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HB 7079 — OGSR/Florida Center for Brain Tumor Research
by Government Operations Subcommittee and Rep. Bileca (SB 420 by Health Regulation Committee)
This summary is provided for information only and does not represent the opinion of any Senator, Senate Officer, or Senate Office.
Prepared by: Health Regulation Committee (HR)
This bill modifies and reenacts the public records exemption for the Florida Center for Brain Tumor Research under s. 381.8531, F.S. The public records exemption is modified by making confidential and exempt from s. 119.07(1), F.S., and s. 24, Art. I of the Florida Constitution all personal identifying information of a donor to the central repository for brain tumor biopsies or the brain tumor registry. The bill authorizes the disclosure of such personal identifying information for bona fide research purposes, if the researcher submits a research plan that has been approved by an institutional review board, signs a confidentiality agreement, maintains the confidentiality of the information received, and destroys the confidential information after the research has concluded.
This bill extends the repeal date from October 2, 2011, to October 2, 2016, and provides a public necessity statement.
If approved by the Governor, these provisions take effect July 1, 2011.
Vote: Senate 39-0; House 113-1