1 | A bill to be entitled |
2 | An act relating to the Johnnie B. Byrd, Sr., Alzheimer's |
3 | Center and Research Institute; amending s. 1004.445, F.S.; |
4 | establishing the institute within the University of South |
5 | Florida; providing a mission for the institute; creating a |
6 | board of directors to oversee the management and operation |
7 | of the institute; providing for the appointment and terms |
8 | of service of the members of the board of directors; |
9 | providing for the election of a chair of the board of |
10 | directors; providing for the duties of the board of |
11 | directors; authorizing the board of directors to create an |
12 | advisory council to the institute; providing that the |
13 | institute shall be administered by a chief executive |
14 | officer; providing for the duties of the chief executive |
15 | officer; requiring the chief executive officer to actively |
16 | seek grant moneys to fund research at the institute; |
17 | requiring the chief executive officer to submit an annual |
18 | report of the institute's expenditures and research; |
19 | specifying the sources of funding for the institute; |
20 | requiring that any appropriation to the institute be |
21 | expended for certain purposes; specifying certain |
22 | information that is exempt from public records |
23 | requirements; providing for the transfer of certain assets |
24 | and records of the institute to the university; providing |
25 | an effective date. |
26 |
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27 | Be It Enacted by the Legislature of the State of Florida: |
28 |
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29 | Section 1. Section 1004.445, Florida Statutes, is amended |
30 | to read: |
31 | (Substantial rewording of section. See s. 1004.445, F.S., |
32 | for present text.) |
33 | 1004.445 Johnnie B. Byrd, Sr., Alzheimer's Center and |
34 | Research Institute.-- |
35 | (1) CREATION AND MISSION.--The Johnnie B. Byrd, Sr., |
36 | Alzheimer's Center and Research Institute is established within |
37 | the University of South Florida. The institute has a statewide |
38 | mission to advance research, education, treatment, prevention, |
39 | and the early detection of Alzheimer's disease and is |
40 | responsible for distributing competitive grant funds for |
41 | Alzheimer's disease research. |
42 | (2) BOARD OF DIRECTORS.--The board of directors for the |
43 | Johnnie B. Byrd, Sr., Alzheimer's Center and Research Institute |
44 | is created to oversee the management and operation of the |
45 | institute. |
46 | (a) The board of directors shall consist of seven members |
47 | who shall serve at the pleasure of the entity that appoints |
48 | them. A board member's term shall expire after 4 years, but the |
49 | member may be reappointed to a subsequent 4-year term. |
50 | 1. The Governor, the President of the Senate, and the |
51 | Speaker of the House of Representatives shall each appoint one |
52 | person to serve on the board of directors. |
53 | 2. The Board of Trustees of the University of South |
54 | Florida shall appoint four persons to serve on the board of |
55 | directors. Trustees are eligible for appointment to the board of |
56 | directors. |
57 | 3. The chair of the board of directors shall be elected by |
58 | a majority vote from among the membership of the board. |
59 | (b) The board of directors shall: |
60 | 1. Approve the institute's annual budget and audit of |
61 | expenditures. |
62 | 2. Ensure that the institute's funds are expended |
63 | exclusively to benefit the institute's mission unless otherwise |
64 | authorized or directed by the Legislature. |
65 | 3. Ensure that the institute adheres to all administrative |
66 | policies and procedures of the University of South Florida, |
67 | including, but not limited to, university policies for finance, |
68 | audit, personnel, property, and research administration. |
69 | 4. Transmit a copy of the institute's annual report to the |
70 | Governor, the President of the Senate, the Speaker of the House |
71 | of Representatives, the Board of Governors of the State |
72 | University System, and the Board of Trustees of the University |
73 | of South Florida. |
74 | (c) Members of the board of directors may not receive a |
75 | salary. |
76 | (3) ADVISORY COUNCIL.--The board of directors may organize |
77 | and appoint an advisory council to the institute. The duties of |
78 | the advisory council may include, but are not limited to, |
79 | providing advice and advocacy in: |
80 | (a) Meeting the institute's mission. |
81 | (b) Engaging community leaders and other concerned members |
82 | of the public in supporting the institute's mission. |
83 | (c) Soliciting philanthropic support for the institute. |
84 | (4) CHIEF EXECUTIVE OFFICER.--The institute shall be |
85 | administered by a chief executive officer who shall be appointed |
86 | by and serve at the pleasure of the president of the University |
87 | of South Florida or the president's designee. The chief |
88 | executive officer shall: |
89 | (a) Appoint university faculty and staff to carry out the |
90 | research, patient care, and educational activities of the |
91 | institute. |
92 | (b) Administer the daily operation of the institute, |
93 | including the use and assignment of space and equipment within |
94 | the institute's facilities. |
95 | (c) Actively seek federal and private sources of grant |
96 | money and donations for the purpose of funding and conducting |
97 | research for Alzheimer's disease at the institute. |
98 | (d) Prepare an annual report for the institute which |
99 | describes the expenditure of all of the institute's funds and |
100 | provides information regarding research that has been conducted |
101 | or funded by the institute, including the expected and actual |
102 | results of the research. |
103 | (5) BUDGET.--The institute's budget shall include the |
104 | moneys appropriated in the General Appropriations Act, donated, |
105 | or otherwise provided to the institute from private, local, |
106 | state, and federal sources, as well as technical and |
107 | professional income generated or derived from practice |
108 | activities at the institute. Any appropriation to the institute |
109 | shall be expended for the purposes specified in this section, |
110 | including conducting and supporting research and related |
111 | clinical services, awarding institutional grants and |
112 | investigator-initiated research grants to other persons within |
113 | the state through a competitive process, developing and |
114 | operating integrated data projects, providing assistance to the |
115 | memory disorder clinics established in s. 430.502, and providing |
116 | for the operation of the institute. |
117 | (6) PUBLIC RECORDS EXEMPTION.--The following information |
118 | is confidential and exempt from s. 119.07(1) and s. 24, Art. I |
119 | of the State Constitution: |
120 | (a) Personal identifying information relating to clients |
121 | of programs created by or funded through the Johnnie B. Byrd, |
122 | Sr., Alzheimer's Center and Research Institute which is held by |
123 | the institute, the University of South Florida, the Board of |
124 | Governors, or the State Board of Education. |
125 | (b) Patient medical or health records held by the |
126 | institute. |
127 | (c) Materials that relate to methods of manufacture or |
128 | production, potential trade secrets, potentially patentable |
129 | material, actual trade secrets as defined in s. 688.002, or |
130 | proprietary information received, generated, ascertained, or |
131 | discovered during the course of research conducted by the |
132 | institute and business transactions resulting from such |
133 | research. |
134 | (d) Personal identifying information of a donor or |
135 | prospective donor to the institute who wishes to remain |
136 | anonymous. |
137 | (e) Any information received by the institute from a |
138 | person from another state or nation or from the Federal |
139 | Government which is otherwise confidential and exempt under the |
140 | laws of that state or nation or under federal law. |
141 |
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142 | Any governmental entity that demonstrates a need to access |
143 | information that is confidential and exempt in order to perform |
144 | its duties and responsibilities shall have access to such |
145 | information. |
146 | Section 2. On or before June 30, 2009, the board of |
147 | directors of the not-for-profit corporation created as an |
148 | instrumentality of the state pursuant to s. 1004.445, Florida |
149 | Statutes 2008, shall transfer all unexpended balances, records, |
150 | functions, facilities, and assets of the institute to the |
151 | University of South Florida under the oversight of the board of |
152 | directors of the Johnnie B. Byrd, Sr., Alzheimer's Center and |
153 | Research Institute created by section 1 of this act. |
154 | Section 3. This act shall take effect upon becoming a law. |