Florida Senate - 2025                            (NP)    SR 1874
       
       
        
       By Senator Rodriguez
       
       
       
       
       
       40-03240-25                                           20251874__
    1                          Senate Resolution                        
    2         A resolution designating May 1, 2025, as “Prader-Willi
    3         Syndrome Awareness Day” in Florida and expressing
    4         continued support for groundbreaking research that is
    5         improving the quality of life of individuals in this
    6         state who have the disorder and their families.
    7  
    8         WHEREAS, Prader-Willi syndrome is a complex genetic
    9  disorder that occurs in approximately 1 out of every 15,000
   10  births, and
   11         WHEREAS, Prader-Willi syndrome is the most commonly known
   12  genetic cause of life-threatening obesity, and
   13         WHEREAS, there is no known cure for Prader-Willi syndrome,
   14  and
   15         WHEREAS, studies have shown that individuals with Prader-
   16  Willi syndrome have high morbidity and mortality rates, and
   17         WHEREAS, Prader-Willi syndrome affects males and females
   18  with equal frequency and affects all races and ethnicities, and
   19         WHEREAS, Prader-Willi syndrome causes an extreme and
   20  insatiable appetite that often results in morbid obesity, and
   21         WHEREAS, morbid obesity is the major cause of death for
   22  individuals with Prader-Willi syndrome, and
   23         WHEREAS, Prader-Willi syndrome causes cognitive and
   24  learning disabilities and behavioral difficulties, including
   25  obsessive-compulsive disorder and difficulty controlling
   26  emotions, and
   27         WHEREAS, the hunger, metabolic, and behavioral
   28  characteristics of Prader-Willi syndrome mean that individuals
   29  who have the disorder require constant and lifelong supervision
   30  in a controlled environment, and
   31         WHEREAS, early diagnosis of Prader-Willi syndrome allows
   32  families to access treatment, intervention services, and support
   33  from health professionals, advocacy organizations, and other
   34  families who are dealing with the syndrome, and
   35         WHEREAS, recently discovered treatments, including the use
   36  of human growth hormone, are improving the quality of life for
   37  individuals with the syndrome and offer new hope to families,
   38  but no treatments have yet been found for many difficult
   39  symptoms associated with Prader-Willi syndrome, and
   40         WHEREAS, increased research into Prader-Willi syndrome may
   41  lead to a better understanding of the disorder, more effective
   42  treatments, and an eventual cure for the syndrome, and is likely
   43  to lead to a better understanding of common public health
   44  concerns, including childhood obesity and mental health, NOW,
   45  THEREFORE,
   46  
   47  Be It Resolved by the Senate of the State of Florida:
   48  
   49         That the Florida Senate designates May 1, 2025, as “Prader
   50  Willi Syndrome Awareness Day” in Florida and expresses its
   51  continued support for groundbreaking research that is improving
   52  the quality of life of individuals in this state who have the
   53  disorder and their families.