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| Community Budget Issue Requests - Tracking Id #607 |
| System of Care for Children with Fetal Alchohol Spectrum Disorder (FASD) |
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| Requester: |
Kathryn Shea, LCSW |
Organization: |
The Florida Center for Child and Family Development |
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| Project Title: |
System of Care for Children with Fetal Alchohol Spectrum Disorder (FASD) |
Date Submitted |
1/11/2006 10:35:56 PM |
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| Sponsors: |
Bennett |
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| Statewide Interest: |
| This issue was strongly supported by the Legislature and the Governor's Office last year. This FASD project in Sarasota County has the support of the Department of Health, the Department of Children and Families Substance Abuse Mental Health Agency, The Governor's Office of Drug Control, and The Ounce of Prevention Fund. Local agencies affected are the Florida center for Child and Family Development, First Step, Inc., Safe Children Coalition under the Sarasota Family YMCA, Healthy Families Program, Children First, and Healthy Start.
There is strong support for this project at a local, state, and national level. There is no indication of any opposition for this project.
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| Recipient: |
The Florida Center & First Step of Sarasota |
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Contact: |
Kathryn Shea |
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4620 17th Street |
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Contact Phone: |
(941) 371-8820 |
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Sarasota 34235 |
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Contact email: |
kathryn.shea@thefloridacenter.org |
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| Counties: |
Sarasota |
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| Gov't Entity: |
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Private Organization (Profit/Not for Profit): |
Yes |
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| Project Description: |
| The FY 05-06 legislature appropriated $280,000 which established Florida's first FASD Diagnostic/Intervention Center at The Florida Center for Child and Family Development in Sarasota. Funding is requested to continue this initiative whose mission is primary and secondary prevention of FASD through screening, diagnosis, intervention, training, education and research; and to reduce disabilities and increase functioning of persons with FASD to improve their quality of life. The primary target population of this project is young children, ages birth through eight years, and their families who are involved in the child welfare system, those at high risk for entering the child welfare system due to parental substance abuse and/or pre-natal exposure to alcohol and other substances, and those mothers and infants in a residential substance abuse treatment program. This project provides 1) diagnostic services and training/education on a statewide basis; and 2) intervention services for children and families residing in Sarasota County. Family Navigators work with each child and family team to provide support and to assist the family with integration and coordination of services among the multiple systems and various service providers. Continuation funding in FY 06-07 will be used to provide assessment and intervention services (individual/family therapy, behavioral support services, respite, advocacy) to an additional 40 children. In addition, 200 to 300 community professionals will receive training on FASD.
Additional funding ($4,340,000) is requested in FY 06-07 to build upon the FASD initiative started in FY 05-06. Although Florida has made great strides in addressing the impact of FASD in a short period of time, much more needs to be done to accomplish the goals/objectives of Florida's FASD State Strategic Plan. Additional funds will be used to establish three additional FASD Diagnostic and Intervention Centers in Florida. The Diagnostic/Intervention Center in Sarasota will serve as a training site to train the other core teams at the new centers. The 4-Digit Diagnostic Code method used in all seven FAS DPN (Diagnostic & Prevention Network) clinics in Washington State for over three years has demonstrated that this method can be taught to a broad array of social and health care professionals in an equally broad array of clinical settings. Additional funding will also allow development of a family resource center, modeled after the FASD Family Resource Institute in Seattle, WA, to provide families the intensive family support needed to care for these children. These intensive support services would reduce/eliminate children being removed from their biological families due to the family's inability to cope with their multiple needs. These intensive support services would also prevent multiple foster care placements of children and/or failed adoptive placements. In addition, additional funding provided would allow the Center to coordinate a community effort to develop a comprehensive service delivery system for substance exposed infants/children in our community. A portion of this funding ($300,000) would expand outreach services to pregnant women through First Step, support residential treatment for pregnant women who are abusing substances in the Mothers and Infants Program, and provide after-care services for women discharged from the Mothers and Infants or Transitional Living Programs. This comprehensive approach would include multiple service providers that would focus on prevention, intervention, and long term outcomes of infants with pre-natal exposure to alcohol and other substances. These are high risk infants and mothers that require immediate and continuous comprehensive, coordinated services. The additional funding will also create a statewide network which will provide mental health, behavioral support, developmental services; family support services, including training/education support, advocacy, and respite; cross discipline training with the Departments of Juvenile Justice, Health, Mental Health, Education, Agency for Persons with Developmental Disabilities; technical assistance and community support; and program evaluation.
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| Is this a project related to a federal or state declared disaster? |
No |
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| Measurable Outcome Anticipated: |
| The benefits to be achievd are through early identification/intervention we prevent the development of secondary disabilities and improve functioning of young children with FASD and their families. The goal is to improve their quality of life and assist them in reaching their highest level of independent functioning. We also hope to prevent future births of children with FASD through education and referral of birth mothers of those children involved in the FASD identification and treatment project.
Specific outcomes:
100% of children evaluated for FASD will receive appropriate diagnosis based on the 4-digit code and referred for appropriate service interventions
Reduce by 50% the number of placement disruptions in child welfare settings and adoptive homes of those children diagnosed and treated for FASD.
Reduce by 50% the number of preschool and school age children (age's birth through eight) with FASD who are expelled or suspended from day care/school settings due to behavior problems related to the disorder
Screen 100% of children entering the child welfare system in the pilot site areas for FASD adn refer potentially affected children for full evaluation and treatment services.
Train 2,000 child welfare, juvenile justice, child care, and medical care professionals in the symptoms and screening for FASD.
Support residential substance abuse treatment for 13 to 15 pregnant women, resulting in substance free full term pregnancies and substance free newborns (Mothers and Infants and Transitional Living Program at First Step). This treatment continues as an aftercare service with the mothers and their newborn through the Healthy Families and/or Healthy Start program resulting in a significant decrease in recdivism among these women and early identification of newborns/infants at risk for developmental and mental health disorders. A portion of this funding would also expand outreach services to pregnant women and provide after-care services for women discharged from the Mothers and Infants or Transitional Living Program.
Continue the FASD Diagnostic/Intervention Clinic at the Sarasota site and establish 3 additional diagnostic and intervention sites in Florida.
Outputs:
1. 10 to 15 traning events each year
2. 300 to 350 full diagnostic evaluations
3. 200 to 250 children diagnosed with FASD and their families will receive intensive intervention service management, mental health, respite care, family support/education, advocacy.
4. Media campaign educating professionals and the general public on the harm caused by drinking while pregnant.
5. Outreach services to pregnant women.
6. Aftercare services to pregnant women
7. Annual Independent evaluation working in collaboration with the federal FASD Center for Excellence under SAMHSA. |
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| Amount requested from the State for this project this year: |
$4,620,000 |
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| Total cost of the project: |
$4,720,000 |
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| Request has been made to fund: |
Operations |
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| What type of match exists for this project? |
Private |
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Cash Amount |
$100,000 |
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| Was this project previously funded by the state? |
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Yes |
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Fiscal Year: |
2005-2006 |
Amount: |
$280,000 |
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| Is future-year funding likely to be requested? |
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Yes |
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Amount: |
$4,620,000 |
To Fund: |
Operations |
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| Was this project included in an Agency's Budget Request? |
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Yes |
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Agency |
Health, Department Of |
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| Was this project included in the Governor's Recommended Budget? |
No |
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| Is there a documented need for this project? |
Yes |
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Documentation: |
Fetal Alcohol Syndrome (FAS) is the leading cause of mental retardation in the western world and is |
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| Was this project request heard before a publicly noticed meeting of a body of elected officials (municipal, county, or state)? |
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Yes |
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Hearing Body: |
Sarasota County Legislative Delegation |
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Hearing Meeting Date: |
11/03/2006 |
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| Is this a water project as described in Section 403.885, Laws of Florida? |
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No |
