Florida Senate - 2009 CS for SB 1304 By the Committee on Higher Education; and Senator Joyner 589-03000-09 20091304c1 1 A bill to be entitled 2 An act relating to the Johnnie B. Byrd, Sr., 3 Alzheimer’s Center and Research Institute; amending s. 4 1004.445, F.S.; establishing the institute within the 5 University of South Florida; providing a mission for 6 the institute; creating a board of directors to 7 oversee the management and operation of the institute; 8 providing for the appointment and terms of service of 9 the members of the board of directors; providing for 10 the election of a chair of the board of directors; 11 providing for the duties of the board of directors; 12 authorizing the board of directors to create an 13 advisory council to the institute; providing that the 14 institute shall be administered by a chief executive 15 officer; providing for the duties of the chief 16 executive officer; requiring the chief executive 17 officer to actively seek grant moneys to fund research 18 at the institute; requiring the chief executive 19 officer to submit an annual report of the institute’s 20 expenditures and research; specifying the sources of 21 funding for the institute; requiring that any 22 appropriation to the institute be expended for certain 23 purposes; specifying certain information that is 24 exempt from public-records requirement; providing for 25 the transfer of all assets and records of the 26 institute to the university; providing an effective 27 date. 28 29 Be It Enacted by the Legislature of the State of Florida: 30 31 Section 1. Section 1004.445, Florida Statutes, is amended 32 to read: 33 (Substantial rewording of section. See 34 s. 1004.445, F.S., for present text.) 35 1004.445 Johnnie B. Byrd, Sr., Alzheimer’s Center and 36 Research Institute.— 37 (1) CREATION AND MISSION.—The Johnnie B. Byrd, Sr., 38 Alzheimer’s Center and Research Institute is established within 39 the University of South Florida. The institute has a statewide 40 mission to advance research, education, treatment, prevention, 41 and the early detection of Alzheimer’s disease, and is 42 responsible for distributing competitive grant funds for 43 Alzheimer’s disease research. 44 (2) BOARD OF DIRECTORS.—The board of directors for the 45 Johnnie B. Byrd, Sr., Alzheimer’s Center and Research Institute 46 is created to oversee the management and operation of the 47 institute. 48 (a) The board of directors shall consist of seven members 49 who shall serve at the pleasure of the entity that appoints 50 them. A board member’s term shall expire after 4 years, but the 51 member may be reappointed to a subsequent 4-year term. 52 1. The Governor, the President of the Senate, and the 53 Speaker of the House of Representatives shall each appoint one 54 person to serve on the board of directors. 55 2. The Board of Trustees of the University of South Florida 56 shall appoint four persons to serve on the board of directors. 57 Trustees are eligible for appointment to the board of directors. 58 3. The chair of the board of directors shall be elected by 59 a majority vote from among the membership of the board. 60 (b) The board of directors shall: 61 1. Approve the institute’s annual budget and audit of 62 expenditures. 63 2. Ensure that the institute’s funds are expended 64 exclusively to benefit the institute’s mission unless otherwise 65 authorized or directed by the Legislature. 66 3. Ensure that the institute adheres to all administrative 67 policies and procedures of the University of South Florida, 68 including, but not limited to, university policies for finance, 69 audit, personnel, property, and research administration. 70 4. Transmit a copy of the institute’s annual report to the 71 Governor, the President of the Senate, the Speaker of the House 72 of Representatives, the Board of Governors of the State 73 University System, and the Board of Trustees of the University 74 of South Florida. 75 (c) Members of the board of directors may not receive a 76 salary. 77 (3) ADVISORY COUNCIL.—The board of directors may organize 78 and appoint an advisory council to the institute. The duties of 79 the advisory council may include, but are not limited to, 80 providing advice and advocacy in: 81 (a) Meeting the institute’s mission; 82 (b) Engaging community leaders and other concerned members 83 of the public in supporting the institute’s mission; and 84 (c) Soliciting philanthropic support for the institute. 85 (4) CHIEF EXECUTIVE OFFICER.—The institute shall be 86 administered by a chief executive officer who shall be appointed 87 by and serve at the pleasure of the president of the University 88 of South Florida or the president’s designee. The chief 89 executive officer shall: 90 (a) Appoint university faculty and staff to carry out the 91 research, patient care, and educational activities of the 92 institute. 93 (b) Administer the daily operation of the institute, 94 including the use and assignment of space and equipment within 95 the institute’s facilities. 96 (c) Actively seek federal and private sources of grant 97 money and donations for the purpose of funding and conducting 98 research for Alzheimer’s disease at the institute. 99 (d) Prepare an annual report for the institute which 100 describes the expenditure of all of the institute’s funds and 101 provides information regarding research that has been conducted 102 or funded by the institute, including the expected and actual 103 results of the research. 104 (5) BUDGET.—The institute’s budget shall include the moneys 105 appropriated in the General Appropriations Act, donated, or 106 otherwise provided to the institute from private, local, state, 107 and federal sources, as well as technical and professional 108 income generated or derived from practice activities at the 109 institute. Any appropriation to the institute shall be expended 110 for the purposes specified in this section, including conducting 111 and supporting research and related clinical services, awarding 112 institutional grants and investigator-initiated research grants 113 to other persons within the state through a competitive process, 114 developing and operating integrated data projects, providing 115 assistance to the memory disorder clinics established in s. 116 430.502, and providing for the operation of the institute. 117 (6) PUBLIC-RECORDS EXEMPTION.—The following information is 118 confidential and exempt from s. 119.07(1) and s. 24, Art. I of 119 the State Constitution: 120 (a) Personal identifying information relating to clients of 121 programs created by or funded through the Johnnie B. Byrd, Sr., 122 Alzheimer’s Center and Research Institute which is held by the 123 institute, the University of South Florida, the Board of 124 Governors, or the State Board of Education. 125 (b) Patient medical or health records held by the 126 institute. 127 (c) Materials that relate to methods of manufacture or 128 production, potential trade secrets, potentially patentable 129 material, actual trade secrets as defined in s. 688.002, or 130 proprietary information received, generated, ascertained, or 131 discovered during the course of research conducted by the 132 institute and business transactions resulting from such 133 research. 134 (d) Personal identifying information of a donor or 135 prospective donor to the institute who wishes to remain 136 anonymous. 137 (e) Any information received by the institute from a person 138 from another state or nation or from the Federal Government 139 which is otherwise confidential and exempt under the laws of 140 that state or nation or under federal law. 141 142 Any governmental entity that demonstrates a need to access 143 information that is confidential and exempt in order to perform 144 its duties and responsibilities shall have access to such 145 information. 146 Section 2. On or before June 30, 2009, the board of 147 directors of the not-for-profit corporation created as an 148 instrumentality of the state pursuant to s. 1004.445, Florida 149 Statutes (2008), shall transfer all unexpended balances, 150 records, functions, facilities, and assets of the Johnnie B. 151 Byrd, Sr., Alzheimer’s Center and Research Institute to the 152 University of South Florida under the oversight of the board of 153 directors of the Johnnie B. Byrd, Sr., Alzheimer’s Center and 154 Research Institute created by section 1 of this act. 155 Section 3. This act shall take effect upon becoming a law.