CS/CS/SB 1352: Sickle Cell Disease Medications, Treatment, and Screening
GENERAL BILL by Fiscal Policy ; Appropriations Committee on Health and Human Services ; Rouson ; (CO-INTRODUCERS) Davis
Sickle Cell Disease Medications, Treatment, and Screening; Requiring newborn and infant screening providers to notify primary care physicians of newborns and infants of certain screening results and to submit the results to the Department of Health for a specified purpose; requiring the department to contract with a certain center to establish and maintain a sickle cell registry; authorizing parents and guardians of children in the registry to request to have them removed from the registry; requiring the Agency for Health Care Administration, in consultation with certain entities, to review sickle cell disease medications, treatments, and services for Medicaid recipients and develop a written report, post the report on its website, and submit a copy of the report to the Governor, the Legislature, and certain entities by a specified date and every 2 years thereafter, etc. APPROPRIATION: $1,332,159
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Bill History
Date Chamber Action 3/1/2023 Senate • Filed
3/6/2023 Senate • Referred to Health Policy; Appropriations Committee on Health and Human Services; Fiscal Policy
3/7/2023 Senate • Introduced
3/30/2023 Senate • On Committee agenda-- Health Policy, 04/04/23, 8:30 am, 412 Knott Building
4/4/2023 Senate • Favorable by Health Policy; YEAS 12 NAYS 0
• Now in Appropriations Committee on Health and Human Services
4/6/2023 Senate • On Committee agenda-- Appropriations Committee on Health and Human Services, 04/12/23, 8:30 am, 412 Knott Building
4/12/2023 Senate • CS by Appropriations Committee on Health and Human Services; YEAS 16 NAYS 0
4/14/2023 Senate • Pending reference review under Rule 4.7(2) - (Committee Substitute)
• Now in Fiscal Policy
4/17/2023 Senate • On Committee agenda-- Fiscal Policy, 04/20/23, 9:30 am, 412 Knott Building
• CS by Appropriations Committee on Health and Human Services read 1st time
4/20/2023 Senate • CS/CS by- Fiscal Policy; YEAS 20 NAYS 0
4/24/2023 Senate • Pending reference review -under Rule 4.7(2) - (Committee Substitute)
• Placed on Calendar, on 2nd reading
• Placed on Special Order Calendar, 04/26/23
4/25/2023 Senate • CS/CS by Fiscal Policy read 1st time
4/26/2023 Senate • Read 2nd time -SJ 502
• Amendment(s) adopted (306086) -SJ 502
• Read 3rd time -SJ 502
• CS passed as amended; YEAS 40 NAYS 0 -SJ 502
4/26/2023 House • In Messages
5/1/2023 House • Bill referred to House Calendar
• Bill added to Special Order Calendar (5/2/2023)
• 1st Reading (Engrossed 1)
5/2/2023 House • Read 2nd time
• Placed on 3rd reading
• Added to Third Reading Calendar
5/3/2023 House • Read 3rd time
• CS passed; YEAS 116, NAYS 0
5/3/2023 Senate • Ordered enrolled
6/12/2023 • Signed by Officers and presented to Governor
6/19/2023 • Approved by Governor
6/20/2023 • Chapter No. 2023-258
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CS/CS/SB 1352, Enrolled (Current Bill Version) Posted 5/4/2023 at 10:03 PM
Bill Text: Web Page | PDF Analyses: None Related Bills (1)
Bill Number Subject Filed By Relationship Last Action and Location Track Bills H 1481 (c3) Sickle Cell Disease Medications, Treatment, and Screening Healthcare Regulation Subcommittee Similar Last Action: 5/2/2023 H Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258) 
Citations - Statutes (2)
Citation Catchline Location in Bill Location In Bill Help 383.147 Page 2 (pdf) 409.91235 Page 3 (pdf) -
CS/CS/SB 1352, Engrossed 1 Posted 4/26/2023 at 4:55 PM
Bill Text: Web Page | PDF Analyses: None Related Bills (1)
Bill Number Subject Filed By Relationship Last Action and Location Track Bills H 1481 (c3) Sickle Cell Disease Medications, Treatment, and Screening Healthcare Regulation Subcommittee Similar Last Action: 5/2/2023 H Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258)
Floor Votes (1)
Date Chamber Result 5/3/2023 2:39 PM House 116 Yeas - 0 Nays Citations - Statutes (2)
Citation Catchline Location in Bill Location In Bill Help 383.147 Page 2 (pdf) 409.91235 Page 3 (pdf) -
CS/CS/SB 1352, Committee Substitute 2 Posted 4/24/2023 at 9:05 AM
Bill Text: Web Page | PDF Analyses: None Related Bills (1)
Bill Number Subject Filed By Relationship Last Action and Location Track Bills H 1481 (c3) Sickle Cell Disease Medications, Treatment, and Screening Healthcare Regulation Subcommittee Similar Last Action: 5/2/2023 H Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258)
Floor Amendments (1)
Amendment Sponsor Filed Last Floor Action Format 306086 - Amendment
Between lines 136 and 137 insert:Rouson 4/25/2023
1:56 PMSenate: Adopted
4/26/2023Web Page
PDFFloor Votes (1)
Date Chamber Result 4/26/2023 4:24 PM Senate 40 Yeas - 0 Nays Citations - Statutes (2)
Citation Catchline Location in Bill Location In Bill Help 383.147 Page 2 (pdf) 409.91235 Page 3 (pdf) -
CS/SB 1352, Committee Substitute 1 Posted 4/14/2023 at 12:30 PM
Bill Text: Web Page | PDF Analyses: Fiscal Policy (Pre-Meeting) 4/19/2023 (pdf)
Fiscal Policy (Post-Meeting) 4/21/2023 (pdf)
Related Bills (1)
Bill Number Subject Filed By Relationship Last Action and Location Track Bills H 1481 (c2) Sickle Cell Disease Medications, Treatment, and Screening Healthcare Regulation Subcommittee Similar Last Action: 5/2/2023 H Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258)
Committee Amendments (1)
Amendment Sponsor Filed Last Committee Action Format 765662 - Amendment
Delete lines 131 - 137 and insert:Fiscal Policy
(Rouson)4/19/2023
8:51 AMReplaced by Committee Substitute
4/21/2023Web Page
PDFCommittee Votes (1)
Date Committee Result 4/20/2023 9:30 AM Fiscal Policy 20 Yeas - 0 Nays Citations - Statutes (2)
Citation Catchline Location in Bill Location In Bill Help 383.147 Page 2 (pdf) 409.91235 Page 3 (pdf) -
SB 1352, Original Filed Version Posted 3/1/2023 at 12:24 PM
Bill Text: Web Page | PDF Related Bills (1)
Bill Number Subject Filed By Relationship Last Action and Location Track Bills H 1481 (c2) Sickle Cell Disease Medications, Treatment, and Screening Healthcare Regulation Subcommittee Compare Last Action: 5/2/2023 H Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258)
Committee Amendments (1)
Amendment Sponsor Filed Last Committee Action Format 678952 - Amendment (Delete All)
Delete everything after the enacting clause and insert:Appropriations Committee on Health and Human Services
(Rouson)4/10/2023
6:42 PMReplaced by Committee Substitute
4/12/2023Web Page
PDFCommittee Votes (2)
Date Committee Result 4/4/2023 8:30 AM Health Policy 12 Yeas - 0 Nays 4/12/2023 8:30 AM Appropriations Committee on Health and Human Services 16 Yeas - 0 Nays Citations - Statutes (1)
Citation Catchline Location in Bill Location In Bill Help 409.9129 Page 1 (pdf)