HB 1381: Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases
GENERAL BILL by Franklin
Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases; Authorizes licensed physicians to prescribe & eligible facilities to administer experimental treatments; requires approval of specified platform or master protocol by institutional review board; requires DOH to establish & maintain patient registry; requires DOH to annually publish specified report; encourages health insurers & health maintenance organizations to provide specified insurance coverage for experimental treatments; authorizes licensed physicians & eligible facilities to receive reimbursement for experimental treatments; requires manufacturers of experimental treatments to provide for specified temporary price concession; requires DOH to adopt by rule certain procedures for licensing of experimental treatment centers.
Last Action: 1/15/2026 House - Now in Health Professions & Programs Subcommittee
Bill Text: PDF
Bill History
| Date | Chamber | Action |
|---|---|---|
| 1/9/2026 | House |
• Filed |
| 1/13/2026 | House |
• 1st Reading (Original Filed Version) |
| 1/15/2026 | House |
• Referred to Health Professions & Programs Subcommittee • Referred to Health Care Budget Subcommittee • Referred to Health & Human Services Committee • Now in Health Professions & Programs Subcommittee |
