Florida Senate - 2023 SB 654 By Senator Berman 26-00129A-23 2023654__ 1 A bill to be entitled 2 An act relating to caregiving youth; defining the 3 terms “caregiving youth” and “household member”; 4 creating the Florida Caregiving Youth Task Force 5 within the Department of Health for a specified 6 purpose; requiring the department to provide 7 administrative and technical assistance to the task 8 force; providing for membership, meetings, and duties 9 of the task force; providing duties for co-chairs of 10 the task force; requiring state agencies to assist and 11 cooperate with the task force upon request; requiring 12 the task force to submit a final report to the 13 Governor, the Legislature, the State Surgeon General, 14 and the director of the Office of Program Policy 15 Analysis and Government Accountability by a specified 16 date; providing for expiration of the task force; 17 creating s. 1006.045, F.S.; defining the terms 18 “caregiving youth” and “household member”; providing a 19 legislative finding; requiring the Department of 20 Education to maintain and make available to school 21 districts a comprehensive list of specified 22 information; requiring each middle and high school to 23 have a designated caregiving youth liaison; requiring 24 liaisons to connect caregiving youth to specified 25 supports and services; providing that caregiving youth 26 may count hours devoted to caring for a household 27 member toward certain community service hour 28 requirements; requiring the department to develop a 29 specified form and procedure; amending s. 1009.25, 30 F.S.; exempting caregiving youth from payment of 31 certain tuition and fees under certain circumstances; 32 creating s. 1012.581, F.S.; requiring the Department 33 of Education to establish a training program for 34 school personnel related to caregiving youth for a 35 specified purpose; requiring the department to select 36 a regional or national authority on caregiving youth 37 to facilitate providing such training to school 38 personnel; providing requirements for the training; 39 requiring school districts to notify school personnel 40 who complete the training of specified information; 41 providing an effective date. 42 43 Be It Enacted by the Legislature of the State of Florida: 44 45 Section 1. Florida Caregiving Youth Task Force.— 46 (1) DEFINITIONS.—As used in this section, the term: 47 (a) “Caregiving youth” means a person younger than 18 years 48 of age who is responsible, to varying degrees, for the care of a 49 household member in need of assistance due to a chronic physical 50 or mental illness, a disability, frailty associated with aging, 51 substance abuse, or other similar condition. For purposes of 52 this definition, care of a household member includes, but is not 53 limited to, direct medical and personal care, household 54 management, language translation in medical settings, emotional 55 support, and parenting siblings. 56 (b) “Household member” means a parent, a grandparent, a 57 sibling, or any extended family member residing in the home, 58 whether related by whole or half blood, affinity, or adoption. 59 (2) TASK FORCE CREATION.—The Florida Caregiving Youth Task 60 Force, a task force as defined in s. 20.03(8), Florida Statutes, 61 is created within the Department of Health to study and make 62 findings and recommendations regarding the necessary supports 63 for caregiving youth who are assisting the aging or adults with 64 disabilities. The department shall provide administrative and 65 technical assistance to the task force in the performance of its 66 duties. 67 (3) MEMBERSHIP.— 68 (a) The task force shall be composed of the following 69 members, to be appointed by July 1, 2023: 70 1. One member of the Senate, appointed by the President of 71 the Senate, to serve as a co-chair. 72 2. One member of the House of Representatives, appointed by 73 the Speaker of the House of Representatives, to serve as a co 74 chair. 75 3. One representative of the Department of Health, 76 appointed by the State Surgeon General. 77 4. One representative of the Department of Education, 78 appointed by the Commissioner of Education. 79 5. One representative of the Department of Children and 80 Families, appointed by the Secretary of Children and Families. 81 6. One representative of the Agency for Persons with 82 Disabilities, appointed by the director of the agency. 83 7. One representative of the Department of Elderly Affairs, 84 appointed by the Secretary of Elderly Affairs. 85 8. One representative of AARP Florida, appointed by the 86 state director of the organization. 87 9. One representative of the American Association of 88 Caregiving Youth, appointed by the board of directors of the 89 association. 90 10. One representative of the Florida Developmental 91 Disabilities Council, appointed by the chair of the executive 92 committee of the council. 93 11. One representative of the Alzheimer’s Association 94 Southeast Chapter, appointed by the executive director of the 95 chapter. 96 12. Seven members of the public, appointed by the Governor. 97 The Governor is encouraged to appoint public members 98 representing the following categories: 99 a. Adult day service providers. 100 b. Adult caregivers. 101 c. Caregiving youth. 102 d. Adult care recipients. 103 e. Secondary school teachers. 104 f. Health care professionals. 105 g. Home health agencies. 106 (b) Any vacancy occurring on the task force shall be filled 107 in the same manner as the original appointment. 108 (c) Members shall serve without compensation but are 109 entitled to reimbursement for per diem and travel expenses 110 pursuant to s. 112.061, Florida Statutes. 111 (4) MEETINGS.— 112 (a) The task force shall hold its first organizational 113 meeting by August 1, 2023. 114 (b) The task force shall meet by teleconference or other 115 electronic means, if possible, to reduce costs. However, the 116 task force must ensure members of the public have meaningful 117 access to such meetings. 118 (c) A majority of the members of the task force constitutes 119 a quorum, and the task force may not meet or take any action 120 without a quorum present. 121 (5) DUTIES.—The task force shall do all of the following: 122 (a) Develop a list of evidence-based questions or criteria 123 that school districts may use to identify caregiving youth in 124 their respective districts and determine the extent of need for 125 supports for those caregiving youth based on the level of 126 responsibility they have in caring for a household member. 127 (b) Identify current best practices for supporting other 128 at-risk populations in secondary schools which would also 129 benefit caregiving youth in the pursuit of their personal 130 achievement and successful future careers. 131 (c) Survey the school districts in this state to determine 132 which, if any, support services are currently offered to 133 students, including, but not limited to, tutoring, mentoring, 134 occupational skills training, leadership development, and 135 guidance and counseling, and require school districts to 136 identify any eligibility requirements for accessing such 137 services. 138 (d) Identify state and federal funding and resource 139 opportunities that may be applicable to and would benefit 140 caregiving youth, including whether a request for federal 141 approval is needed before such opportunities may be offered to 142 caregiving youth who do not otherwise qualify for such 143 opportunities. 144 (e) Study additional innovative and creative means to 145 support caregiving youth so that they can continue providing 146 necessary in-home care for aging adults and adults with 147 disabilities while pursuing an education or skills training. 148 (f) Identify ways in which the Department of Health, 149 Department of Education, and Department of Children and Families 150 can work together to provide comprehensive and streamlined 151 support services to caregiving youth in this state. 152 (g) Identify any legislative barriers to implementing any 153 of the tasks force’s recommendations. 154 (6) CO-CHAIR DUTIES.—The co-chairs of the task force are 155 responsible for guiding the administration of the task force in 156 performance of its duties, including, but not limited to, all of 157 the following: 158 (a) Coordinating appointments to the task force to ensure 159 that members are assembled in a timely manner. 160 (b) Setting a date, time, and place for the initial 161 organizational meeting, as required under subsection (4), and 162 subsequent meetings. 163 (c) Supervising the preparation and distribution of meeting 164 notices, agendas, minutes, correspondence, and reports of the 165 task force. 166 (d) After the task force’s organizational meeting, sending 167 to the director of the Office of Program Policy Analysis and 168 Government Accountability a list of the members appointed and 169 the meeting notice, agenda, and minutes. 170 (e) Directing the task force’s study of policies, 171 resources, and programs available for caregiving youth. 172 (f) Organizing methods to obtain relevant testimony on the 173 needs of caregiving youth. 174 (g) Overseeing the process of compiling an inventory of the 175 resources available to caregiving youth. 176 (h) Ensuring the timely submission of the task force’s 177 final report under subsection (8). 178 (7) AGENCY COOPERATION.—All state agencies shall assist and 179 cooperate with the task force as requested and shall provide 180 reasonable and necessary support staff and materials to the task 181 force. 182 (8) REPORT.—The task force shall submit a report of its 183 findings and recommendations to the Governor, the President of 184 the Senate, the Speaker of the House of Representatives, the 185 State Surgeon General, and the director of the Office of Program 186 Policy Analysis and Government Accountability by January 1, 187 2025. 188 (9) EXPIRATION.—This section expires June 30, 2025. 189 Section 2. Section 1006.045, Florida Statutes, is created 190 to read: 191 1006.045 Caregiving youth.— 192 (1) DEFINITIONS.—As used in this section, the term: 193 (a) “Caregiving youth” means a person younger than 18 years 194 of age who is responsible, to varying degrees, for the care of a 195 household member in need of assistance due to a chronic physical 196 or mental illness, a disability, frailty associated with aging, 197 substance abuse, or other similar condition. For purposes of 198 this definition, care of a household member includes, but is not 199 limited to, direct medical and personal care, household 200 management, language translation in medical settings, emotional 201 support, and parenting siblings. 202 (b) “Household member” means a parent, a grandparent, a 203 sibling, or any extended family member residing in the home, 204 whether related by whole or half blood, affinity, or adoption. 205 (2) LEGISLATIVE FINDING.—The Legislature recognizes that 206 children and adolescents who serve as caregivers to chronically 207 ill, injured, elderly, or disabled family members are at an 208 academic disadvantage and deserve support in their pursuit of 209 personal achievement and successful future careers. 210 (3) RESOURCES AND SUPPORT FOR CAREGIVING YOUTH.—The 211 department shall maintain and make available to school districts 212 a comprehensive list of benefits and resources available to 213 caregiving youth in this state. 214 (4) CAREGIVING YOUTH LIAISONS.—Each middle and high school 215 must have a designated caregiving youth liaison to connect 216 students who are caregiving youth to available supports and 217 services that will promote their academic success, including, 218 but not limited to, all of the following: 219 (a) Any free remote and in-person tutoring or mentoring 220 opportunities, professional training opportunities, mental 221 health services, transportation services, and financial 222 assistance available to the caregiving youth. 223 (b) Information on eligibility for tuition and fee waiver 224 programs for caregiving youth under s. 1009.25. 225 (c) The ability of caregiving youth to count hours devoted 226 to caring for a household member toward community service 227 requirements for high school graduation and for participation in 228 the Florida Bright Futures Scholarship Program. 229 (d) Any state or federal resources available to caregiving 230 youth to support their education and training for successful 231 future careers. 232 (5) COMMUNITY SERVICE HOURS.—The hours that high school 233 students devote to care of a household member may be counted 234 toward meeting community service requirements for high school 235 graduation and for participation in the Florida Bright Futures 236 Scholarship Program. The department shall develop a standard 237 form for reporting such hours for community service and a 238 procedure for submitting such hours for approval. 239 Section 3. Paragraph (h) is added to subsection (1) of 240 section 1009.25, Florida Statutes, to read: 241 1009.25 Fee exemptions.— 242 (1) The following students are exempt from the payment of 243 tuition and fees, including lab fees, at a school district that 244 provides workforce education programs, Florida College System 245 institution, or state university: 246 (h) A student who is a caregiving youth as defined in s. 247 1006.045, provided that he or she pursues education or training 248 in a health-related field of study. 249 Section 4. Section 1012.581, Florida Statutes, is created 250 to read: 251 1012.581 Training on caregiving youth.— 252 (1) The Department of Education shall establish an 253 evidence-based training program to help school personnel 254 identify students who are caregiving youth as defined in s. 255 1006.045, understand the difficulties facing such students, and 256 learn skills to support caregiving youth who are struggling 257 academically due to the added responsibility of caring for a 258 household member. 259 (2) The Department of Education shall select a regional or 260 national authority on caregiving youth to facilitate providing 261 the training to all school personnel in elementary, middle, and 262 high schools. 263 (3) The training program must include, but need not be 264 limited to: 265 (a) An overview of caregiving youth, including an 266 explanation of the nature and varying degrees of responsibility 267 caregiving youth assume in providing care for a household member 268 and how this may contribute to underperformance in school. 269 (b) Instruction on how to identify caregiving youth and 270 determine the extent of their need for support in the pursuit of 271 personal achievement and successful future careers, including 272 procedures and practices school personnel can implement to 273 promote the academic success of caregiving youth in their 274 classrooms. 275 (c) Information on available resources for caregiving youth 276 and how school personnel can connect their students to such 277 resources. 278 (4) Each school district shall notify all school personnel 279 who have received training under this section of the resources 280 and services available for caregiving youth in the school 281 district and the individual to contact if a student needs such 282 services. 283 Section 5. This act shall take effect upon becoming a law.