Florida Senate - 2015 COMMITTEE AMENDMENT Bill No. SB 632 Ì541912ÅÎ541912 LEGISLATIVE ACTION Senate . House Comm: RCS . 03/23/2015 . . . . ————————————————————————————————————————————————————————————————— ————————————————————————————————————————————————————————————————— The Committee on Health Policy (Garcia) recommended the following: 1 Senate Amendment (with title amendment) 2 3 Delete everything after the enacting clause 4 and insert: 5 Section 1. Subsection (2) of section 383.14, Florida 6 Statutes, is amended to read: 7 383.14 Screening for metabolic disorders, other hereditary 8 and congenital disorders, and environmental risk factors.— 9 (2) RULES.—After consultation with the Genetics and Newborn 10 Screening Advisory Council, the department shall adopt and 11 enforce rules requiring that every newborn in this state shall, 12 before
prior tobecoming 1 week of age, be subjected to a test 13 for phenylketonuria and, at the appropriate age, be tested for 14 such other metabolic diseases and hereditary or congenital 15 disorders as the department may deem necessary from time to 16 time. The department shall expand statewide screening of 17 newborns to include screening for adrenoleukodystrophy as soon 18 as adrenoleukodystrophy is adopted for inclusion on the federal 19 Recommended Uniform Screening Panel. After consultation with the 20 Office of Early Learning, the department shall also adopt and 21 enforce rules requiring every newborn in this state to be 22 screened for environmental risk factors that place children and 23 their families at risk for increased morbidity, mortality, and 24 other negative outcomes. The department shall adopt such 25 additional rules as are found necessary for the administration 26 of this section and s. 383.145, including rules providing 27 definitions of terms, rules relating to the methods used and 28 time or times for testing as accepted medical practice 29 indicates, rules relating to charging and collecting fees for 30 the administration of the newborn screening program authorized 31 by this section, rules for processing requests and releasing 32 test and screening results, and rules requiring mandatory 33 reporting of the results of tests and screenings for these 34 conditions to the department. 35 Section 2. This act shall take effect July 1, 2015. 36 37 ================= T I T L E A M E N D M E N T ================ 38 And the title is amended as follows: 39 Delete everything before the enacting clause 40 and insert: 41 A bill to be entitled 42 An act relating to newborn adrenoleukodystrophy 43 screening; amending s. 383.14, F.S.; directing the 44 Department of Health to expand statewide screening of 45 newborns to include screening for adrenoleukodystrophy 46 when adopted for inclusion on the federal Recommended 47 Uniform Screening Panel; providing an effective date.