Florida Senate - 2010                                    SB 1930
       
       
       
       By Senator Wise
       
       
       
       
       5-01542-10                                            20101930__
    1                        A bill to be entitled                      
    2         An act relating to health care transition programs and
    3         services for adolescents and young adults who have
    4         special health care needs; providing legislative
    5         intent; establishing an office within the Division of
    6         Children’s Medical Services Network in the Department
    7         of Health to implement a health care transition
    8         program for adolescents and young adults who have
    9         special health care needs; specifying duties of the
   10         office with respect to the oversight, implementation,
   11         and coordination of the program; requiring that the
   12         office provide technical assistance to communities,
   13         providers, and organizations; requiring the Department
   14         of Health, in partnership with the Agency for Health
   15         Care Administration, to identify options for
   16         addressing the compensation of health care providers
   17         and improving access to adult and specialty health
   18         care for adolescents and young adults who have special
   19         health care needs; requiring the department to enter
   20         into contracts, contingent upon appropriations, with
   21         local health and transition services programs;
   22         providing requirements for program structure and
   23         design; specifying the services that may be offered by
   24         local health and transition services programs;
   25         requiring that at least one health and transition
   26         services program be associated with each of the eight
   27         regions of the Children’s Medical Services Network;
   28         requiring an evaluation of the program; providing an
   29         effective date.
   30  
   31  Be It Enacted by the Legislature of the State of Florida:
   32  
   33         Section 1. Legislative intent; health care transition
   34  programs and services for adolescents and young adults who have
   35  special health care needs.
   36         (1) It is the intent of the Legislature to provide a
   37  strategic and comprehensive approach to the development and
   38  implementation of effective health care transition programs and
   39  services for adolescents and young adults who have special
   40  health care needs.
   41         (2) An office is established within the Division of
   42  Children’s Medical Services Network which shall be responsible
   43  for:
   44         (a)Overseeing and implementing the national maternal and
   45  child health goals, using existing state plans, in order to
   46  implement effective transition programs for adolescents and
   47  young adults who have special health care needs. As used in this
   48  section, the term “adolescents and young adults who have special
   49  health care needs” means individuals who are 12 through 26 years
   50  of age; who have chronic physical, developmental, behavioral, or
   51  emotional conditions; and who require health care or related
   52  services of a type or amount beyond that which is generally
   53  required by adolescents or young adults.
   54         (b)Developing a planning and implementation process and
   55  the necessary guides for use by community providers and
   56  organizations in developing coordinated systems of services for
   57  adolescents and young adults who have special health care needs.
   58  The coordinated system of services shall include different
   59  models that accommodate the geographic and cultural diversity in
   60  the state and that are adapted to the local needs of communities
   61  and to local health services delivery systems. Furthermore, the
   62  models shall promote the integration of health care transition
   63  services with transition programs in education, vocational
   64  rehabilitation, and independent living, and shall address the
   65  varying needs of subpopulations, such as students who are
   66  enrolled in postsecondary educational institutions and
   67  individuals in the child welfare or juvenile justice systems.
   68         (c)Developing and disseminating resource guides that
   69  outline the various public and private health care financing
   70  options, including commercial insurance, and the respective
   71  health care benefits.
   72         (d) Coordinating the program with training institutions,
   73  including medical centers, to identify and make available for
   74  health care providers existing training programs regarding the
   75  principles, objectives, and methods of successfully transferring
   76  adolescents and young adults who have special health care needs
   77  to adult health care providers.
   78         (e) Maintaining and updating web-based materials related to
   79  health care transition which can be used by adolescents and
   80  young adults who have special health care needs and their
   81  families, providers, and others involved in health care
   82  transition.
   83         (f) Collecting and disseminating information in specific
   84  clinical areas concerning evidenced-based practices and best
   85  practices for providing health care transition services for
   86  youth and young adults who have chronic special health care
   87  needs or disabilities.
   88         (g) Providing technical assistance to communities,
   89  providers, and organizations that are involved in the
   90  development and implementation of systems of services for
   91  adolescents and young adults who have special health care needs.
   92         (h) Developing and disseminating quality improvement and
   93  evaluation components for health care transition programs. The
   94  quality improvement and evaluation components must include a
   95  common or comparable set of performance measures for all
   96  entities that provide health care transition services for
   97  adolescents and young adults who have special health care needs.
   98         (3) The Department of Health shall work in partnership with
   99  the Agency for Health Care Administration to identify potential
  100  waiver or state plan options that address health care provider
  101  compensation strategies, including, but not limited to, co
  102  management, care plan development and oversight, provision of a
  103  medical home, and use of tele-health technology to improve
  104  access to adult and specialty health care for adolescents and
  105  young adults who have special health care needs.
  106         (4)The Department of Health shall work with the Office of
  107  Insurance Regulation to explore and recommend effective policies
  108  that address medical management and health care transition
  109  services for adolescents and young adults who have special
  110  health care needs.
  111         (5) The Department of Health may enter into contracts,
  112  contingent upon a specific appropriation provided in the General
  113  Appropriations Act for this purpose, with local health and
  114  transition services programs that meet the requirements of this
  115  section.
  116         (6) The program structure and design must be adapted to the
  117  needs of the local community and health services delivery
  118  system; however, the following elements shall be in place in
  119  order to ensure the success of a local health and transition
  120  services program:
  121         (a) A consultative partnership between adult and pediatric
  122  health care providers in a major medical health care
  123  organization or academic medical setting for the purpose of
  124  transferring adolescents and young adults to adult health care
  125  services.
  126         (b) Community-based health care services that are provided
  127  under agreements with major health care organizations or
  128  academic medical centers for the purpose of providing
  129  consultation concerning the management of special health care
  130  needs.
  131         (c) Community-based support organizations that can provide
  132  assistance with services such as supported living and
  133  employment, health insurance, and support services to maintain
  134  the young adult in the community.
  135         (d) A medical home that provides for coordinated and
  136  multidisciplinary care and focuses on engaging adult health care
  137  providers in the care and treatment of adolescents or young
  138  adults.
  139         (7) The following services may be offered by the local
  140  health and transition services program to individuals who are
  141  served in the local health and transition services program:
  142         (a) An assessment of health needs, education and vocational
  143  status and needs, and health insurance status.
  144         (b) In coordination with the educational system, community
  145  based organizations, and the vocational system, a plan for
  146  transition, which includes adult health care services,
  147  education, habilitative services, independent living services,
  148  adult employment, and health insurance.
  149         (c) Disease self-management programs.
  150         (8) There shall be at least one transition program
  151  associated with each one of the eight regions of the Children’s
  152  Medical Services Network, subject to the availability of funds.
  153         (9) The local health and transition services program shall
  154  be evaluated by an organization or university that has expertise
  155  and experience in evaluating health care programs. The
  156  evaluation must be formative and cumulative and must include
  157  program process and outcome measures, as well as client
  158  outcomes. The results of the evaluation may be used by the
  159  department to improve and develop other local health and
  160  transition services programs.
  161         Section 2. This act shall take effect July 1, 2010.