Florida Senate - 2015 CS for SB 632 By the Committee on Health Policy; and Senators Garcia and Soto 588-02732-15 2015632c1 1 A bill to be entitled 2 An act relating to newborn adrenoleukodystrophy 3 screening; amending s. 383.14, F.S.; directing the 4 Department of Health to expand statewide screening of 5 newborns to include screening for adrenoleukodystrophy 6 when adopted for inclusion on the federal Recommended 7 Uniform Screening Panel; providing an effective date. 8 9 Be It Enacted by the Legislature of the State of Florida: 10 11 Section 1. Subsection (2) of section 383.14, Florida 12 Statutes, is amended to read: 13 383.14 Screening for metabolic disorders, other hereditary 14 and congenital disorders, and environmental risk factors.— 15 (2) RULES.—After consultation with the Genetics and Newborn 16 Screening Advisory Council, the department shall adopt and 17 enforce rules requiring that every newborn in this state shall, 18 before
prior tobecoming 1 week of age, be subjected to a test 19 for phenylketonuria and, at the appropriate age, be tested for 20 such other metabolic diseases and hereditary or congenital 21 disorders as the department may deem necessary from time to 22 time. The department shall expand statewide screening of 23 newborns to include screening for adrenoleukodystrophy as soon 24 as adrenoleukodystrophy is adopted for inclusion on the federal 25 Recommended Uniform Screening Panel. After consultation with the 26 Office of Early Learning, the department shall also adopt and 27 enforce rules requiring every newborn in this state to be 28 screened for environmental risk factors that place children and 29 their families at risk for increased morbidity, mortality, and 30 other negative outcomes. The department shall adopt such 31 additional rules as are found necessary for the administration 32 of this section and s. 383.145, including rules providing 33 definitions of terms, rules relating to the methods used and 34 time or times for testing as accepted medical practice 35 indicates, rules relating to charging and collecting fees for 36 the administration of the newborn screening program authorized 37 by this section, rules for processing requests and releasing 38 test and screening results, and rules requiring mandatory 39 reporting of the results of tests and screenings for these 40 conditions to the department. 41 Section 2. This act shall take effect July 1, 2015.