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CS/CS/SB 1356: Florida Institute for Pediatric Rare Diseases

GENERAL BILL by Fiscal Policy ; Education Postsecondary ; Burton ; (CO-INTRODUCERS) Berman

Florida Institute for Pediatric Rare Diseases; Establishing the Florida Institute for Pediatric Rare Diseases within the Florida State University College of Medicine; requiring the institute to establish and administer the Sunshine Genetics Pilot Program for a specified period; providing institute responsibilities and duties relating to the pilot program; providing requirements for participation in the pilot program and data collection and release in the pilot program, etc.

Effective Date: 7/1/2025
 Last Action: 4/3/2025 Senate - CS/CS by Fiscal Policy read 1st time
Bill Text: Web Page | PDF
Senate Committee References:
  1. Education Postsecondary (HE)
  2. Appropriations Committee on Health and Human Services (AHS)
  3. Fiscal Policy (FP)


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Bill History

Date Chamber Action
2/26/2025 Senate • Filed
3/6/2025 Senate • Referred to Education Postsecondary; Appropriations Committee on Health and Human Services; Fiscal Policy
3/10/2025 Senate • Introduced
3/12/2025 Senate • On Committee agenda-- Education Postsecondary, 03/17/25, 1:30 pm, 301 Senate Building
3/17/2025 Senate • CS by Education Postsecondary; YEAS 7 NAYS 0
3/19/2025 Senate • Pending reference review under Rule 4.7(2) - (Committee Substitute)
• Now in Appropriations Committee on Health and Human Services
• CS by Education Postsecondary read 1st time
3/21/2025 Senate • On Committee agenda-- Appropriations Committee on Health and Human Services, 03/26/25, 1:00 pm, 412 Knott Building
3/26/2025 Senate • Favorable by Appropriations Committee on Health and Human Services; YEAS 10 NAYS 0
• Now in Fiscal Policy
3/28/2025 Senate • On Committee agenda-- Fiscal Policy, 04/02/25, 9:00 am, 110 Senate Building
4/2/2025 Senate • CS/CS by- Fiscal Policy; YEAS 18 NAYS 0
4/3/2025 Senate • Pending reference review -under Rule 4.7(2) - (Committee Substitute)
• Placed on Calendar, on 2nd reading
• CS/CS by Fiscal Policy read 1st time