CS/SB 1356: Florida Institute for Pediatric Rare Diseases
GENERAL BILL by Education Postsecondary ; Burton ; (CO-INTRODUCERS) Berman
Florida Institute for Pediatric Rare Diseases; Establishing the Florida Institute for Pediatric Rare Diseases within the Florida State University College of Medicine; requiring the institute to establish and administer the Sunshine Genetics Pilot Program for a specified period; providing institute responsibilities and duties relating to the pilot program; providing requirements for participation in the pilot program and data collection and release in the pilot program, etc. APPROPRIATION: $25,000,000
Effective Date: 7/1/2025
Last Action: 3/28/2025 Senate - On Committee agenda-- Fiscal Policy, 04/02/25, 9:00 am, 110 Senate Building
Bill Text: Web Page | PDF
Last Action: 3/28/2025 Senate - On Committee agenda-- Fiscal Policy, 04/02/25, 9:00 am, 110 Senate Building
Bill Text: Web Page | PDF
Senate Committee References:
Bill History
| Date | Chamber | Action |
|---|---|---|
| 2/26/2025 | Senate |
• Filed |
| 3/6/2025 | Senate |
• Referred to Education Postsecondary; Appropriations Committee on Health and Human Services; Fiscal Policy |
| 3/10/2025 | Senate |
• Introduced |
| 3/12/2025 | Senate |
• On Committee agenda-- Education Postsecondary, 03/17/25, 1:30 pm, 301 Senate Building |
| 3/17/2025 | Senate |
• CS by Education Postsecondary; YEAS 7 NAYS 0 |
| 3/19/2025 | Senate |
• Pending reference review under Rule 4.7(2) - (Committee Substitute) • Now in Appropriations Committee on Health and Human Services • CS by Education Postsecondary read 1st time |
| 3/21/2025 | Senate |
• On Committee agenda-- Appropriations Committee on Health and Human Services, 03/26/25, 1:00 pm, 412 Knott Building |
| 3/26/2025 | Senate |
• Favorable by Appropriations Committee on Health and Human Services; YEAS 10 NAYS 0 • Now in Fiscal Policy |
| 3/28/2025 | Senate |
• On Committee agenda-- Fiscal Policy, 04/02/25, 9:00 am, 110 Senate Building |
