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CS/CS/SB 1352: Sickle Cell Disease Medications, Treatment, and Screening

GENERAL BILL by Fiscal Policy ; Appropriations Committee on Health and Human Services ; Rouson ; (CO-INTRODUCERS) Davis

Sickle Cell Disease Medications, Treatment, and Screening; Requiring newborn and infant screening providers to notify primary care physicians of newborns and infants of certain screening results and to submit the results to the Department of Health for a specified purpose; requiring the department to contract with a certain center to establish and maintain a sickle cell registry; authorizing parents and guardians of children in the registry to request to have them removed from the registry; requiring the Agency for Health Care Administration, in consultation with certain entities, to review sickle cell disease medications, treatments, and services for Medicaid recipients and develop a written report, post the report on its website, and submit a copy of the report to the Governor, the Legislature, and certain entities by a specified date and every 2 years thereafter, etc. APPROPRIATION: $1,332,159

Effective Date: 7/1/2023
 Last Action: 6/20/2023 - Chapter No. 2023-258
Bill Text: Web Page | PDF
Senate Committee References:
  1. Health Policy (HP)
  2. Appropriations Committee on Health and Human Services (AHS)
  3. Fiscal Policy (FP)

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  • Bill History

    Date Chamber Action
    3/1/2023 Senate • Filed
    3/6/2023 Senate • Referred to Health Policy; Appropriations Committee on Health and Human Services; Fiscal Policy
    3/7/2023 Senate • Introduced
    3/30/2023 Senate • On Committee agenda-- Health Policy, 04/04/23, 8:30 am, 412 Knott Building
    4/4/2023 Senate • Favorable by Health Policy; YEAS 12 NAYS 0
    • Now in Appropriations Committee on Health and Human Services
    4/6/2023 Senate • On Committee agenda-- Appropriations Committee on Health and Human Services, 04/12/23, 8:30 am, 412 Knott Building
    4/12/2023 Senate • CS by Appropriations Committee on Health and Human Services; YEAS 16 NAYS 0
    4/14/2023 Senate • Pending reference review under Rule 4.7(2) - (Committee Substitute)
    • Now in Fiscal Policy
    4/17/2023 Senate • On Committee agenda-- Fiscal Policy, 04/20/23, 9:30 am, 412 Knott Building
    • CS by Appropriations Committee on Health and Human Services read 1st time
    4/20/2023 Senate • CS/CS by- Fiscal Policy; YEAS 20 NAYS 0
    4/24/2023 Senate • Pending reference review -under Rule 4.7(2) - (Committee Substitute)
    • Placed on Calendar, on 2nd reading
    • Placed on Special Order Calendar, 04/26/23
    4/25/2023 Senate • CS/CS by Fiscal Policy read 1st time
    4/26/2023 Senate • Read 2nd time -SJ 502
    • Amendment(s) adopted (306086) -SJ 502
    • Read 3rd time -SJ 502
    • CS passed as amended; YEAS 40 NAYS 0 -SJ 502
    4/26/2023 House • In Messages
    5/1/2023 House • Bill referred to House Calendar
    • Bill added to Special Order Calendar (5/2/2023)
    • 1st Reading (Engrossed 1)
    5/2/2023 House • Read 2nd time
    • Placed on 3rd reading
    • Added to Third Reading Calendar
    5/3/2023 House • Read 3rd time
    • CS passed; YEAS 116, NAYS 0
    5/3/2023 Senate • Ordered enrolled
    6/12/2023 • Signed by Officers and presented to Governor
    6/19/2023 • Approved by Governor
    6/20/2023 • Chapter No. 2023-258

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  • CS/CS/SB 1352, Enrolled (Current Bill Version) Posted 5/4/2023 at 10:03 PM

    Bill Text:   Web Page | PDF
    Analyses:   None

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    H 1481 (c3) Sickle Cell Disease Medications, Treatment, and Screening Healthcare Regulation Subcommittee Similar Last Action: 5/2/2023 H Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258) Track This Bill

    Citations - Statutes (2)

    Citation Catchline Location in Bill Location In Bill Help
    383.147 Page 2 (pdf)
    409.91235 Page 3 (pdf)

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  • CS/CS/SB 1352, Engrossed 1 Posted 4/26/2023 at 4:55 PM

    Bill Text:   Web Page | PDF
    Analyses:   None

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    H 1481 (c3) Sickle Cell Disease Medications, Treatment, and Screening Healthcare Regulation Subcommittee Similar Last Action: 5/2/2023 H Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258) Track This Bill

    Floor Votes (1)

    Date Chamber Result
    5/3/2023 2:39 PM House 116 Yeas - 0 Nays

    Citations - Statutes (2)

    Citation Catchline Location in Bill Location In Bill Help
    383.147 Page 2 (pdf)
    409.91235 Page 3 (pdf)

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  • CS/CS/SB 1352, Committee Substitute 2 Posted 4/24/2023 at 9:05 AM

    Bill Text:   Web Page | PDF
    Analyses:   None

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    H 1481 (c3) Sickle Cell Disease Medications, Treatment, and Screening Healthcare Regulation Subcommittee Similar Last Action: 5/2/2023 H Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258) Track This Bill

    Floor Amendments (1)

    Amendment Sponsor Filed Last Floor Action Format
    306086 - Amendment
    Between lines 136 and 137 insert:     		Rouson 4/25/2023
    1:56 PM     		Senate: Adopted
    4/26/2023     		Web Page
    PDF

    Floor Votes (1)

    Date Chamber Result
    4/26/2023 4:24 PM Senate 40 Yeas - 0 Nays

    Citations - Statutes (2)

    Citation Catchline Location in Bill Location In Bill Help
    383.147 Page 2 (pdf)
    409.91235 Page 3 (pdf)

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  • CS/SB 1352, Committee Substitute 1 Posted 4/14/2023 at 12:30 PM

    Bill Text:   Web Page | PDF
    Analyses:   Fiscal Policy (Pre-Meeting) 4/19/2023 (pdf)
    Fiscal Policy (Post-Meeting) 4/21/2023 (pdf)

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    H 1481 (c2) Sickle Cell Disease Medications, Treatment, and Screening Healthcare Regulation Subcommittee Similar Last Action: 5/2/2023 H Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258) Track This Bill

    Committee Amendments (1)

    Amendment Sponsor Filed Last Committee Action Format
    765662 - Amendment
    Delete lines 131 - 137 and insert:     		Fiscal Policy
    (Rouson)     		4/19/2023
    8:51 AM     		Replaced by Committee Substitute
    4/21/2023     		Web Page
    PDF

    Committee Votes (1)

    Date Committee Result
    4/20/2023 9:30 AM Fiscal Policy 20 Yeas - 0 Nays

    Citations - Statutes (2)

    Citation Catchline Location in Bill Location In Bill Help
    383.147 Page 2 (pdf)
    409.91235 Page 3 (pdf)

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  • SB 1352, Original Filed Version Posted 3/1/2023 at 12:24 PM

    Bill Text:   Web Page | PDF
    Analyses:   Health Policy (Pre-Meeting) 4/2/2023 (pdf)
    Health Policy (Post-Meeting) 4/4/2023 (pdf)
    Appropriations Committee on Health and Human Services (Pre-Meeting) 4/11/2023 (pdf)
    Appropriations Committee on Health and Human Services (Post-Meeting) 4/14/2023 (pdf)

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    H 1481 (c2) Sickle Cell Disease Medications, Treatment, and Screening Healthcare Regulation Subcommittee Compare Last Action: 5/2/2023 H Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258) Track This Bill

    Committee Amendments (1)

    Amendment Sponsor Filed Last Committee Action Format
    678952 - Amendment (Delete All)
    Delete everything after the enacting clause and insert:     		Appropriations Committee on Health and Human Services
    (Rouson)     		4/10/2023
    6:42 PM     		Replaced by Committee Substitute
    4/12/2023     		Web Page
    PDF

    Committee Votes (2)

    Date Committee Result
    4/4/2023 8:30 AM Health Policy 12 Yeas - 0 Nays
    4/12/2023 8:30 AM Appropriations Committee on Health and Human Services 16 Yeas - 0 Nays

    Citations - Statutes (1)

    Citation Catchline Location in Bill Location In Bill Help
    409.9129 Page 1 (pdf)

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