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CS/CS/CS/HB 1481: Sickle Cell Disease Medications, Treatment, and Screening

GENERAL BILL by Health & Human Services Committee ; Health Care Appropriations Subcommittee ; Healthcare Regulation Subcommittee ; Driskell ; Campbell ; (CO-INTRODUCERS) Amesty ; Bartleman ; Joseph ; Woodson

Sickle Cell Disease Medications, Treatment, and Screening; Requires certain health care providers to notify primary care physicians of newborns & infants of certain screening results relating to sickle cell hemoglobin variants & to submit such results to DOH for specified purpose; requires such physicians to provide certain information to parents & guardians; requires DOH to establish & maintain sickle cell registry; authorizes parents & guardians to request to have their children removed from registry; requires AHCA to review sickle cell disease medications, treatments, & services for Medicaid recipients & develop written report, post report on its website, & submit copy of report to Governor, Legislature, & certain entities. APPROPRIATION: $1,332,159

Effective Date: 7/1/2023
Last Action: 5/2/2023 House - Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258)
Bill Text: PDF

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  • Bill History

    Date Chamber Action
    3/6/2023 House • Filed
    3/7/2023 House • 1st Reading (Original Filed Version)
    3/9/2023 House • Referred to Healthcare Regulation Subcommittee
    • Referred to Health Care Appropriations Subcommittee
    • Referred to Health & Human Services Committee
    • Now in Healthcare Regulation Subcommittee
    3/20/2023 House • Added to Healthcare Regulation Subcommittee agenda
    3/22/2023 House • Favorable with CS by Healthcare Regulation Subcommittee
    3/24/2023 House • Reported out of Healthcare Regulation Subcommittee
    • Laid on Table under Rule 7.18(a)
    • CS Filed
    • 1st Reading (Committee Substitute 1)
    3/27/2023 House • Referred to Health Care Appropriations Subcommittee
    • Referred to Health & Human Services Committee
    • Now in Health Care Appropriations Subcommittee
    4/10/2023 House • Added to Health Care Appropriations Subcommittee agenda
    4/12/2023 House • Favorable with CS by Health Care Appropriations Subcommittee
    • Reported out of Health Care Appropriations Subcommittee
    4/13/2023 House • Laid on Table under Rule 7.18(a)
    • CS Filed
    • Referred to Health & Human Services Committee
    • Now in Health & Human Services Committee
    • Added to Health & Human Services Committee agenda
    • 1st Reading (Committee Substitute 2)
    4/17/2023 House • Removed from Meeting Agenda of Health & Human Services Committee
    4/23/2023 House • Added to Health & Human Services Committee agenda
    4/24/2023 House • Favorable with CS by Health & Human Services Committee
    • Reported out of Health & Human Services Committee
    4/25/2023 House • Laid on Table under Rule 7.18(a)
    • CS Filed
    • Bill referred to House Calendar
    • 1st Reading (Committee Substitute 3)
    • Added to Second Reading Calendar
    5/2/2023 House • Laid on Table; companion bill(s) passed, see CS/CS/SB 1352 (Ch. 2023-258)

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  • CS/CS/CS/HB 1481, Committee Substitute 3 (Current Bill Version) Posted 4/25/2023 at 8:55 AM

    Bill Text:   PDF
    Analyses:   None

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    S 1352 (er) Sickle Cell Disease Medications, Treatment, and Screening Rouson Similar Last Action: 6/20/2023 Chapter No. 2023-258

    Citations - Statutes (2)

    Citation Catchline Location in Bill Location In Bill Help
    383.147 Page 2 (pdf)
    409.91235 Page 3 (pdf)

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  • CS/CS/HB 1481, Committee Substitute 2 Posted 4/13/2023 at 8:46 AM

    Bill Text:   PDF
    Analyses:   Health & Human Services Committee (Post-Meeting) 4/24/2023 (pdf)

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    S 1352 (c2) Sickle Cell Disease Medications, Treatment, and Screening Rouson Similar Last Action: 6/20/2023 Chapter No. 2023-258

    Committee Amendments (1)

    Amendment Sponsor Filed Last Committee Action Format
    475673 - Amendment
    Remove lines 132-158 and insert:
    Woodson 4/24/2023
    12:14 PM
    Adopted without Objection
    4/24/2023
    PDF

    Citations - Statutes (2)

    Citation Catchline Location in Bill Location In Bill Help
    383.147 Page 2 (pdf)
    409.91235 Page 3 (pdf)

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  • CS/HB 1481, Committee Substitute 1 Posted 3/24/2023 at 12:23 PM

    Bill Text:   PDF
    Analyses:   Health Care Appropriations Subcommittee (Post-Meeting) 4/12/2023 (pdf)

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    S 1352 Medicaid Enrollees with Sickle Cell Disease Rouson Compare Last Action: 6/20/2023 Chapter No. 2023-258

    Committee Amendments (1)

    Amendment Sponsor Filed Last Committee Action Format
    865259 - Amendment
    Between lines 158 and 159, insert:
    Driskell 4/11/2023
    3:44 PM
    Adopted without Objection
    4/12/2023
    PDF

    Citations - Statutes (2)

    Citation Catchline Location in Bill Location In Bill Help
    383.147 Page 2 (pdf)
    409.91235 Page 3 (pdf)

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  • HB 1481, Original Filed Version Posted 3/6/2023 at 9:53 AM

    Bill Text:   PDF
    Analyses:   Healthcare Regulation Subcommittee (Post-Meeting) 6/20/2023 (pdf)

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    S 1352 Medicaid Enrollees with Sickle Cell Disease Rouson Compare Last Action: 6/20/2023 Chapter No. 2023-258

    Committee Amendments (1)

    Amendment Sponsor Filed Last Committee Action Format
    722687 - Amendment
    Between lines 17 and 18, insert:
    Skidmore 3/22/2023
    11:02 AM
    Adopted without Objection
    3/30/2023
    PDF

    Citations - Statutes (1)

    Citation Catchline Location in Bill Location In Bill Help
    409.91235 Page 1 (pdf)

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