Florida Senate - 2023 SB 1408
By Senator Davis
1 A bill to be entitled
2 An act relating to the sickle cell program; providing
3 a short title; amending s. 381.815, F.S.; requiring
4 the Department of Health to establish a grant program
5 for the prevention, care, and treatment of sickle cell
6 disease and for certain educational programs;
7 requiring the department to develop application
8 criteria and standards of eligibility for grants under
9 the program; requiring the department to ensure that
10 grant funds are used for specified purposes; requiring
11 the department to develop and maintain a voluntary
12 sickle cell disease registry; requiring the department
13 to conduct a specified study; requiring the department
14 to adopt rules; providing an effective date.
16 Be It Enacted by the Legislature of the State of Florida:
18 Section 1. This act may be known as the “Sickle Cell
19 Prevention, Care, and Treatment Act.”
20 Section 2. Subsections (1) and (3) of section 381.815,
21 Florida Statutes, are amended to read:
22 381.815 Sickle cell
Sickle-cell program; voluntary
23 registry.—The Department of Health shall, to the extent that
24 resources are available:
25 (1) Provide education to the citizens of Florida about
26 sickle cell sickle-cell disease.
27 (3)(a) Establish a grant program for the prevention, care,
28 and treatment of sickle cell disease and for community-based
29 educational programs concerning the disease. The community-based
30 educational programs shall include an outreach program that
31 provides for the dissemination of information relating to the
32 prevention, care, and treatment of sickle cell disease.
33 (b) Develop application criteria and standards of
34 eligibility for applicants for funds under the grant program.
35 1. Groups or organizations that meet the eligibility
36 standards developed by the department may apply for funds under
37 the program.
38 2.a. Priority for grants must be given to established
39 sickle cell disease community-based applicants throughout this
41 b. Further priority must be given to ensuring the
42 establishment of sickle cell disease centers in underserved
43 areas with a higher population of sickle cell disease patients.
44 (c) Require that all program grant funds be used for the
45 purpose of prevention, care, and treatment of sickle cell
46 disease or for educational programs concerning the disease.
47 (d) Develop and maintain a voluntary sickle cell disease
48 registry for persons diagnosed with sickle cell disease.
49 (e) Conduct a study to determine the prevalence, impact,
50 and needs of patients diagnosed with sickle cell disease and the
51 sickle cell trait in the state.
52 (f) Adopt rules necessary to implement this subsection Make
53 grants or enter into contracts with not-for-profit centers.
54 Section 3. This act shall take effect July 1, 2023.