| 1 | The Judiciary Committee recommends the following: | 
| 2 | 
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| 3 | Council/Committee Substitute | 
| 4 | Remove the entire bill and insert: | 
| 5 | A bill to be entitled | 
| 6 | An act relating to artificially provided sustenance and | 
| 7 | hydration; amending ss. 765.401 and 765.404, F.S.; | 
| 8 | excluding the withholding or withdrawing of artificially | 
| 9 | provided sustenance or hydration from certain authority to | 
| 10 | make health care decisions; creating s. 765.405, F.S.; | 
| 11 | prohibiting the withholding or withdrawing of artificially | 
| 12 | provided sustenance or hydration from a person in a | 
| 13 | persistent vegetative state in specific circumstances; | 
| 14 | providing conditions under which the prohibition does not | 
| 15 | apply; requiring consultation with an in-house or outside | 
| 16 | medical ethics committee under certain conditions; | 
| 17 | providing that certain individuals and facilities are not | 
| 18 | liable for decisions relating to the withholding or | 
| 19 | withdrawing of artificially provided sustenance or | 
| 20 | hydration; authorizing interested persons to petition the | 
| 21 | court to prevent the withholding or withdrawing of | 
| 22 | artificially provided sustenance or hydration based upon | 
| 23 | the prohibition; specifying that the act is remedial; | 
| 24 | providing for application of the act; providing an | 
| 25 | effective date. | 
| 26 | 
 | 
| 27 | WHEREAS, the Legislature fully recognizes, respects, and | 
| 28 | preserves the right of a person to express his or her health | 
| 29 | care decisions through means such as advance directives, living | 
| 30 | wills, and designations of health care surrogates, and | 
| 31 | WHEREAS, withholding or withdrawing artificially provided | 
| 32 | sustenance or hydration necessary to sustain life represents an | 
| 33 | action having the ultimate and profound consequence of death, | 
| 34 | and | 
| 35 | WHEREAS, a person in a persistent vegetative state is, at | 
| 36 | that time, unable to express his or her decision regarding | 
| 37 | withholding or withdrawing artificially provided sustenance or | 
| 38 | hydration, and | 
| 39 | WHEREAS, there are medically ethical reasons to withhold or | 
| 40 | withdraw artificially provided sustenance or hydration necessary | 
| 41 | to sustain life, and | 
| 42 | WHEREAS, the state has a compelling interest in providing | 
| 43 | standards and procedural safeguards relating to withholding or | 
| 44 | withdrawing artificially provided sustenance or hydration for a | 
| 45 | person who is in a persistent vegetative state and whose | 
| 46 | decisions are not expressed, NOW, THEREFORE, | 
| 47 | 
 | 
| 48 | Be It Enacted by the Legislature of the State of Florida: | 
| 49 | 
 | 
| 50 | Section 1.  Subsections (1), (2), and (3) of section | 
| 51 | 765.401, Florida Statutes, are amended to read: | 
| 52 | 765.401  The proxy.-- | 
| 53 | (1)  If an incapacitated or developmentally disabled | 
| 54 | patient has not executed an advance directive, or designated a | 
| 55 | surrogate to execute an advance directive, or the designated or | 
| 56 | alternate surrogate is no longer available to make health care | 
| 57 | decisions, health care decisions, other than the decision to | 
| 58 | withhold or withdraw artificially provided sustenance or | 
| 59 | hydration for a person in a persistent vegetative state, may be | 
| 60 | made for the patient by any of the following individuals, in the | 
| 61 | following order of priority, if no individual in a prior class | 
| 62 | is reasonably available, willing, or competent to act: | 
| 63 | (a)  The judicially appointed guardian of the patient or | 
| 64 | the guardian advocate of the person having a developmental | 
| 65 | disability as defined in s. 393.063, who has been authorized to | 
| 66 | consent to medical treatment, if such guardian has previously | 
| 67 | been appointed; however, this paragraph shall not be construed | 
| 68 | to require such appointment before a treatment decision can be | 
| 69 | made under this subsection; | 
| 70 | (b)  The patient's spouse; | 
| 71 | (c)  An adult child of the patient, or if the patient has | 
| 72 | more than one adult child, a majority of the adult children who | 
| 73 | are reasonably available for consultation; | 
| 74 | (d)  A parent of the patient; | 
| 75 | (e)  The adult sibling of the patient or, if the patient | 
| 76 | has more than one sibling, a majority of the adult siblings who | 
| 77 | are reasonably available for consultation; | 
| 78 | (f)  An adult relative of the patient who has exhibited | 
| 79 | special care and concern for the patient and who has maintained | 
| 80 | regular contact with the patient and who is familiar with the | 
| 81 | patient's activities, health, and religious or moral beliefs; or | 
| 82 | (g)  A close friend of the patient; or . | 
| 83 | (h)  A clinical social worker licensed pursuant to chapter | 
| 84 | 491, or who is a graduate of a court-approved guardianship | 
| 85 | program. Such a proxy must be selected by the provider's | 
| 86 | bioethics committee and must not be employed by the provider. If | 
| 87 | the provider does not have a bioethics committee, then such a | 
| 88 | proxy may be chosen through an arrangement with the bioethics | 
| 89 | committee of another provider. The proxy will be notified that, | 
| 90 | upon request, the provider shall make available a second | 
| 91 | physician, not involved in the patient's care to assist the | 
| 92 | proxy in evaluating treatment. Decisions to withhold or withdraw | 
| 93 | life-prolonging procedures will be reviewed by the facility's | 
| 94 | bioethics committee. Documentation of efforts to locate proxies | 
| 95 | from prior classes must be recorded in the patient record. | 
| 96 | (2)  Any health care decision made under this part must be | 
| 97 | based on the proxy's informed consent and on the decision the | 
| 98 | proxy reasonably believes the patient would have made under the | 
| 99 | circumstances. If there is no indication of what the patient | 
| 100 | would have chosen, the proxy may consider the patient's best | 
| 101 | interest in deciding that proposed treatments, other than | 
| 102 | artificially provided sustenance or hydration for a person in a | 
| 103 | persistent vegetative state, are to be withheld or that | 
| 104 | treatments currently in effect are to be withdrawn. | 
| 105 | (3)  Before exercising the incapacitated patient's rights | 
| 106 | to select or decline health care, the proxy must comply with the | 
| 107 | provisions of ss. 765.205 and 765.305, except that a proxy's | 
| 108 | decision to withhold or withdraw life-prolonging procedures, | 
| 109 | other than artificially provided sustenance or hydration for a | 
| 110 | person in a persistent vegetative state, must be supported by | 
| 111 | clear and convincing evidence that the decision would have been | 
| 112 | the one the patient would have chosen had the patient been | 
| 113 | competent or, if there is no indication of what the patient | 
| 114 | would have chosen, that the decision is in the patient's best | 
| 115 | interest. | 
| 116 | Section 2.  Section 765.404, Florida Statutes, is amended | 
| 117 | to read: | 
| 118 | 765.404  Persistent vegetative state.--For persons in a | 
| 119 | persistent vegetative state, as determined by the attending | 
| 120 | physician in accordance with currently accepted medical | 
| 121 | standards, who have no advance directive and for whom there is | 
| 122 | no evidence indicating what the person would have wanted under | 
| 123 | such conditions, and for whom, after a reasonably diligent | 
| 124 | inquiry, no family or friends are available or willing to serve | 
| 125 | as a proxy to make health care decisions for them, life- | 
| 126 | prolonging procedures, other than artificially provided | 
| 127 | sustenance or hydration, may be withheld or withdrawn under the | 
| 128 | following conditions: | 
| 129 | (1)  The person has a judicially appointed guardian | 
| 130 | representing his or her best interest with authority to consent | 
| 131 | to medical treatment; and | 
| 132 | (2)  The guardian and the person's attending physician, in | 
| 133 | consultation with the medical ethics committee of the facility | 
| 134 | where the patient is located, conclude that the condition is | 
| 135 | permanent and that there is no reasonable medical probability | 
| 136 | for recovery and that withholding or withdrawing life-prolonging | 
| 137 | procedures, other than artificially provided sustenance or | 
| 138 | hydration, is in the best interest of the patient. If there is | 
| 139 | no medical ethics committee at the facility, the facility must | 
| 140 | have an arrangement with the medical ethics committee of another | 
| 141 | facility or with a community-based ethics committee approved by | 
| 142 | the Florida Bio-ethics Network. The ethics committee shall | 
| 143 | review the case with the guardian, in consultation with the | 
| 144 | person's attending physician, to determine whether the condition | 
| 145 | is permanent and there is no reasonable medical probability for | 
| 146 | recovery. The individual committee members and the facility | 
| 147 | associated with an ethics committee shall not be held liable in | 
| 148 | any civil action related to the performance of any duties | 
| 149 | required in this subsection. | 
| 150 | Section 3.  Section 765.405, Florida Statutes, is created | 
| 151 | to read: | 
| 152 | 765.405  Prohibition against withholding or withdrawing | 
| 153 | artificially provided sustenance or hydration in specific | 
| 154 | circumstances.-- | 
| 155 | (1)  Artificially provided sustenance or hydration shall | 
| 156 | not be withheld or withdrawn from a person in a persistent | 
| 157 | vegetative state, except as provided in subsection (2). | 
| 158 | (2)  The prohibition in subsection (1) does not apply under | 
| 159 | the conditions prescribed in paragraph (a), paragraph (b), | 
| 160 | paragraph (c), or paragraph (d). | 
| 161 | (a)  A written advance directive, written living will, or | 
| 162 | written designation of a health care surrogate prepared in | 
| 163 | accordance with s. 765.202 authorizes withholding or withdrawing | 
| 164 | life-prolonging procedures, as defined in s. 765.101. | 
| 165 | (b)  Clear and convincing evidence exists that the person, | 
| 166 | while competent and prior to entering into a persistent | 
| 167 | vegetative state, expressly directed or instructed the | 
| 168 | withholding or withdrawing of artificially provided sustenance | 
| 169 | or hydration. For purposes of this section, this paragraph does | 
| 170 | not authorize the application of substituted judgment. | 
| 171 | (c)  In the reasonable medical judgment of the person's | 
| 172 | attending physician and a second consulting physician, and in | 
| 173 | consultation with the medical ethics committee of the facility | 
| 174 | where the person is located, maintenance of artificially | 
| 175 | provided sustenance or hydration: | 
| 176 | 1.  Is not medically possible; | 
| 177 | 2.  Would hasten death; | 
| 178 | 3.  Would cause severe, intractable, or significant long- | 
| 179 | lasting pain to the person; or | 
| 180 | 4.  Would not contribute to sustaining the person's life or | 
| 181 | providing comfort to the person. | 
| 182 | (d)  In the reasonable medical judgment of the person's | 
| 183 | attending physician and a second consulting physician, and in | 
| 184 | consultation with the medical ethics committee of the facility | 
| 185 | where the person is located: | 
| 186 | 1.  Death is imminent; | 
| 187 | 2.  Even with artificially provided sustenance or | 
| 188 | hydration, the person will die within a reasonably short period | 
| 189 | of time due to a terminal illness or injury; and | 
| 190 | 3.  The purpose of withholding or withdrawing artificially | 
| 191 | provided sustenance or hydration is not to cause death by | 
| 192 | starvation or dehydration. | 
| 193 | (3)  For purposes of making the determination in paragraph | 
| 194 | (2)(c) or paragraph (2)(d), if there is no medical ethics | 
| 195 | committee at the facility, the facility must have an arrangement | 
| 196 | with the medical ethics committee of another facility or with a | 
| 197 | community-based ethics committee approved by the Florida Bio- | 
| 198 | ethics Network. The individual committee members and the | 
| 199 | facility associated with an ethics committee shall not be held | 
| 200 | liable in any civil action related to the performance of any | 
| 201 | duties required in paragraph (2)(c) or paragraph (2)(d). | 
| 202 | (4)  Any interested person may petition a court of | 
| 203 | competent jurisdiction at any time, based upon the prohibition | 
| 204 | in subsection (1), to prevent the withholding or withdrawing of | 
| 205 | artificially provided sustenance or hydration. | 
| 206 | Section 4.  The provisions of this act are remedial and | 
| 207 | apply to every living person on the effective date of this act. | 
| 208 | Specifically, it is the intent of the Legislature and the policy | 
| 209 | of this state to apply the provisions of this act to all | 
| 210 | situations in which a person is in a persistent vegetative state | 
| 211 | on or after the effective date of this act. | 
| 212 | Section 5.  This act shall take effect upon becoming a law. |