Florida Senate - 2023                      CS for CS for SB 1408
       
       
        
       By the Appropriations Committee on Health and Human Services;
       the Committee on Health Policy; and Senator Davis
       
       
       
       
       603-03748-23                                          20231408c2
    1                        A bill to be entitled                      
    2         An act relating to the sickle cell program; providing
    3         a short title; amending s. 381.815, F.S.; requiring
    4         the Department of Health to establish a grant program
    5         for the prevention, care, and treatment of sickle cell
    6         disease and sickle cell trait or sickle cell trait
    7         carriers and for certain educational programs;
    8         requiring the department to develop application
    9         criteria and standards of eligibility for grants under
   10         the program; requiring the department to ensure that
   11         grant funds are used for specified purposes; requiring
   12         the department to conduct a specified study; requiring
   13         the department to adopt rules; providing an effective
   14         date.
   15          
   16  Be It Enacted by the Legislature of the State of Florida:
   17  
   18         Section 1. This act may be known as the “Sickle Cell
   19  Disease and Sickle Cell Trait Prevention, Care, and Treatment
   20  Act.”
   21         Section 2. Subsections (1) and (3) of section 381.815,
   22  Florida Statutes, are amended to read:
   23         381.815 Sickle cell Sickle-cell program.—The Department of
   24  Health shall, to the extent that resources are available:
   25         (1) Provide education to the citizens of Florida about
   26  sickle cell sickle-cell disease.
   27         (3)(a)1. Establish a grant program for the prevention,
   28  care, and treatment of sickle cell disease and sickle cell trait
   29  or sickle cell trait carriers and for community-based
   30  educational programs concerning the disease.
   31         2. The community-based educational programs shall include
   32  an outreach program that provides for the dissemination of
   33  information relating to the prevention, care, and treatment of
   34  sickle cell disease and sickle cell trait or sickle cell trait
   35  carriers.
   36         (b) Develop application criteria and standards of
   37  eligibility for applicants for funds under the grant program.
   38         1. Groups or organizations that meet the eligibility
   39  standards developed by the department may apply for funds under
   40  the program.
   41         2.a. Priority for grants shall be given to established
   42  sickle cell disease and sickle cell trait or sickle cell trait
   43  carrier community-based applicants throughout this state.
   44         b. Further priority shall be given to ensuring the
   45  establishment of sickle cell disease and sickle cell trait or
   46  sickle cell trait carrier centers in underserved areas with a
   47  higher population of sickle cell disease and sickle cell trait
   48  or sickle cell trait carrier patients.
   49         (c) Require that all program grant funds be used for the
   50  purpose of prevention, care, and treatment of sickle cell
   51  disease or sickle cell trait or sickle cell trait carriers or
   52  for educational programs concerning the disease.
   53         (d) Conduct a study to determine the prevalence, impact,
   54  and needs of patients diagnosed with sickle cell disease or
   55  sickle cell trait or sickle cell trait carriers in this state.
   56         (e) Adopt rules necessary to implement this subsection Make
   57  grants or enter into contracts with not-for-profit centers.
   58         Section 3. This act shall take effect July 1, 2023.