Florida Senate - 2023 CS for SB 1408
By the Committee on Health Policy; and Senator Davis
1 A bill to be entitled
2 An act relating to the sickle cell program; providing
3 a short title; amending s. 381.815, F.S.; requiring
4 the Department of Health to establish a grant program
5 for the prevention, care, and treatment of sickle cell
6 disease and sickle cell trait or sickle cell trait
7 carriers and for certain educational programs;
8 requiring the department to develop application
9 criteria and standards of eligibility for grants under
10 the program; requiring the department to ensure that
11 grant funds are used for specified purposes; requiring
12 the department to conduct a specified study; requiring
13 the department to adopt rules; providing an effective
16 Be It Enacted by the Legislature of the State of Florida:
18 Section 1. This act may be known as the “Sickle Cell
19 Disease and Sickle Cell Trait Prevention, Care, and Treatment
21 Section 2. Subsections (1) and (3) of section 381.815,
22 Florida Statutes, are amended to read:
23 381.815 Sickle cell
Sickle-cell program; voluntary
24 registry.—The Department of Health shall, to the extent that
25 resources are available:
26 (1) Provide education to the citizens of Florida about
27 sickle cell sickle-cell disease.
28 (3)(a)1. Establish a grant program for the prevention,
29 care, and treatment of sickle cell disease and sickle cell trait
30 or sickle cell trait carriers and for community-based
31 educational programs concerning the disease.
32 2. The community-based educational programs shall include
33 an outreach program that provides for the dissemination of
34 information relating to the prevention, care, and treatment of
35 sickle cell disease and sickle cell trait or sickle cell trait
37 (b) Develop application criteria and standards of
38 eligibility for applicants for funds under the grant program.
39 1. Groups or organizations that meet the eligibility
40 standards developed by the department may apply for funds under
41 the program.
42 2.a. Priority for grants shall be given to established
43 sickle cell disease and sickle cell trait or sickle cell trait
44 carrier community-based applicants throughout this state.
45 b. Further priority shall be given to ensuring the
46 establishment of sickle cell disease and sickle cell trait or
47 sickle cell trait carrier centers in underserved areas with a
48 higher population of sickle cell disease and sickle cell trait
49 or sickle cell trait carrier patients.
50 (c) Require that all program grant funds be used for the
51 purpose of prevention, care, and treatment of sickle cell
52 disease or sickle cell trait or sickle cell trait carriers or
53 for educational programs concerning the disease.
54 (d) Conduct a study to determine the prevalence, impact,
55 and needs of patients diagnosed with sickle cell disease or
56 sickle cell trait or sickle cell trait carriers in this state.
57 (e) Adopt rules necessary to implement this subsection Make
58 grants or enter into contracts with not-for-profit centers.
59 Section 3. This act shall take effect July 1, 2023.