as making Floridians and their |
| 217 | treatment providers aware of specified diseases and conditions |
| 218 | and available methods of preventing, diagnosing, treating, and |
| 219 | curing those diseases and conditions. |
| 220 | (3) The purpose and objective of the corporation shall be |
| 221 | to operate exclusively for charitable, scientific, and |
| 222 | educational purposes; to protect and improve the health and |
| 223 | well-being of Florida's people and environment through |
| 224 | partnerships committed to program innovation, education, applied |
| 225 | research, and policy development; and to engage in charitable |
| 226 | programs dedicated to improving the health of Floridians. |
| 227 | (4) The corporation shall be established as a not-for- |
| 228 | profit entity qualifying under section 501(c)(3) of the Internal |
| 229 | Revenue Code. The corporation may receive, hold, invest, and |
| 230 | administer property and any moneys acquired from private, local, |
| 231 | state, and federal sources, as well as technical and |
| 232 | professional income generated or derived from the mission- |
| 233 | related activities of the corporation. The corporation shall |
| 234 | have all of the powers conferred upon corporations organized |
| 235 | under chapter 617, Florida Statutes. |
| 236 | (5) The corporation's duties include procuring funds |
| 237 | necessary for accomplishing the purpose and mission of the |
| 238 | corporation. The corporation shall strive to complement, |
| 239 | supplement, and enhance the missions of the various |
| 240 | organizations, entities, and departments represented on its |
| 241 | board by serving as the lead corporation in the state for |
| 242 | promoting public health awareness. |
| 243 | (6) The affairs of the corporation shall be managed by an |
| 244 | executive director appointed by a board of directors consisting |
| 245 | of: |
| 246 | (a) The Secretary of Health or his or her designee. |
| 247 | (b) A former member of the Senate appointed by the |
| 248 | President of the Senate. |
| 249 | (c) A former member of the House of Representatives |
| 250 | appointed by the Speaker of the House of Representatives. |
| 251 | (d) A representative of the American Heart Association. |
| 252 | (e) A representative of the American Cancer Society, |
| 253 | Florida Division, Inc. |
| 254 | (f) A representative of the American Lung Association of |
| 255 | Florida. |
| 256 | (g) A representative of the American Diabetes Association, |
| 257 | South Coastal Region. |
| 258 | (h) A representative of the Alzheimer's Association. |
| 259 | (i) A representative of the Epilepsy Foundation. |
| 260 | (j) A representative of the National Parkinson Foundation. |
| 261 | (k) A representative of the March of Dimes, Florida |
| 262 | Chapter. |
| 263 | (l) A representative of the Arthritis Foundation, Florida |
| 264 | Chapter. |
| 265 | (m) A representative of the American Liver Foundation. |
| 266 | (n) A representative of the Florida Council for Behavioral |
| 267 | Healthcare, Inc. |
| 268 | (o) A representative of the Florida Alcohol and Drug Abuse |
| 269 | Association. |
| 270 | (p) A representative of Pharmaceutical Research and |
| 271 | Manufacturers of America. |
| 272 | (q) A representative of the Florida Public Health |
| 273 | Association. |
| 274 | (r) A representative of the Florida Association of County |
| 275 | Health Officers. |
| 276 | (s) A public health academician selected by the State |
| 277 | Health Officer. |
| 278 | (t) A representative of the Florida Academy of Family |
| 279 | Physicians. |
| 280 | (u) Three consumers who have demonstrated an interest in |
| 281 | protecting the public health appointed by the Florida Public |
| 282 | Health Association. |
| 283 | (7) Members of the board of directors shall serve for 2- |
| 284 | year terms and shall serve without compensation. Each |
| 285 | organization represented on the board of directors shall cover |
| 286 | the expenses of its representative. |
| 287 | (8) The corporation, in consultation with the Department |
| 288 | of Health and the Florida Center for Universal Research to |
| 289 | Eradicate Disease, shall facilitate communication between |
| 290 | biomedical researchers and health care providers each month |
| 291 | according to the health awareness schedule established by the |
| 292 | Florida Public Health Foundation, Inc., in order to ensure |
| 293 | ongoing dialogue between researchers, treatment providers, and |
| 294 | the department. |
| 295 | (9) The corporation and the Department of Health shall |
| 296 | enter into partnerships with providers of continuing education |
| 297 | for health care practitioners, including, but not limited to, |
| 298 | hospitals and state and local medical organizations, to ensure |
| 299 | that practitioners are aware of the most recent and complete |
| 300 | diagnostic and treatment tools. |
| 301 | (10) The corporation shall provide an annual report |
| 302 | concerning its activities and finances to the Florida Center for |
| 303 | Universal Research to Eradicate Disease and shall provide copies |
| 304 | of the annual report to the Governor, the President of the |
| 305 | Senate, and the Speaker of the House of Representatives. |
| 306 | Section 13. Health awareness campaigns.-- |
| 307 | (1) The Florida Public Health Foundation, Inc., in |
| 308 | consultation with the Department of Health, shall coordinate |
| 309 | monthly health awareness campaigns with national, state, and |
| 310 | local health care organizations and government entities |
| 311 | targeting a wide range of the public, including: parents; |
| 312 | teachers and other school employees; students in 4th through |
| 313 | 12th grades, colleges, and universities; state agency employees; |
| 314 | county and local government employees; patients of county health |
| 315 | departments; Medicaid recipients; health care professionals and |
| 316 | providers; and the public in general. |
| 317 | (2) The awareness campaigns shall include the provision of |
| 318 | educational information about preventing, detecting, treating, |
| 319 | and curing the following diseases or conditions. Additional |
| 320 | diseases and conditions that impact the public health may be |
| 321 | added by the board of directors of the Florida Public Health |
| 322 | Foundation, Inc.; however, each of the following diseases or |
| 323 | conditions must be included in an awareness campaign during at |
| 324 | least one month in any 24-month period: |
| 325 | (a) Cancer, including breast, prostate, cervical, ovarian, |
| 326 | colorectal, and skin cancer and leukemia. |
| 327 | (b) Heart disease. |
| 328 | (c) Stroke. |
| 329 | (d) Lung disease, including asthma and smoking-relating |
| 330 | disease. |
| 331 | (e) Neurological disorders and disease, including |
| 332 | Alzheimer's disease, Parkinson's disease, and epilepsy. |
| 333 | (f) Gastrointestinal disease. |
| 334 | (g) Kidney disease. |
| 335 | (h) Diabetes. |
| 336 | (i) Liver disease. |
| 337 | (j) Autoimmune disorders. |
| 338 | (k) Birth defects and prenatal care. |
| 339 | (l) Obesity and malnutrition. |
| 340 | (m) Sexually transmissible disease. |
| 341 | (n) Hepatitis A, hepatitis B, and hepatitis C. |
| 342 | (o) Arthritis. |
| 343 | (p) Vaccine-preventable diseases. |
| 344 | (q) Infectious diseases, including HIV/AIDS. |
| 345 | (r) Substance abuse. |
| 346 | (s) Mental illness. |
| 347 | (t) Lupus. |
| 348 | (u) Osteoporosis. |
| 349 | (3) The health awareness campaigns shall be funded by the |
| 350 | Florida Public Health Foundation, Inc., and the Department of |
| 351 | Health to the extent that funds are available from public and |
| 352 | private sources. |
| 353 | (4) Health awareness information shall be disseminated |
| 354 | through all available methods, including print, audio, visual, |
| 355 | and electronic media. |
| 356 | Section 14. Prostate Cancer Awareness Program.-- |
| 357 | (1) To the extent that funds are specifically made |
| 358 | available for this purpose, the Prostate Cancer Awareness |
| 359 | Program is established within the Department of Health. The |
| 360 | purpose of this program is to implement the recommendations of |
| 361 | January 2000 of the Florida Prostate Cancer Task Force to |
| 362 | provide for statewide outreach and health education activities |
| 363 | to ensure that men are aware of and appropriately seek medical |
| 364 | counseling for prostate cancer as an early-detection health care |
| 365 | measure. |
| 366 | (2) For purposes of implementing the program, the |
| 367 | Department of Health and the Florida Public Health Foundation, |
| 368 | Inc., may: |
| 369 | (a) Conduct activities directly or enter into a contract |
| 370 | with a qualified nonprofit community education entity. |
| 371 | (b) Seek any available gifts, grants, or funds from the |
| 372 | state, the Federal Government, philanthropic foundations, and |
| 373 | industry or business groups. |
| 374 | (3) A prostate cancer advisory committee is created to |
| 375 | advise and assist the Department of Health and the Florida |
| 376 | Public Health Foundation, Inc., in implementing the program. |
| 377 | (a) The Secretary of Health shall appoint the advisory |
| 378 | committee members, who shall consist of: |
| 379 | 1. Three persons from prostate cancer survivor groups or |
| 380 | cancer-related advocacy groups. |
| 381 | 2. Three persons who are scientists or clinicians from |
| 382 | public universities or research organizations. |
| 383 | 3. Three persons who are engaged in the practice of a |
| 384 | cancer-related medical specialty from health organizations |
| 385 | committed to cancer research and control. |
| 386 | (b) Members shall serve without compensation but are |
| 387 | entitled to reimbursement, pursuant to section 112.061, Florida |
| 388 | Statutes, for per diem and travel expenses incurred in the |
| 389 | performance of their official duties. |
| 390 | (4) The program shall coordinate its efforts with those of |
| 391 | the Florida Public Health Foundation, Inc. |
| 392 | Section 15. Cervical Cancer Elimination Task Force.-- |
| 393 | (1) Effective July 1, 2004, the Cervical Cancer |
| 394 | Elimination Task Force is established for the purpose of |
| 395 | recommending strategies and actions to reduce the costs and |
| 396 | burdens of cervical cancer in Florida. The task force shall |
| 397 | present interim reports to the Florida Public Health Foundation, |
| 398 | Inc., the Florida Cancer Council, the Center for |
| 399 |
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| 400 | ================ T I T L E A M E N D M E N T ============= |
| 401 | Remove line(s) 62 and insert: |
| 402 | markers; creating the Florida Cancer Council; |