Florida Senate - 2011 SB 122 By Senator Bullard 39-00115-11 2011122__ 1 A bill to be entitled 2 An act relating to sudden unexpected infant death; 3 creating the “Stillbirth and SUID Education and 4 Awareness Act”; providing legislative findings; 5 defining terms; requiring the State Surgeon General to 6 implement a public health awareness and education 7 campaign in order to provide information that is 8 focused on decreasing the risk factors for sudden 9 unexpected infant death and sudden unexplained death 10 in childhood; requiring the State Surgeon General to 11 conduct a needs assessment of the availability of 12 personnel, training, technical assistance, and 13 resources for investigating and determining the causes 14 of sudden unexpected infant death and sudden 15 unexplained death in childhood; requiring the State 16 Surgeon General to develop guidelines for increasing 17 collaboration in the investigation of stillbirth, 18 sudden unexpected infant death, and sudden unexplained 19 death in childhood; specifying the duties of the State 20 Surgeon General related to maternal and child health 21 programs; requiring the State Surgeon General to 22 establish a task force to develop a research plan to 23 determine the causes of stillbirth, sudden unexpected 24 infant death, and sudden unexplained death in 25 childhood and how to prevent them; providing for the 26 membership of the task force; providing for 27 reimbursement of per diem and travel expenses; 28 requiring that the State Surgeon General submit a 29 report to the Governor, the President of the Senate, 30 and the Speaker of the House of Representatives by a 31 specified date; providing an effective date. 32 33 Be It Enacted by the Legislature of the State of Florida: 34 35 Section 1. (1) SHORT TITLE.—This section may be cited as 36 the “Stillbirth and SUID Education and Awareness Act.” 37 (2) LEGISLATIVE FINDINGS.— 38 (a) The Legislature finds that every year there are more 39 than 25,000 stillbirths in the United States. The common 40 diagnosable causes of stillbirth include genetic abnormalities, 41 umbilical cord accidents, infections, and placental problems. 42 Risk factors for stillbirth include maternal age, obesity, 43 smoking, diabetes, and hypertension. Because of advances in 44 medical care over the last 30 years, much more is known about 45 the causes of stillbirth. Still, the cause of death is never 46 identified in up to 50 percent of stillbirths. 47 (b) The rate of sudden infant death syndrome (SIDS) has 48 declined significantly since the early 1990s; however, research 49 has found that the decline in SIDS since 1999 has been offset by 50 an increase in sudden unexpected infant death (SUID). Many 51 sudden unexpected infant deaths are not investigated and, in 52 those that are investigated, cause-of-death data are not 53 consistently collected and reported. Inaccurate or inconsistent 54 classification of the cause and manner of death impedes 55 prevention efforts and complicates the ability to understand 56 related risk factors. The National Child Death Review Case 57 Reporting System collects comprehensive information on the risk 58 factors associated with SUID. As of March 2009, 29 of the 49 59 states conducting child death reviews were voluntarily 60 submitting data to this reporting system. 61 (3) DEFINITIONS.—As used in this section, the term: 62 (a) “Stillbirth” means an unintended, intrauterine fetal 63 death after a gestational age of not less than 20 completed 64 weeks. 65 (b) “Sudden infant death syndrome” or “SIDS” means the 66 sudden unexpected death of an infant younger than 1 year of age 67 which remains unexplained after a complete autopsy, death-scene 68 investigation, and review of the case history. The term includes 69 only those deaths for which, currently, there is no known cause 70 or cure. 71 (c) “Sudden unexpected infant death” or “SUID” means the 72 sudden death of an infant younger than 1 year of age which, when 73 first discovered, does not have an obvious cause. The term 74 includes those deaths that are later determined to be from 75 explained as well as unexplained causes. 76 (d) “Sudden unexplained death in childhood or “SUDC” means 77 the sudden death of a child older than 1 year of age which 78 remains unexplained after a thorough investigation, including a 79 review of the clinical history and circumstances of death and 80 performance of a complete autopsy, along with appropriate 81 ancillary testing. 82 (4) PUBLIC AWARENESS AND EDUCATION CAMPAIGN.— 83 (a) The State Surgeon General shall establish and implement 84 a culturally appropriate public health awareness and education 85 campaign to provide information that is focused on decreasing 86 the risk factors for sudden unexpected infant death and sudden 87 unexplained death in childhood, including educating individuals 88 on safe sleep environments, sleep positions, and reducing 89 exposure to tobacco smoke during pregnancy and after the child’s 90 birth. 91 (b) The campaign shall be designed to reduce health 92 disparities among racial and ethnic groups through focusing on 93 populations that have high rates of sudden unexpected infant 94 death and sudden unexplained death in childhood. 95 (c) When establishing and implementing the campaign, the 96 State Surgeon General shall consult with state and national 97 organizations that represent health care providers, including 98 nurses and physicians; parents; child care providers; children’s 99 advocacy and safety organizations; maternal and child health 100 programs; nutrition professionals who specialize in women, 101 infants, and children; and other individuals and groups 102 determined necessary by the State Surgeon General. 103 (5) EVALUATION OF STATE NEEDS.— 104 (a) The State Surgeon General shall conduct a needs 105 assessment of the availability in this state of personnel, 106 training, technical assistance, and resources for investigating 107 and determining the causes of sudden unexpected infant death and 108 sudden unexplained death in childhood and make recommendations 109 to increase collaboration in conducting investigations and 110 making determinations. 111 (b) The State Surgeon General, in consultation with 112 physicians, nurses, pathologists, geneticists, parents, and 113 others, shall develop guidelines for increasing the performance 114 of, and the collection of data from, postmortem stillbirth 115 evaluations, postmortem SUID evaluations, and postmorten SUDC 116 evaluations, including conducting and providing reimbursement 117 for autopsies, placental histopathlogy, and cytogentic testing. 118 The guidelines shall take into account culturally appropriate 119 issues related to postmortem stillbirth evaluations, postmortem 120 SUID evaluations, and postmorten SUDC evaluations. 121 (c) The State Surgeon General, acting in consultation with 122 health care providers, public health organizations, maternal and 123 child health programs, parents, and others, shall: 124 1.a. Develop behavioral surveys for women who experience 125 stillbirth, sudden unexpected infant death, or sudden 126 unexplained death in childhood using existing state-based 127 infrastructure for gathering pregnancy-related information; and 128 b. Increase the technical assistance provided to local 129 communities to enhance the capacity for improved investigation 130 of medical and social factors surrounding stillbirth, sudden 131 unexpected infant death, and sudden unexplained death in 132 childhood. 133 2. Directly or through cooperative agreements, develop and 134 conduct evidence-based public education and prevention programs 135 directed at reducing the overall occurrence of stillbirth, 136 sudden unexpected infant death, and sudden unexplained death in 137 childhood and addressing the disparities in such occurrences 138 among racial and ethnic groups. These efforts shall include: 139 a. Public education programs, services, and demonstrations 140 that are designed to increase general awareness of stillbirth, 141 sudden unexpected infant death, and sudden unexplained death in 142 childhood; and 143 b. The development of tools for educating health 144 professionals and women concerning the known risks factors for 145 stillbirth, sudden unexpected infant death, and sudden 146 unexplained death in childhood; the promotion of fetal-movement 147 awareness and taking proactive steps to monitor a baby’s 148 movement beginning at approximately 28 weeks into the pregnancy; 149 and the importance of early and regular prenatal care to monitor 150 the health and development of the fetus up to and during 151 delivery. 152 (d) By September 1, 2011, the State Surgeon General shall 153 establish a task force to develop a research plan to determine 154 the causes of stillbirth, sudden unexpected infant death, and 155 sudden unexplained death in childhood and how to prevent them. 156 The State Surgeon General shall appoint the task force, which 157 shall consist of 12 members, as follows: 158 1. Three persons who are pediatric health care providers. 159 2. Three persons who are scientists or clinicians and 160 selected from public universities or research organizations. 161 3. Three persons who are employed in maternal and child 162 health programs. 163 4. Three parents. 164 165 Members shall serve without compensation, but are entitled to 166 reimbursement pursuant to s. 112.061, Florida Statutes, for per 167 diem and travel expenses incurred in the performance of their 168 official duties. 169 (6) REPORT.—By October 1, 2013, the State Surgeon General 170 shall submit to the Governor, the President of the Senate, and 171 the Speaker of the House of Representatives a report describing 172 the progress made in implementing this section. 173 Section 2. This act shall take effect July 1, 2011.