Florida Senate - 2023                             CS for SB 1408
       
       
        
       By the Committee on Health Policy; and Senator Davis
       
       
       
       
       
       588-03491-23                                          20231408c1
    1                        A bill to be entitled                      
    2         An act relating to the sickle cell program; providing
    3         a short title; amending s. 381.815, F.S.; requiring
    4         the Department of Health to establish a grant program
    5         for the prevention, care, and treatment of sickle cell
    6         disease and sickle cell trait or sickle cell trait
    7         carriers and for certain educational programs;
    8         requiring the department to develop application
    9         criteria and standards of eligibility for grants under
   10         the program; requiring the department to ensure that
   11         grant funds are used for specified purposes; requiring
   12         the department to conduct a specified study; requiring
   13         the department to adopt rules; providing an effective
   14         date.
   15          
   16  Be It Enacted by the Legislature of the State of Florida:
   17  
   18         Section 1. This act may be known as the “Sickle Cell
   19  Disease and Sickle Cell Trait Prevention, Care, and Treatment
   20  Act.”
   21         Section 2. Subsections (1) and (3) of section 381.815,
   22  Florida Statutes, are amended to read:
   23         381.815 Sickle cell Sickle-cell program; voluntary
   24  registry.—The Department of Health shall, to the extent that
   25  resources are available:
   26         (1) Provide education to the citizens of Florida about
   27  sickle cell sickle-cell disease.
   28         (3)(a)1. Establish a grant program for the prevention,
   29  care, and treatment of sickle cell disease and sickle cell trait
   30  or sickle cell trait carriers and for community-based
   31  educational programs concerning the disease.
   32         2. The community-based educational programs shall include
   33  an outreach program that provides for the dissemination of
   34  information relating to the prevention, care, and treatment of
   35  sickle cell disease and sickle cell trait or sickle cell trait
   36  carriers.
   37         (b) Develop application criteria and standards of
   38  eligibility for applicants for funds under the grant program.
   39         1. Groups or organizations that meet the eligibility
   40  standards developed by the department may apply for funds under
   41  the program.
   42         2.a. Priority for grants shall be given to established
   43  sickle cell disease and sickle cell trait or sickle cell trait
   44  carrier community-based applicants throughout this state.
   45         b. Further priority shall be given to ensuring the
   46  establishment of sickle cell disease and sickle cell trait or
   47  sickle cell trait carrier centers in underserved areas with a
   48  higher population of sickle cell disease and sickle cell trait
   49  or sickle cell trait carrier patients.
   50         (c) Require that all program grant funds be used for the
   51  purpose of prevention, care, and treatment of sickle cell
   52  disease or sickle cell trait or sickle cell trait carriers or
   53  for educational programs concerning the disease.
   54         (d) Conduct a study to determine the prevalence, impact,
   55  and needs of patients diagnosed with sickle cell disease or
   56  sickle cell trait or sickle cell trait carriers in this state.
   57         (e) Adopt rules necessary to implement this subsection Make
   58  grants or enter into contracts with not-for-profit centers.
   59         Section 3. This act shall take effect July 1, 2023.