| 1 | A bill to be entitled |
| 2 | An act relating to artificially provided sustenance and |
| 3 | hydration; amending ss. 765.401 and 765.404, F.S.; |
| 4 | excluding the withholding or withdrawing of artificially |
| 5 | provided sustenance or hydration from certain authority to |
| 6 | make health care decisions; creating s. 765.405, F.S.; |
| 7 | prohibiting the withholding or withdrawing of artificially |
| 8 | provided sustenance or hydration from a person in a |
| 9 | persistent vegetative state in specific circumstances; |
| 10 | providing conditions under which the prohibition does not |
| 11 | apply; requiring consultation with an in-house or outside |
| 12 | medical ethics committee under certain conditions; |
| 13 | providing that certain individuals and facilities are not |
| 14 | liable for decisions relating to the withholding or |
| 15 | withdrawing of artificially provided sustenance or |
| 16 | hydration; authorizing certain interested persons to |
| 17 | petition for enforcement of the section; providing for |
| 18 | application of the act; providing an effective date. |
| 19 |
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| 20 | WHEREAS, the Legislature fully recognizes, respects, and |
| 21 | preserves the right of a person to express his or her health |
| 22 | care decisions through means such as advance directives, living |
| 23 | wills, and designations of health care surrogates, and |
| 24 | WHEREAS, withholding or withdrawing artificially provided |
| 25 | sustenance or hydration necessary to sustain life represents an |
| 26 | action having the ultimate and profound consequence of death, |
| 27 | and |
| 28 | WHEREAS, a person in a persistent vegetative state is, at |
| 29 | that time, unable to express his or her decision regarding |
| 30 | withholding or withdrawing artificially provided sustenance or |
| 31 | hydration, and |
| 32 | WHEREAS, there are medically ethical reasons to withhold or |
| 33 | withdraw artificially provided sustenance or hydration necessary |
| 34 | to sustain life, and |
| 35 | WHEREAS, the state has a compelling interest in providing |
| 36 | standards and procedural safeguards relating to withholding or |
| 37 | withdrawing artificially provided sustenance or hydration for a |
| 38 | person who is in a persistent vegetative state and whose |
| 39 | decisions are not expressed, NOW, THEREFORE, |
| 40 |
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| 41 | Be It Enacted by the Legislature of the State of Florida: |
| 42 |
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| 43 | Section 1. Subsections (1), (2), and (3) of section |
| 44 | 765.401, Florida Statutes, are amended to read: |
| 45 | 765.401 The proxy.-- |
| 46 | (1) If an incapacitated or developmentally disabled |
| 47 | patient has not executed an advance directive, or designated a |
| 48 | surrogate to execute an advance directive, or the designated or |
| 49 | alternate surrogate is no longer available to make health care |
| 50 | decisions, health care decisions, other than the decision to |
| 51 | withhold or withdraw artificially provided sustenance or |
| 52 | hydration for a person in a persistent vegetative state, may be |
| 53 | made for the patient by any of the following individuals, in the |
| 54 | following order of priority, if no individual in a prior class |
| 55 | is reasonably available, willing, or competent to act: |
| 56 | (a) The judicially appointed guardian of the patient or |
| 57 | the guardian advocate of the person having a developmental |
| 58 | disability as defined in s. 393.063, who has been authorized to |
| 59 | consent to medical treatment, if such guardian has previously |
| 60 | been appointed; however, this paragraph shall not be construed |
| 61 | to require such appointment before a treatment decision can be |
| 62 | made under this subsection; |
| 63 | (b) The patient's spouse; |
| 64 | (c) An adult child of the patient, or if the patient has |
| 65 | more than one adult child, a majority of the adult children who |
| 66 | are reasonably available for consultation; |
| 67 | (d) A parent of the patient; |
| 68 | (e) The adult sibling of the patient or, if the patient |
| 69 | has more than one sibling, a majority of the adult siblings who |
| 70 | are reasonably available for consultation; |
| 71 | (f) An adult relative of the patient who has exhibited |
| 72 | special care and concern for the patient and who has maintained |
| 73 | regular contact with the patient and who is familiar with the |
| 74 | patient's activities, health, and religious or moral beliefs; or |
| 75 | (g) A close friend of the patient; or. |
| 76 | (h) A clinical social worker licensed pursuant to chapter |
| 77 | 491, or who is a graduate of a court-approved guardianship |
| 78 | program. Such a proxy must be selected by the provider's |
| 79 | bioethics committee and must not be employed by the provider. If |
| 80 | the provider does not have a bioethics committee, then such a |
| 81 | proxy may be chosen through an arrangement with the bioethics |
| 82 | committee of another provider. The proxy will be notified that, |
| 83 | upon request, the provider shall make available a second |
| 84 | physician, not involved in the patient's care to assist the |
| 85 | proxy in evaluating treatment. Decisions to withhold or withdraw |
| 86 | life-prolonging procedures will be reviewed by the facility's |
| 87 | bioethics committee. Documentation of efforts to locate proxies |
| 88 | from prior classes must be recorded in the patient record. |
| 89 | (2) Any health care decision made under this part must be |
| 90 | based on the proxy's informed consent and on the decision the |
| 91 | proxy reasonably believes the patient would have made under the |
| 92 | circumstances. If there is no indication of what the patient |
| 93 | would have chosen, the proxy may consider the patient's best |
| 94 | interest in deciding that proposed treatments, other than |
| 95 | artificially provided sustenance or hydration for a person in a |
| 96 | persistent vegetative state, are to be withheld or that |
| 97 | treatments currently in effect are to be withdrawn. |
| 98 | (3) Before exercising the incapacitated patient's rights |
| 99 | to select or decline health care, the proxy must comply with the |
| 100 | provisions of ss. 765.205 and 765.305, except that a proxy's |
| 101 | decision to withhold or withdraw life-prolonging procedures, |
| 102 | other than artificially provided sustenance or hydration for a |
| 103 | person in a persistent vegetative state, must be supported by |
| 104 | clear and convincing evidence that the decision would have been |
| 105 | the one the patient would have chosen had the patient been |
| 106 | competent or, if there is no indication of what the patient |
| 107 | would have chosen, that the decision is in the patient's best |
| 108 | interest. |
| 109 | Section 2. Section 765.404, Florida Statutes, is amended |
| 110 | to read: |
| 111 | 765.404 Persistent vegetative state.--For persons in a |
| 112 | persistent vegetative state, as determined by the attending |
| 113 | physician in accordance with currently accepted medical |
| 114 | standards, who have no advance directive and for whom there is |
| 115 | no evidence indicating what the person would have wanted under |
| 116 | such conditions, and for whom, after a reasonably diligent |
| 117 | inquiry, no family or friends are available or willing to serve |
| 118 | as a proxy to make health care decisions for them, life- |
| 119 | prolonging procedures, other than artificially provided |
| 120 | sustenance or hydration, may be withheld or withdrawn under the |
| 121 | following conditions: |
| 122 | (1) The person has a judicially appointed guardian |
| 123 | representing his or her best interest with authority to consent |
| 124 | to medical treatment; and |
| 125 | (2) The guardian and the person's attending physician, in |
| 126 | consultation with the medical ethics committee of the facility |
| 127 | where the patient is located, conclude that the condition is |
| 128 | permanent and that there is no reasonable medical probability |
| 129 | for recovery and that withholding or withdrawing life-prolonging |
| 130 | procedures, other than artificially provided sustenance or |
| 131 | hydration, is in the best interest of the patient. If there is |
| 132 | no medical ethics committee at the facility, the facility must |
| 133 | have an arrangement with the medical ethics committee of another |
| 134 | facility or with a community-based ethics committee approved by |
| 135 | the Florida Bio-ethics Network. The ethics committee shall |
| 136 | review the case with the guardian, in consultation with the |
| 137 | person's attending physician, to determine whether the condition |
| 138 | is permanent and there is no reasonable medical probability for |
| 139 | recovery. The individual committee members and the facility |
| 140 | associated with an ethics committee shall not be held liable in |
| 141 | any civil action related to the performance of any duties |
| 142 | required in this subsection. |
| 143 | Section 3. Section 765.405, Florida Statutes, is created |
| 144 | to read: |
| 145 | 765.405 Prohibition against withholding or withdrawing |
| 146 | artificially provided sustenance or hydration in specific |
| 147 | circumstances.-- |
| 148 | (1) Artificially provided sustenance or hydration shall |
| 149 | not be withheld or withdrawn from a person in a persistent |
| 150 | vegetative state, except as provided in subsection (2). |
| 151 | (2) The prohibition in subsection (1) does not apply under |
| 152 | the conditions prescribed in paragraph (a), paragraph (b), |
| 153 | paragraph (c), or paragraph (d). |
| 154 | (a) A written advance directive, written living will, or |
| 155 | written designation of a health care surrogate prepared in |
| 156 | accordance with s. 765.202 authorizes withholding or withdrawing |
| 157 | life-prolonging procedures, as defined in s. 765.101. |
| 158 | (b) Clear and convincing evidence exists that, while |
| 159 | competent and prior to entering into a persistent vegetative |
| 160 | state, the person, expressly and unequivocally, directed or |
| 161 | instructed the withholding or withdrawing of artificially |
| 162 | provided sustenance or hydration. For purposes of this section, |
| 163 | this paragraph does not authorize the application of substituted |
| 164 | judgment. |
| 165 | (c) In the reasonable medical judgment of the person's |
| 166 | attending physician and a second consulting physician, and in |
| 167 | consultation with the medical ethics committee of the facility |
| 168 | where the person is located, maintenance of artificially |
| 169 | provided sustenance or hydration: |
| 170 | 1. Is not medically possible; |
| 171 | 2. Would hasten death; |
| 172 | 3. Would cause severe, intractable, or significant long- |
| 173 | lasting pain to the person; or |
| 174 | 4. Would not contribute to sustaining the person's life or |
| 175 | providing comfort to the person. |
| 176 | (d) In the reasonable medical judgment of the person's |
| 177 | attending physician and a second consulting physician, and in |
| 178 | consultation with the medical ethics committee of the facility |
| 179 | where the person is located: |
| 180 | 1. Death is imminent; |
| 181 | 2. Even with artificially provided sustenance or |
| 182 | hydration, the person will die within a reasonably short period |
| 183 | of time due to a terminal illness or injury; and |
| 184 | 3. The purpose of withholding or withdrawing artificially |
| 185 | provided sustenance or hydration is not to cause death by |
| 186 | starvation or dehydration. |
| 187 | (3) For purposes of making the determination in paragraph |
| 188 | (2)(c) or paragraph (2)(d), if there is no medical ethics |
| 189 | committee at the facility, the facility must have an arrangement |
| 190 | with the medical ethics committee of another facility or with a |
| 191 | community-based ethics committee approved by the Florida Bio- |
| 192 | ethics Network. The individual committee members and the |
| 193 | facility associated with an ethics committee shall not be held |
| 194 | liable in any civil action related to the performance of any |
| 195 | duties required in paragraph (2)(c) or paragraph (2)(d). |
| 196 | (4) Any interested party who may reasonably be expected to |
| 197 | be directly affected by the decision to withhold or withdraw |
| 198 | artificially provided sustenance or hydration from a person in a |
| 199 | persistent vegetative state may petition for enforcement of this |
| 200 | section. |
| 201 | Section 4. The provisions of this act apply to every |
| 202 | living person on and after the effective date of this act. |
| 203 | Specifically, it is the intent of the Legislature and the policy |
| 204 | of this state to apply the provisions of this act to all |
| 205 | situations in which a person is in a persistent vegetative state |
| 206 | on or after the effective date of this act. |
| 207 | Section 5. This act shall take effect upon becoming a law. |