HB 1381: Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases
GENERAL BILL by Franklin
Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases; Authorizes licensed physicians to prescribe & eligible facilities to administer experimental treatments; requires approval of specified platform or master protocol by institutional review board; requires DOH to establish & maintain patient registry; requires DOH to annually publish specified report; encourages health insurers & health maintenance organizations to provide specified insurance coverage for experimental treatments; authorizes licensed physicians & eligible facilities to receive reimbursement for experimental treatments; requires manufacturers of experimental treatments to provide for specified temporary price concession; requires DOH to adopt by rule certain procedures for licensing of experimental treatment centers.
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Bill History
Date Chamber Action 1/9/2026 House • Filed
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HB 1381, Original Filed Version (Current Bill Version) Posted 1/9/2026 at 12:37 PM
Bill Text: PDF Analyses: None Related Bills (5)
Bill Number Subject Filed By Relationship Last Action and Location Track Bills H 1383 Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Franklin II Linked Last Action: 1/9/2026 H Filed 
H 1385 Trust Funds/Creation/Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Franklin II Linked Last Action: 1/9/2026 H Filed
S 1552 Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases Burgess Identical Last Action: 1/9/2026 S Filed
S 1554 Public Records/Experimental Treatment Outcomes Burgess Compare Last Action: 1/9/2026 S Filed
S 1556 Experimental Treatment Access Trust Fund/Department of Health Burgess Compare Last Action: 1/9/2026 S Filed
Citations - Statutes (1)
Citation Catchline Location in Bill Location In Bill Help 499.0295 Experimental treatments for terminal conditions. Page 3 (pdf)