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| Community Budget Issue Requests - Tracking Id #974 |
| Fragile X - Newborn Screening Pilot Program |
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| Requester: |
Dr. Daniel Armstrong |
Organization: |
University of Miami Center for Childhood Development |
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| Project Title: |
Fragile X - Newborn Screening Pilot Program |
Date Submitted |
12/27/2007 4:21:35 PM |
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| Sponsors: |
Villalobos |
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| Statewide Interest: |
| The continuation of healthcare services and early occupational therapy intervention for children born with developmental disabilities as a result of Fragile X. |
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| Recipient: |
University of Miami, Mailman Center fo Childhood Development |
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Contact: |
Dr. Daniel Armstrong |
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1601 NW 12 Avenue |
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Contact Phone: |
(305) 243-6801 |
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Miami 33136 |
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Contact email: |
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| Counties: |
Miami-Dade, {Statewide} |
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| Gov't Entity: |
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Private Organization (Profit/Not for Profit): |
Yes |
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| Project Description: |
| Funds will be used to create a pilot program for newborn screening for the Fragile X gene in children born at Jackson Memorial Hospital. Fragile X is the leading, discovered, genetic cause for autism and mental retardation. Newborn screening would provide for the ability to commence Speech, Occupational, and Sensory therapy's from birth thus proving and early advantage for normalcy and thus reducing future Medicaid costs which can be incurred if therapy commences with a child at a much later point. |
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| Is this a project related to a federal or state declared disaster? |
No |
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| Measurable Outcome Anticipated: |
| Reduction of Medicare costs for speech, sensory and occupational therapy's to children due to the commencement at an earlier age. |
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| Amount requested from the State for this project this year: |
$500,000 |
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| Total cost of the project: |
$500,000 |
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| Request has been made to fund: |
Operations |
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| What type of match exists for this project? |
Private, Federal |
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Cash Amount |
$30,000 |
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| Was this project previously funded by the state? |
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Yes |
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Fiscal Year: |
2007-2008 |
Amount: |
$50,000 |
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| Is future-year funding likely to be requested? |
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Yes |
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Amount: |
$500,000 |
To Fund: |
Operations |
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| Was this project included in an Agency's Budget Request? |
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No |
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| Was this project included in the Governor's Recommended Budget? |
Unknown |
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| Is there a documented need for this project? |
Yes |
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Documentation: |
Research done by National Fragile X Foundation |
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| Was this project request heard before a publicly noticed meeting of a body of elected officials (municipal, county, or state)? |
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No |
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| Is this a water project as described in Section 403.885, Laws of Florida? |
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No |
