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CS/CS/SB 1356: Florida Institute for Pediatric Rare Diseases

GENERAL BILL by Fiscal Policy ; Education Postsecondary ; Burton ; (CO-INTRODUCERS) Berman

Florida Institute for Pediatric Rare Diseases; Establishing the Florida Institute for Pediatric Rare Diseases within the Florida State University College of Medicine; requiring the institute to establish and administer the Sunshine Genetics Pilot Program for a specified period; providing institute responsibilities and duties relating to the pilot program; providing requirements for participation in the pilot program and data collection and release in the pilot program, etc.

Effective Date: 7/1/2025
 Last Action: 4/28/2025 Senate - Placed on Special Order Calendar, 04/30/25
Bill Text: Web Page | PDF
Senate Committee References:
  1. Education Postsecondary (HE)
  2. Appropriations Committee on Health and Human Services (AHS)
  3. Fiscal Policy (FP)

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  • Bill History

    Date Chamber Action
    2/26/2025 Senate • Filed
    3/6/2025 Senate • Referred to Education Postsecondary; Appropriations Committee on Health and Human Services; Fiscal Policy
    3/10/2025 Senate • Introduced
    3/12/2025 Senate • On Committee agenda-- Education Postsecondary, 03/17/25, 1:30 pm, 301 Senate Building
    3/17/2025 Senate • CS by Education Postsecondary; YEAS 7 NAYS 0
    3/19/2025 Senate • Pending reference review under Rule 4.7(2) - (Committee Substitute)
    • Now in Appropriations Committee on Health and Human Services
    • CS by Education Postsecondary read 1st time
    3/21/2025 Senate • On Committee agenda-- Appropriations Committee on Health and Human Services, 03/26/25, 1:00 pm, 412 Knott Building
    3/26/2025 Senate • Favorable by Appropriations Committee on Health and Human Services; YEAS 10 NAYS 0
    • Now in Fiscal Policy
    3/28/2025 Senate • On Committee agenda-- Fiscal Policy, 04/02/25, 9:00 am, 110 Senate Building
    4/2/2025 Senate • CS/CS by- Fiscal Policy; YEAS 18 NAYS 0
    4/3/2025 Senate • Pending reference review -under Rule 4.7(2) - (Committee Substitute)
    • Placed on Calendar, on 2nd reading
    • CS/CS by Fiscal Policy read 1st time
    4/28/2025 Senate • Placed on Special Order Calendar, 04/30/25

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  • CS/CS/SB 1356, Committee Substitute 2 (Current Bill Version) Posted 4/3/2025 at 10:20 AM

    Bill Text:   Web Page | PDF
    Analyses:   None

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    H 907 (c2) Florida Institute for Pediatric Rare Diseases Health Care Budget Subcommittee Similar Last Action: 4/22/2025 S Received Track This Bill

    Citations - Statutes (1)

    Citation Catchline Location in Bill Location In Bill Help
    1004.4211 Page 1 (pdf)

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  • CS/SB 1356, Committee Substitute 1 Posted 3/19/2025 at 4:04 PM

    Bill Text:   Web Page | PDF
    Analyses:   Appropriations Committee on Health and Human Services (Pre-Meeting) 3/25/2025 (pdf)
    Appropriations Committee on Health and Human Services (Post-Meeting) 3/26/2025 (pdf)
    Fiscal Policy (Pre-Meeting) 4/1/2025 (pdf)
    Fiscal Policy (Post-Meeting) 4/3/2025 (pdf)

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    H 907 (c2) Florida Institute for Pediatric Rare Diseases Health Care Budget Subcommittee Similar Last Action: 4/22/2025 S Received Track This Bill

    Committee Amendments (1)

    Amendment Sponsor Filed Last Committee Action Format
    909844 - Amendment (Delete All)
    Delete everything after the enacting clause and insert:     		Fiscal Policy
    (Burton)     		4/2/2025
    7:55 AM     		Replaced by Committee Substitute
    4/2/2025     		Web Page
    PDF

    Committee Votes (2)

    Date Committee Result
    3/26/2025 1:00 PM Appropriations Committee on Health and Human Services 10 Yeas - 0 Nays
    4/2/2025 9:00 AM Fiscal Policy 18 Yeas - 0 Nays

    Citations - Statutes (1)

    Citation Catchline Location in Bill Location In Bill Help
    1004.4211 Page 1 (pdf)

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  • SB 1356, Original Filed Version Posted 2/26/2025 at 1:22 PM

    Bill Text:   Web Page | PDF
    Analyses:   Education Postsecondary (Pre-Meeting) 3/14/2025 (pdf)
    Education Postsecondary (Post-Meeting) 3/19/2025 (pdf)

    Related Bills (1)

    Bill Number Subject Filed By Relationship Last Action and Location Track Bills
    H 907 (c1) Florida Institute for Pediatric Rare Diseases Health Care Budget Subcommittee Similar Last Action: 4/22/2025 S Received Track This Bill

    Committee Amendments (1)

    Amendment Sponsor Filed Last Committee Action Format
    758458 - Amendment (Delete All)
    Delete everything after the enacting clause and insert:     		Education Postsecondary
    (Burton)     		3/13/2025
    11:47 AM     		Replaced by Committee Substitute
    3/19/2025     		Web Page
    PDF

    Committee Votes (1)

    Date Committee Result
    3/17/2025 1:30 PM Education Postsecondary 7 Yeas - 0 Nays

    Citations - Statutes (1)

    Citation Catchline Location in Bill Location In Bill Help
    1004.4210 Page 1 (pdf)

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